Our 16-year-old son began refusing to go to school in the first term of Year 10. Initially, it seemed to be severe anxiety, as reality dawned that he was getting closer to his GCSEs. He cried each day and couldn't get out of bed he was so exhausted. He looked awful. Before this, his teachers had told us he was academically very bright and that he would sail through GCSEs with top grades. He used to manage all his own homework without any intervention from us and basically just got on with it. The transformation from this to a boy who genuinely couldn't cope with school and didn't want to go out or be with people was fairly rapid. We had no idea how to handle it initially but throughout the last 20 months since he has been off school permanently, we have only slowly started even beginning to understand how to deal with him. He has just been diagnosed with borderline autism and we are so lucky that he has now gained a place in a special student referral unit for extra support (a half-hour car journey away). Along the way, we have discovered that he doesn't want to become an adult, hates the adult world and has suicidal ideation. Getting him to attend the new place each day involves an hour and a half of cajoling and encouragement, then getting him there and collecting him again an hour and half later as that's all he can manage. Often he just can't do it, but he is trying and has managed a few days there.
It is a sad and draining experience for any parent to go through, let alone for their child, and I have huge empathy for those who have posted here about their own experiences. It's completely understandable that parents who have no experience of these issues may attribute them to mere laziness on the child's part. We had zero understanding until it happened to us, but we certainly know now that the picture is so much more complex in many cases. Being on the receiving end of such simplistic and insensitive judgementalism doesn't help, and it's easy for parents in our situation to become isolated as a result of these kind of attitudes in the wider community.
Our son's school has been incredibly supportive, but this seems to vary considerably across different schools, while LEAs are obsessed with attendance and put pressure on parents and schools when a child struggles with this aspect. The added pressure is the last thing that anyone in this situation needs. There seems to be no formal recognised 'category' for children with these kind of problems unless they qualify for SEN funding which is usually only awarded to the most extreme cases and often linked more to those with a physical disability or children with severe learning disabilities that are more easily classifiable.
To try to understand our son's situation, I'm always looking out for sources of information. I hope that these website links may help others in a similar situation:
www.autism.org.uk/about/in-education/exclusion/school-refusal-strategies.aspx
www.schoolrefuser.org.uk/index.html
senmagazine.co.uk/articles/articles/senarticles/the-roots-of-school-refusal
www.schoolrefusal.co.uk/apps/links/
senmagazine.co.uk/articles/articles/senarticles/the-roots-of-school-refusal
www.telegraph.co.uk/news/health/children/11078624/My-daughter-refused-to-go-to-school-for-five-years.html
I've found that Google searches on 'school refusal and autism', etc, tend to bring up some reasonable information.
Good luck to everyone here who has shared their experiences and it's good to know that we're not alone. I'm trying to stay optimistic in the face of what seems like an impossible challenge, but I can't pretend it's easy. ;-) I can only hope that one day, children like ours will all get to where they need to be, but with the challenges they face, they need to be allowed to do it in their own time...