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SN teens and young adults

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DD 17 worth applying to pip?

7 replies

amyt250190 · 20/07/2021 22:47

My dd 17 has ehlers danlos syndrome, has a lot of issues in school struggling to cope. wants to go to university but says she wouldnt be able to work a job whilst doing university as its too much and she would have zero energy for anything and said she wants to try and see if being on pip would help as it would also mean shes eligible for accommodations she needs for certain things. on top of all this after seeing a psychologist and the possibility of adhd being brought up 4 years ago and only now being investigated shes screened positive for asd which could explain her high anixiety. is it worth trying to apply to pip? i have heard so many horror stories of some assessorts lying etc. is it worth trying to or is this typically something that causes more stress/trauma than its worth?
thank you in advance

OP posts:
OneinNine · 22/07/2021 08:21

Definitely. You need to be careful with the wording to demonstrate how much the conditions affect her day-to-day functioning to make it clear that although she may be able in theory to do certain tasks it will take her substantially longer or will mean she is in pain or severely fatigued after doing them. Any evidence you can supply with the forms e.g. medical reports will strengthen her application. She could also apply for DSA (disabled student's Living allowance) to help with University Costs www.gov.uk/disabled-students-allowance-dsa which is separate from PIP.

Branleuse · 22/07/2021 08:30

Yes but get support and help with applying from an autism or eds charity

BlankTimes · 23/07/2021 03:56

You could be her appointee, plus at the very least use the CAB free online guides to PIP www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/fill-in-form/ or pay for a years' subs to Benefits and Work guides.

It's a difficult benefit to get, mainly because you have to be prepared to fight after you are refused.
Very few people sail through it, many have to take it all the way to Tribunal.

Get as many assessments done as soon as you can, they will help as evidence.
Expect to have a difficult time of it, be prepared for a fight.

Jstsaying123 · 26/07/2021 23:52

It's worth applying but only going by what I read I don't think they would score enough to get an award. If they are about to attend uni, wash, dress, read, speak and get there I can't see how they would meet the criteria. Are they prescribed aids or adaptions for restrictions causes by EDS?... Maybe the uni has grants for students with disabilities, try them instead x

BlankTimes · 27/07/2021 00:38

If they are about to attend uni, wash, dress, read, speak and get there I can't see how they would meet the criteria

Jstsaying123 PIP is awarded to disabled people who work, so don't give up OP.

Also apply through Uni for Disabled Student's Allowance.

BlankTimes · 27/07/2021 13:11

If they are about to attend uni, wash, dress, read, speak and get there I can't see how they would meet the criteria

There's a vast difference between struggling to accomplish something and doing it repeatedly, reliably, safely and in a timely manner.

gogohm · 29/07/2021 16:33

You can try but it's very hard, I go to appeal in 3 weeks. Concentrate on where help is needed because that's what it's awarded for

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