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A lot of problems, trying to prioritise... Your ideas ideas / viewpoints needed

6 replies

bosqueverde · 21/08/2024 18:15

Hello,
(quick warning: this questions could have belonged to abuse, divorce/separation, or many other threads... anyway)

I am in a tangle of troubles, and trying to work through them. Short description: I am autistic, so are my two DDs (25 and 22), separated / in process of divorcing from their DM whose meantal health issues have affected our DDs for years. I'm their carer, live in what was the family home. That home is full of books, photos, memories, broken items... (a friend describes it as steptoe and son). It needs maintenance.

All this leaves me feeling like a tightrope-walker - going forward between any of a dozen problems that could explode and throw us all off-balance.

More detail below, but the question is: How would you begin to move out of the squalid, risky, depressing environment that all this makes? What to prioritise?

The detail... Let's describe the recent months.
Late May, my EW announced she was going on a long holiday, and left us her recently adopted cat. In exchange, she would take care of our DDs' own cat as we left in August. But life locally was too depressing, our DDs not loving enough. Some things appeared good: DD1 was getting some sleep, DD2 progressing with uni catch-up work, I began on a garden project.
The cat moves in and starts leaving turds everywhere except in its litter. My DDs don't put their clothes away; what they use most is left in open baskets. Guess where the cat went.
I manage the day-to-day as best I can: shopping, cooking etc., but some things are left undone. There's not enough cleaning and... It triggers DD1's asthma. Luckily this year isn't warm: previous summers warm weather was a boon for cat fleas.
In an attempt to not leave clothes in open baskets, I come in my DD2's bedroom with dry clothes. "Sorry, sorry, sorry, what have I done?" she tells me. Between earlier trauma and her agressive reactions, it is rare that I enter her world without some work or imposition of some sort. It takes some pleading before she agrees that clothes have to be shut away, though she's not hot on the suggestion of looking in the drawers overflowing with garments that are too small, full of holes or that she's never even tried.
My neighbours are maddened by the overgrown garden and I want to do something to keep the peace. So I hack back a hedge and a very unruly elder tree. There's no green bin collection though, and I changed car to a smaller one to cut costs; so I cut and chip some of it as mulch, some as a woodpile for -hopefully- future barbecues, and leave a still large pile to dry, time is limited.
It's Monday. DD1 has a placement, but she hasn't slept. She's pacing madly, trying to collect her thoughts and what she needs. I dare not offer a lift but at the last minute she decides to ask. Luckily I teach in a university; in May, marking and research mean that I can choose my hours, I will catch up at night. I return to find out that DD2 hasn't read e-mail, and doesn't know her deadlines, so help her work out what she has to do. She decides to focus on a smaller piece of work which should take hours... She will stare at it for weeks. I try to work on my own work; it leads me late, and dinner will be at 10pm.
DD1 placement is two days a week. She then writes college work, has therapy online (coping with more trauma), exchanges online with other young people on bad experiences. She cooks sometimes and has DD2's trust when I don't know how to speak to her. It's a lot of work... She's cinderella. DD2 appears to suffer less until a challenge - like walking into her bedroom, or light being off at night, or her mother talking about suicide again - sends her panicking. In a university test, she missed a test, went into meltdown, and I had to talk her out of rolling on the floor.
In the times somehow left free in this mad routine and trying to keep my job, I try to keep up with a minimum of cleanliness, but also prepare the house for better days. Move some of my EW's hoarded things that pepper every room. There are good moments: I dug a pond (will I maintain it though), went walking with DDs and a friend, walked along a river with a friend measuring pollution - which doubles up as progress for university research. I am blessed that a new relationship has entered my life, a sensible, clever, kind woman who understandably, won't touch all this with a barge pole, but has good ideas.
Fast forward to end July and a planned long break with my parents: this is long enough. DD2 has done enough uni work that she can repeat the rest; study may not work out but it is doing a lot for her development. DD1 is in a health crisis: mould spores in her bedroom are triggering so much asthma that she can't breathe. Or sleep. I decide, in a hurry, to swap bedrooms with her.

I write this as this rest away ends soon. I've caught up with some university work. My EW hasn't really held up her part of the bargain - my DDs' cat has had the occasional visit but will probably have littered the house. I'm returning to a lot of work.

Back to questions: priority number 1 is give away the b** cat, but after that... DDs' health, mental health, maintain job, organise to empty stuff that isn't mine (and pressure EW to take it or lose it), move things to complete bedroom swap, keep peace with neighbours... Where do I begin? What's most likely to blow up in my face first? How do I carve a space to breathe, to live so we get out of this madness? WWYD?

OP posts:
EndlessLight · 21/08/2024 21:00

Have you and DDs had social care assessments?

Do DDs (and potentially you) claim all benefits you are all entitled to?

Can you afford a cleaner/decluttering company and gardener?

Is DD2 in receipt of DSA?

Are you and DD2 also receiving MH support?

I think adding work such as a pond when you are struggling to keep on top of life was unwise.

bosqueverde · 21/08/2024 21:27

Have you and DDs had social care assessments?
DD2 (whose needs are most obvious) did. But we will not get help towards the costs. To us "identifying" needs does nothing - we already know them!

Do DDs (and potentially you) claim all benefits you are all entitled to?
Both claim pips. DD1 got a letter in June to reapply. She finds it incredibly harrowing - feels she's a fraud, etc.

Can you afford a cleaner/decluttering company and gardener?
Yes - and gardener (or garden work) is a real option. Decluttering is harder because so much is dependent on decision I can't force.

Is DD2 in receipt of DSA?
Yes. It paid for a computer, then in her 1st year for services that the university outsourced - and those services are so narrowly defined that it didn't support her in the end.

Are you and DD2 also receiving MH support?
No. DD2 - is struggling with confiding anything. Her sister managed to take her to a double GP appointment for MH - at which she hid in the loo for hours, even though she'd decided in advance what she wanted to say!

I think adding work such as a pond when you are struggling to keep on top of life was unwise.
Long story. The pond was dug (well there was a hole in the ground) because DDs had used a ground-level trampoline which had outlived its useful life (trampolining and autism, a marriage made in heaven...). There was carpet to throw away and an old plastic swimming pool. So a lot was done and DDs were looking forward. But you have a good point.

OP posts:
bosqueverde · 21/08/2024 21:28

Sent this too soon! Thank you @EndlessLight

OP posts:
EndlessLight · 21/08/2024 21:41

Social care assessments - you all need social care assessments of your own needs and you need a carer’s assessment. If the only income DDs have is benefits/student loan, they will be eligible for financial help for support even if they have to make a contribution.

PIP - If DD1 can’t manage the claim herself, you can request to become appointee. Then you will be able to complete the forms etc. for her.

DSA - DD2 needs a new needs assessment. DSA can provide so much more than a computer. If providers for other support aren’t working there are other ones.

Pursuing MG support for you is a wise idea. Is DD2 willing for you to speak to the GP on her behalf? Or send a letter? The university will also have a counselling service.

OneInEight · 22/08/2024 07:20

I totally get the feeling of being paralysed by the overload.

And yes one of the first things might be to rehouse the cat.

But for me what helps is breaking the tasks into very, small achievable steps.

Decluttering the whole house might be monumental but it might be achievable to sort out one cupboard or one drawer each day. And then little by little the house will improve.

My house has a lot of stuff in it not least because I run an ebay bookshop from home as well as having three other people who dislike throwing away stuff. One thing I try and do is keep one room in the home relatively free from clutter so at least that is a calm space.

For the mould issue (we have had it). Invest in Cillit Bang - clears it up remarkably and deters it from coming back. Move furniture away from whatever wall is being the most problematic and try and make sure windows are a spell every day. I would also invest in a decent hoover with efficient filters so that you are not just redistributing spores around the house when you clean up.

I would also try and get your girls to help if you can. It might be due to their difficulties they are not able to do everything but if you can try and work together as a team to tackle things it will help. My ds's are not so great at tidying but will do a bit of cleaning, cooking or DIY if prompted which actually makes them feel good about themselves because they are helping and me feel better because then not everything is on me.

And yes - outsource if you can - gardener, window cleaner could help if finances are not too tight. Cleaners more difficult if the girls don't like their space invaded but could maybe get someone in to clean the kitchen if they would tolerate that.

Cas1999 · 27/08/2024 08:21

My heart goes out to you... It's so challenging isn't it. Hope you can look after yourself too -

If the trampoline helped would it be a good idea to get another one? I think it's something all ages can enjoy. It's great exercise and stress release... All good for mental health.. Regulating etc

Don't know if this is any good but I try and keep a cardboard box by the front door (or in the car boot) for getting rid of stuff regularly to bring to charity shop. Even one item a day can help give a sense of control and a positive step forward. Realise how tricky it is to do anything too quickly to avoid causing upset.. But maybe one thing a day would be OK?

Also we use a dehumidifier that has a good air filter...

Keep going you're doing great.
Really feel for you, take care

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