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Autistic Adult son ,not working,still living at home .be glad to chat to others in same situation

5 replies

Marvinmoose · 24/01/2025 14:15

Son is 25 ,and his EHCP ended last year at 24 ,
I've done all the relevant bits with the job centre and doctors, social worker,so he doesn't have to work..
For college he had a free taxi ,a one to one to meet him at college and stay with him ..he only managed 4 hours at college a week ,but it was something.
He seems happy in himself
But he won't let me put him on the council waiting list for a flat , social services have agreed to 10 hours a week support,if he's in a flat ,or I could look at assisted living again..but he turned that down flat last time .
Anyone else in a similar situation
I'm worried for when I'm dead basically,how will he cope

OP posts:
BrightYellowTrain · 24/01/2025 17:16

Social care support isn’t dependent on DS living somewhere else. You could start by introducing the support at home with the aim of transitioning to living elsewhere over time.

Marvinmoose · 25/01/2025 12:37

Yes . correct.
But while he is living at home with parental support,a package is not needed

OP posts:
BrightYellowTrain · 25/01/2025 13:26

Who told you that? It certainly doesn’t sound like it is the case. DS needs more support than he is currently receiving from services.

Marvinmoose · 25/01/2025 16:13

Because we are providing the current support.
It doesn't work having carers come in the home ,we tried ,we have already had the package and it didn't work,so it's currently on hold until he gets his own place .
I've other children with disabilities,and a full house hold ,he wasn't engaging and the things they helped with ,were already being done by being in a family.
Social services have been really helpful,and if he wants his package back ,he can have it reinstated at home ,he just doesn't

OP posts:
BrightYellowTrain · 25/01/2025 18:16

Having carers whilst living at home (even if they only provide care/support in the community) would help DS take a step towards independence. Obviously it is your decision but is worth relooking at it, IMO, if the aim is to prepare for when you can no longer care for DS. Otherwise you will get to a crisis point where you are no longer able to care for DS but there has been no gradual transition with you around to help advocate and smooth the process somewhat. It is a huge leap from parents/family providing all the support/care to living away from home and someone else providing the care/support. Such a big step increases the risk of it failing/being extremely difficult.

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