In July 2016 I found a lump in my right breast. After tests I was diagnosed with IDC. I had a partial mastectomy, sentinel lymph nodes removed. Margins clear and no lymph node involvement. I had 4 rounds of chemo and 30 days of radiotherapy. This all ended in April 2017 and I've been on AI's since and going for 3 month check-ups (blood tests, ultrasounds, MRI's).
During radiotherapy I noticed that I'd have a crusty nipple (both breasts-lightly on the left breast but very prominent on the right). I put it down to stress and maybe the rad's. Anyway, its continued until now so about 10 days ago I went to see my Onco to have it checked out. She didn't seem too concerned but sent me for an ultrasound which showed nothing unusual so I thought all was good.
My right breast has been very itchy recently (the last month maybe?) with a burning sensation and has always been painful around the nipple/aerola area since my treatment. I put this down to a mosquito bite that was underneath the breast at first but it's continued.
Tonight I had a look at the breast because the itching/burning sensation was bothering me more than usual. I've just seen that my whole aerola is swollen, lumpy, discoloured.
I'd heard if Paget's Disease when researching about the crusty discharge but as my US came back clear I presumed it wasn't that.
Could it be? Even though my US came back clear? I'm so scared now.
Has anybody had mammory Paget's? Does this sound like it could be?