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SN teens and young adults

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How do you accept?

15 replies

fairlybalancedmum · 08/05/2021 19:06

I would love to hear how have learnt to accept your child's differences over the years. Does it get easier? My son is high-functioning ASD (age 16) and I still feel so sad when I see other boys without his difficulties. There must be a point when you reach acceptance and can just shrug and say its different for me but ok? I am constantly looking at his future and worrying about him. Please tell me the anxiety goes away.

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BlankTimes · 15/05/2021 16:21

Instead of envisioning him a future pathway the same as his NT peers and realising that's not a likely outcome, try envisioning him a future which plays to his strengths.

Covid has turned the 9 to 5 office working schedule on its head and with that, the ability to work from home has been a boon for people who found day to day office politics and socialising very difficult.

Really consider these things.

What can he do well, what is he good at and finds interesting?
If communication's a big problem, think about how he could utilise and build on these skills in a working from home environment?

www.understood.org/en/young-adults/career-compass/40-career-examples-of-people-who-learn-and-think-differently

exceptionalindividuals.com/jobs-for-people-with-autism/

fairlybalancedmum · 15/05/2021 17:11

Thank you for replying BlankTimes. That's very helpful.

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frogsarejumpy · 21/07/2021 06:59

I don’t know but am in the same position with my ds, 15. Sad that he also now seems more aware of differences. Some days more positive than others, but it does worry and upset me regularly.
Sorry, no help, just solidarity

fairlybalancedmum · 21/07/2021 09:58

Thanks frogs. It's good to share the difficulties. Good days and bad days. I try to remember that good days do come after bad days!

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Deedyn · 22/07/2021 17:37

Solidarity here too. They’ll always be crap days but you are far from alone.

fairlybalancedmum · 22/07/2021 22:33

It helps to share doesn't it. Thanks Deedyn

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Ellie56 · 25/07/2021 20:41

I long ago stopped comparing my son to his NT peers and his elder brothers, who both did well at school and ended up going to university. That way madness lies and it is pointless.

I used to just think of what DS3 could do now that he couldn't do last year, or the year before and celebrate those achievements.

Also things have improved as DS has grown up, largely I think, because we have fought for the right support, and the right training and education for him, which has made a huge difference.

When he was 16 I couldn't envisage him ever living away from us or doing anything on his own. I thought then that eventually, we would end up later in life, a doddery old couple with a 50 year old man trailing round after us wherever we went. The idea of our son even catching a bus by himself was unthinkable.

Four years later, after training , he was able catch the bus back home from college. He is now 26 and regularly goes out on his own in the local area which he is familiar with, and often catches a bus into town or some other local place. He can use a mobile phone and always takes it with him and keeps it switched on, so we can keep in contact with him. At first he had a cheap phone that he could just take calls and text on. Then he learned you could do loads of other things on phones and he asked for a smartphone of his own, so he could do all those things too.

As the years have gone by, we have met many challenges, but our son has continued to develop in his own pace. Mainstream FE was a disaster as the staff had no clue about autism and just expected him to fit in with everyone else. Not surprisingly the placement fell down and our son was diagnosed with an anxiety disorder .

When he was 21 he went to a specialist residential college for students with autism, 160 miles away from home, where the staff are absolutely fabulous. He spent 3 years there and achieved far more than I ever thought possible.

He learnt independent living skills, improved his communication skills, did work experience dealing with the public at several tourist attractions, and acquired GCSE and NVQ level 3 qualifications.

He learnt to cook, to do his washing and ironing, and to manage money. He learnt to travel independently and regularly travelled home on the train from Somerset to Staffordshire by himself, which involved changing trains. His confidence improved and his self assurance became more and more apparent as time went on. He is now looking forward to living in a place of his own, when I once thought he'd be living with us for ever.

Most important of all, he is happy. He will never go to university, and he may never live wholly independently, but he has regained his self esteem and self confidence and the anxiety that was once so painfully evident, is under control most of the time.

But his greatest achievement is that he has triumphed over autism to such a degree it no longer defines him. He has come to accept and understand his condition, and learnt strategies to cope with his difficulties.

Now, it is just a part of who he is, along with his love of cats, his quirky sense of humour, and his knack of endearing himself to everyone who comes to know him.

Jstsaying123 · 26/07/2021 23:19

Same here, I feel sad too at times. I'm sure your a doing great and I have lows too... I have tried adjusting my expectations on what I see as a successful life for my son... Obviously when babies we say you can be anything, have successful careers, marriage, kids etc.. In reality he has limitations that will affect him in a work place or higher education and in personal relationships ... My son is similar in age, high functioning but struggles socially and with anxiety... I know he would be happy with a few qualifications and a job that wasn't too pressured. I'm watching him closely to figure out his strengths and will work with him from there... I pray he doesn't fall in with the wrong crowd and I know he has a loving family that will help him have an independent life and we will do everything to support him and be happy... His world maybe smaller than others or what I had imagined for him but if I can get him happy and with independence I think that's a win and more importantly I think he will be happy and content too.

Ellie56 · 27/07/2021 09:38

@fairlybalancedmum
@Jstsaying123

Does your child have an EHC Plan? And if so do you think it's accurate?

fairlybalancedmum · 27/07/2021 18:42

Hi Ellie. Thanks for your super post. It made me feel better. I think we should all give ourselves a pat on the back for being such caring and devoted mums. I often think it is much worse for us than them. My son doesn't have an ECHP. I don't know how you qualify for one and we didn't. I think support is patchy and most of the help my son had was paid for by us or from the goodwill of teachers. I often think the bad days are the ones when I forget he's different and I am forced to confront it again. I also think my mood is linked with his and when he's unhappy I am. We just keep going don't we. Your post made me hopeful for my son's future.

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Ellie56 · 27/07/2021 21:56

@fairlybalancedmum

If your boy is struggling, and not necessarily with school work, but with organising himself, social skills, independent living skills etc, maybe you need to think about applying for an EHC Needs assessment.

And don't let the school or LA fob you off that he won't "qualify". A lot of LAs use qualifying criteria which is unlawful. Information here:

www.ipsea.org.uk/ehc-needs-assessments

fairlybalancedmum · 28/07/2021 10:23

Thanks Ellie I will look at that

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KimGriffinOT · 11/08/2021 08:38

There are a lot of autistic adults celebrating their neurodivergence! Maybe they could offer some inspiration. There's loads of TED talks, the Art of Autism has some great drawings and Amanda Kirby's LinkedIn posts are super www.linkedin.com/in/profamandakirby/detail/recent-activity/posts/

Cheeseplantboots · 22/09/2021 20:05

My son is 22. Ive accepted he’ll never live alone and always need 24 hour support but it still makes me really sad. Every birthday is hard, giving him teletubbies DVDs on his 18th made me really emotional!

fairlybalancedmum · 23/09/2021 14:12

Hi Cheese, I feel your sadness and hope it is not something you are always aware of. Are you having a bad day? I hope you have some good people around you and your son and i'm sure he loves you very much .

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