EHCP =PIP?

[LadyWentworth]

I have a 20yo DD. She has a genetic condition diagnosed shortly after birth linked to multiple health issues and MLD. She has an EHCP and has had support all through education but has done quite well, although very stressful at times. I applied for DLA when she was young and it was declined. I didn’t appeal as I felt guilty for applying really, we’ve been able to manage without it although worked part time to manage all hospital appointments. Now she is older and we are working on independence (travel training soon) I feel we should apply for PIP as I don’t think she will manage full time work. Would this be an appropriate application? Someone has told me that because she has an EHCP she should have PIP too. Is this right?

I think DD, or you as her appointee, should apply, and appeal if refused.

Having an EHCP doesn’t automatically mean DD will receive PIP, but it is an indicator of needs.

Many are refused DLA/PIP initially but are successful on mandatory reconsideration or appeal.

Thank you for your advice

I would recommend looking at the PIP application form before applying. You can find the questions online - and also look at the descriptors. This will give you an idea of how points are awarded and the kind of thing they're looking at. When you apply for the form, you have a month to return it, which isn't long given how much detail you need to put on the form. (You can call up for an extension though.)

I would start by making notes of how your DD struggles - and giving examples, now. When I do my DC's DLA renewal I usually start it several months before the due date.

Depending on your personal circumstances, if she does receive PIP you may be entitled to carer's allowance.

Obviously you haven't given specific information, but If her quality of life is affected & if they are not independent, then I suspect they would qualify & that you could have had substantial financial support over the years.
PIP is awarded on a points basis & is very clearly categorised. Do you have a local Signpost for carers - where I am they help you fill in the forms. It is about fitting the category not the length of the answer.
Phone to request them - then any claim will be backdated to the date the forms were requested - this doesn't happen if you fill in online.
If I can help with anything happy to