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ADHD medication thread

(12 Posts)
Waitingforsleep Tue 09-Jan-18 22:25:14

I wondered if I could start a thread on ADHD medication?
I did post about Medikinet and it's all moved on since then I have new questions and updates that others may fine useful?
I will put the info in tomorrow but in brief-
Started Medikinet - was ok but then after 2 weeks dd seemed really explosive and angry a lot and it got worse so we had to take her off
Started on Elvanse but that was an odd one as it had an affect for 2 days (was a bit too
Much the first day as dd slept only for one hour and was so focussed she re arranged her whole bedroom the whole night) then didn't seem any difference so we have been told dd is probably one of the few who cannot tolerate stimulants so now going into strattera which we will try next week..

Anyone else share their stories as it's all so complicated!

peapod66 Thu 11-Jan-18 14:35:33

Hi I would find such a thread very useful, but don't yet have much to contribute I'm afraid. Ds (12) has ADHD/ASD/OCD, but has been unwilling to try medication since diagnosis a year ago, primarily as it is a specific trigger for one aspect of the OCD.

We have progressed dietary changes/supplements, sensory/fiddle toys and support in school where viable, but are keen to find out about the practical experience of medications, as we can foresee a time when we might need to bring this back to the fore.

Waitingforsleep Fri 12-Jan-18 19:34:36

Great hopefully others will be along too.
I will post how we get on but it has to be said it seems to be a very complicated area and whilst one medication works for one child it's not the same for another.

We have decided the problems with insomnia and loss of appitite were a problem for the elvanse and the dr took us off Medikinet after dd kept getting really angry although it worked wonders for two weeks so I'm still a bit upset we had to stop..

Allthewaves Fri 12-Jan-18 20:03:38

Prob all seen me about. Iv 9yr old who has adhd - combined. Good results from Equasym, nearly maxed out dose now so might have to change. Took month drug holiday and have massively reduced his tolerance which is great. Still ongoing battles with keeping weight up

peapod66 Fri 12-Jan-18 21:25:57

It's interesting to hear that for the dcs of both of you there has been the impact on appetite/weight, as it is listed as a possible side effect of the medication ds was prescribed (and alternatives), but not presented as a 'given'. That will be a consideration as well, as ds is only just about 9th centile for weight and height as it is and is quite self-conscious about it - it's not necessarily straightforward is it?....

Waitingforsleep Sat 13-Jan-18 07:56:55

It is not straightforward at all as each child is different. Dd can't afford to lose weight as she is tiny!
What I would say though is that it is worth trying this route. We have tried two so far which haven't been successful but at least I know and it hasn't caused any harm. I have tried both though in holidays to start with though so that I would be home if dd didn't feel great so maybe Feb half term could be a good time?
The stimulant ones are quick acting. Which one are you prescribed?

peapod66 Sat 13-Jan-18 09:04:27

Hi, it's Methylphenidate that he's been prescribed. We remain open to trying it and initially got as far as practising swallowing tablets (tic tacs!) whole and had a schedule to start it in the holidays. However in spite of 'selling' the transient nature of the effects we tried many times and then backed off as it precipitated meltdowns and caused massive anxiety in ds. We have agreed with him to keep it on the back burner as he has now changed to a secondary school which is a much better fit for him. He seems to be coping well so far but some aspects of school remain a challenge for him and this may become more acute as work volumes/complexity increase - we will see!

Waitingforsleep Sat 13-Jan-18 10:02:19

So it's the actual taking of the medicine that's a problem? That would be a tough one as my dd and I talk it all through plus it's vital to communicate about the effects i.e. She tells me if she has a headache etc

peapod66 Sat 13-Jan-18 10:27:28

Hi yes fundamentally that's it. Without derailing the thread with detail I think we had underestimated the strength of his 'phobia' about taking the meds for want of a better word and from experience with ds think it would need CBT or similar to overcome it.

peapod66 Sat 13-Jan-18 10:30:53

Ps. It's great that you are able to sit and talk everything through with your dd in detail as it's then very much a collaborative thing

Waitingforsleep Sat 13-Jan-18 13:28:03

You are not de railing that's what I would
Like this for so people can chat and help with medication advise. I understand, that's hard! Yes we are trying to work together to find the best meds, she got very angry on the Medikinet which we discussed and elvanse hated not sleeping and eating.
She is happily trying the strattera today so will keep updated with the questions and progress we have.
I'm still very worried about it all but if this med helps it could be amazing for us all.

peapod66 Sat 13-Jan-18 19:06:24

Yes fully understand about the worry as I felt/feel like that too, yet there's the potential for medication to make such a difference and you are starting find out what works for your dd. Best of luck with the Strattera, and I hope for you that it proves to be the one that will make the difference without the extent of side effects.

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