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Sciatica /slipped disc

542 replies

Allofaflutter · 14/04/2024 14:29

Posting here for volume of answers.
Yesterday I moved normally and my lower back suddenly felt like it was being compressed and the pain was awful. Since then pain down one leg. The pain is like cramp but the worst cramp ever. Leg is much worse than back.
I have been screaming all night, literally in so much pain I couldn’t help it, worse than child birth. Couldn’t sit, lay or even perch. Even standing which was when it was best, it was at 9 out of 10. Hubby called 111 and paramedics were sent as I had a pulmonary embolism in Jan and I was screaming with the leg pain and he wanted to be sure it wasn’t that again. They told me to take codiene and paracetamol but it’s not doing anything really significant. They said it was sciatica, possible slipped disc causing it. What can I do to calm the pain. Obviously I’ll call dr tomorrow. Can’t take nsaids as I’m on blood thinners for blood clots. I’ve had no sleep either. Can’t use topical creams for the same reason. Anyone had similar? Can anyone tell me what worked for you? Can’t stand for days though I can just about not cry if I stand. Can’t lay to sleep. Help please? I’m exhausted but the pain won’t let me lay or sit. How long will this go on for?

OP posts:
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Allofaflutter · 22/04/2024 22:14

I also have forgotten half of what the dr said. I tried to write it down when he said it.

OP posts:
nervousweddingguest · 22/04/2024 22:19

Allofaflutter · 22/04/2024 20:00

I was a bit surprised about screaming in pain but being made to leave. They gave me a morphine dose, gave me boxes of amitripline, cocodamol and diazepam. Told me to come back if I if got worse but being in that much pain isn’t a reason to stay. That’s what I’m complaining about. I don’t think it’s right.

hold up a minute.... anyone knows a trip to hospital a&e or otherwise, to get a prescription of that size drawn up would have taken hours?? so they acknowledged your pain by giving you these drugs... without knowing what was causing the pain? they are heavy duty drugs?

justasking111 · 22/04/2024 22:27

My friend was admitted but she had lost the use of both legs and couldn't feel her bladder, bowels letting go.

Another friend was in A&E for 32 hours before being assessed and admitted for a stroke.

So being sent home isn't surprising.

bombastix · 22/04/2024 22:28

No it wouldn't. I got something very similar a week or two back when I was in due to naproxen issues. I was already on amitriptyline and had does of diazepam, codeine and morphine.

Allofaflutter · 22/04/2024 23:28

nervousweddingguest · 22/04/2024 22:19

hold up a minute.... anyone knows a trip to hospital a&e or otherwise, to get a prescription of that size drawn up would have taken hours?? so they acknowledged your pain by giving you these drugs... without knowing what was causing the pain? they are heavy duty drugs?

Sorry what are you asking me? I’m confused? I was there hours. Dr was called that was a ortho and examined me. Did up bum test and blunt needle test. So I assume he saw enough to say it was a slipped disc mostly likely but wanted a mri to be sure but treated me as a slipped disc with nerve pain. Surely a dr knows enough to treat from my symptoms?

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Allofaflutter · 22/04/2024 23:30

justasking111 · 22/04/2024 22:27

My friend was admitted but she had lost the use of both legs and couldn't feel her bladder, bowels letting go.

Another friend was in A&E for 32 hours before being assessed and admitted for a stroke.

So being sent home isn't surprising.

That’s awful. The nhs is definitely creaking.

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Allofaflutter · 22/04/2024 23:34

I just don’t feel I should have been sent home in that much pain. I think I should have been taken in on painkillers that worked, I always think iv painkillers work better. I once had iv paracetamol that was surprisingly strong for an op I had. Then scanned in the morning. If the dr thought it was necessary in the night there and then why wasn’t it necessary as soon as the mri staff arrived?

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Allofaflutter · 22/04/2024 23:37

To be honest though I’m still not happy with sent home the day after almost dying from extensive massive pulmonary embolisms with just blood thinners and a phone call 2 weeks later. That was two months ago. But that’s how things seem to be in the nhs atm.

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nervousweddingguest · 22/04/2024 23:51

Allofaflutter · 22/04/2024 23:34

I just don’t feel I should have been sent home in that much pain. I think I should have been taken in on painkillers that worked, I always think iv painkillers work better. I once had iv paracetamol that was surprisingly strong for an op I had. Then scanned in the morning. If the dr thought it was necessary in the night there and then why wasn’t it necessary as soon as the mri staff arrived?

there is nothing they can do with a slipped disc.. they will not operate immediately unless its life threatening... which is clearly wasn't

you have to give things a chance to heal on their own before you start drilling holes in spines potentially, at best paralyzing you and at worst.. killing you!

those of us who have had spine issues, have been suffering in pain for years and years, not days or weeks...

nervousweddingguest · 22/04/2024 23:53

Allofaflutter · 22/04/2024 23:28

Sorry what are you asking me? I’m confused? I was there hours. Dr was called that was a ortho and examined me. Did up bum test and blunt needle test. So I assume he saw enough to say it was a slipped disc mostly likely but wanted a mri to be sure but treated me as a slipped disc with nerve pain. Surely a dr knows enough to treat from my symptoms?

so your oly gripe is you didnt get an MRI there and then? at least now you are on the list, lets hope the wait is not too long for you

justasking111 · 23/04/2024 00:05

nervousweddingguest · 22/04/2024 23:51

there is nothing they can do with a slipped disc.. they will not operate immediately unless its life threatening... which is clearly wasn't

you have to give things a chance to heal on their own before you start drilling holes in spines potentially, at best paralyzing you and at worst.. killing you!

those of us who have had spine issues, have been suffering in pain for years and years, not days or weeks...

The thing about the MRI is that a diagnosis can be confirmed quickly and the correct treatment started which reduces further damage. With me it's certain drugs and physiotherapy which I paid for because the waiting list for physio in my health trust is six months. Then you only get one session and a photocopy sheet.

I luckily did see a GP in a person. Just the once he referred me privately because I had cover. I've never had a follow up call but presume they have all the information from the clinic.

I've been on Gabapentin for nine months now, again no idea if this is good or maybe should be reviewed

nervousweddingguest · 23/04/2024 00:17

justasking111 · 23/04/2024 00:05

The thing about the MRI is that a diagnosis can be confirmed quickly and the correct treatment started which reduces further damage. With me it's certain drugs and physiotherapy which I paid for because the waiting list for physio in my health trust is six months. Then you only get one session and a photocopy sheet.

I luckily did see a GP in a person. Just the once he referred me privately because I had cover. I've never had a follow up call but presume they have all the information from the clinic.

I've been on Gabapentin for nine months now, again no idea if this is good or maybe should be reviewed

Edited

and you will be well aware that the NHS does not like spending money.. i honestly understand why they did not MRI this person there and then. i dont agree with it, but sadly thats how the NHS is now, there is a strict root of treatment that has to be followed now and sadly unless you are litterally at deaths door, you unfortunately have to stick to that process they follow.

i think its disgusting, but like i say, the NHS doesnt like spending money and spending money on an MRI there and then is not in their remit.

it will be interesting to see how long it takes to get the acutaly MRI (unless they go private)

when i had my issues, i had to wait 3 months of just pain relief before i was referred too the pain clinic, they then examined me and said it was a herniated disc and that i had to have steroid injections, they might work, they might not.. they didnt work... so then at the 6 month mark i was given an MRI.. surprise of surprises, given the extent of issue they admitted that the steriod injection was a waste of time and it wouldnt have worked on me, but they have to try first because it works for some and not others!

i finally had my first surgery at about the 9 month mark, sent home the day after and then 4 weeks after that i was back as the surgery was classed as failed and this time suspected CE.

but during all of this... not being able to work etc... i was never left without pain killers

tabulahrasa · 23/04/2024 00:31

justasking111 · 23/04/2024 00:05

The thing about the MRI is that a diagnosis can be confirmed quickly and the correct treatment started which reduces further damage. With me it's certain drugs and physiotherapy which I paid for because the waiting list for physio in my health trust is six months. Then you only get one session and a photocopy sheet.

I luckily did see a GP in a person. Just the once he referred me privately because I had cover. I've never had a follow up call but presume they have all the information from the clinic.

I've been on Gabapentin for nine months now, again no idea if this is good or maybe should be reviewed

Edited

You’re supposed to get a medication review once a year, mine is just a phone call with the practice pharmacist unless I ask for an extra one because I want to change something and then I get a GP

Allofaflutter · 23/04/2024 12:07

I’ve had a phone call from the mri team. I missed it as I was in the toilet. I’ve rung back but only got the answerphone. Only time I’m not near my phone. If they had rung my mobile I have my watch but no they called just my landline which we don’t use very much. So fingers crossed it’s good news with an appointment.

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justasking111 · 23/04/2024 12:43

Allofaflutter · 23/04/2024 12:07

I’ve had a phone call from the mri team. I missed it as I was in the toilet. I’ve rung back but only got the answerphone. Only time I’m not near my phone. If they had rung my mobile I have my watch but no they called just my landline which we don’t use very much. So fingers crossed it’s good news with an appointment.

Give them your mobile number and carry your phone everywhere or get a hands free phone.

With the hospital board everything is confirmed on my mobile. I've been getting messages for a few years now. My GP, hospital, dentist all use this system.

Good luck 🍀

Allofaflutter · 23/04/2024 12:47

I left my mobile number and told them to call that and I have a watch that I can answer my phone on so fingers crossed they call back.

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Allofaflutter · 23/04/2024 12:48

My mobile number is on my hospital records as I’ve had calls from the hospital before recently when I had my blood clots.

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justasking111 · 23/04/2024 12:49

Rats. Ask them to remove your home number or at least prioritize your mobile.

Penguinfeet24 · 23/04/2024 12:57

Goodness. Reading this makes me extremely glad I took out private healthcare last week :o I'm so sorry you're in so much pain OP, I've had a slipped disc and my god, its so debilitating and painful. If it is that then you will get better but it takes time - traction was the best thing in the world for me.

Prelapsarianhag · 23/04/2024 13:01

Gabapentin from the doc really helped me with the pain.

justasking111 · 23/04/2024 13:03

Prelapsarianhag · 23/04/2024 13:01

Gabapentin from the doc really helped me with the pain.

She won't take it something to do with dementia. Which can happen in the elderly admittedly.

Gabapentin is used in dogs and cats for pain relief and a calming effect on stressed/vicious animals

Allofaflutter · 23/04/2024 14:58

I’m in the age where the report says it can affect and dementia scares me. I’m trying amitripline first. Also gabapentin can increase weight and I’m struggling badly with my weight which I have to deal with. Dr said amitripline doesn’t so trying it first.

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CocktailQueenie · 23/04/2024 15:02

Amitryptaline is fab, Pregabalin works well for me. So sorry you are in so much pain and hope you are treated soon.

Allofaflutter · 23/04/2024 15:03

fingers crossed for me.

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tabulahrasa · 23/04/2024 15:22

Allofaflutter · 23/04/2024 14:58

I’m in the age where the report says it can affect and dementia scares me. I’m trying amitripline first. Also gabapentin can increase weight and I’m struggling badly with my weight which I have to deal with. Dr said amitripline doesn’t so trying it first.

Re weight gain, Amitriptyline has it as a side effect too

But with both that and gabapentin - they don’t directly cause weight gain, they affect your appetite so you eat more and often crave certain stuff.

You’ll also be moving less, obviously, lol and probably grabbing quick food? Because you can’t stand and cook properly…

There are very few medications that literally cause weight gain, most do other stuff that has a knock on effect of causing weight gain.

That probably sounds pedantic, but I mention it because the weight gain isn’t inevitable, it makes it harder to just maintain or lose weight, but you still can.

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