It does take a lot to get your head around. My daughter had other health issues throughout childhood, nothing major but things like glue ear, a stammer and ended up being diagnosed being a coeliac when she was 12. So I found it really hard to understand and I suppose I even found it hard to come to terms with for a while.
The treatment was weekly for about 6 months, then dropped to every fortnight and eventually decreased to monthly.
She had her last seizure in Oct 2017 and by that point they were seeing us every 3 months.
Her seizures were caused by cognitive difficulties. She was cognitively below her peers. I had always thought she might be dyslexic or something, but any testing showed she was just above the threshold.
GOSH did lots of educational tests with her and it was shown that her comprehension skills were significantly lower than they should be. Something that wouldn't necessarily have been picked up by tests in school.
GOSH asked my daughters school that she drop her language GCSE. No point in doing something when she would benefit from catch up with the core subjects. She also dropped PE as she did exercise out of school and again she needed to catch up on work missed in YR 9. She missed the majority of that school.
They also worked on relationships with DD too. She had an incident with a teacher in YR 7 and although she said she wasn't bothered by it, they think it effected her esteem more than we thought.
Our DD is one of three and we did work with family relationships too. Quite a lot to explain with this but happy to DM you if you'd like me to?