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Please could I have advise on PIP forms

5 replies

Nomorebread · 07/09/2020 12:11

Got the dreaded PIP forms for my son who has just turned 16, and I'm panicking about the evidence part.
All I have as evidence is his statement of educational needs, and my word, plus the fact he has been on DLA for a long time.
He has autism, learning difficulties and some mobility issues. He has not seen any health professionals for around 5 years and has probably never even met his GP. He had some occupational at secondary but they said due to the nature of his disability he had reached the ceiling in terms of his ability. He has no medical needs as such.
I have no time to get an assessment done privately (and kicking myself that I didn't think of it earlier). He has also finished secondary and moving to a special needs college, where none of the adults know him yet.
I don't know who else I can ask or what else I can do. Is a statement enough evidence with all the information I give them?
Any advise would be great, thank you

OP posts:
BlankTimes · 09/09/2020 18:58

PIP is very different to claim than DLA.

CAB and Benefits and Work both produce very good guides on completing PIP forms, I'd suggest you read those first before proceeding.

I've kept these links, so am passing them on as a lot will still be relevant. However, they are pre-Covid, I don't know what they do now for the Face to Face assessment.

www.mumsnet.com/Talk/feeling_depressed/3548163-DLA-turning-to-PIP-advice-please

www.mumsnet.com/Talk/am_i_being_unreasonable/3814234-To-be-scared-of-PIP-assessment?pg=1

Do be prepared to fight, be prepared to appeal and be prepared to go to Tribunal. You can do it. Flowers

Elmo230885 · 09/09/2020 20:21

Do you have an EHCP?
A copy would be useful to send in as many section overlap with areas of PIP and also support a certain level of need
Also make sure you define what you mean by learning difficulties as many PIP assessors (and healthcare professionals in general) don't know the difference between learning difficulties such as dyslexia and learning disabilities such as those associated with Autism or Downs syndrome for example
Also a PP said PIP is a completely different kettle of fish to DLA and depending on need not everyone that qualifies for DLA will qualify for PIP

Nomorebread · 09/09/2020 21:13

Thank you both for your replies. I have written down everything I could think of on the forms using the benefit and works guide. I have his latest EHCP, but that is pretty much all the evidence I have. I have nothing to back up all his personal care needs or things that are not an issue when on the school environment. He hasn’t seen an OT or Physio for at least 5 years as his physical disability is lifelong and he has reached his ceiling in terms of ability.
I’m not quite sure how to define learning disabilities? It’s general learning disabilities due to autism and a global developmental delay that impacts on all learning areas.

OP posts:
Elmo230885 · 09/09/2020 21:19

As silly as it sounds just make sure you use the term "learning disability", if you use " learning difficulty" there's a good chance that someone with little understanding will think "oh it's just dyslexia, it's probably not a big deal" for example and them minimise the restrictions. I know it's stupid!! (I'm an RNLD and I've had to explain the difference to many many healthcare professionals!)
The EHCP should give a good starting point as to areas of need.
Hope that makes sense, and hasn't just worried you!

Elmo230885 · 09/09/2020 21:25

You need to be quite explicit in your answers. E.g. for cooking really spell out why your DC couldn't do it alone, " Fred is unable to cook safely for himself as he has no safety awareness and no understand of when something is cooked and safe to eat. He is supervised in the kitchen as there have been incidents such as him trying to open the oven when food is cooking and not understanding an oven glove needs to be used. Additionally due to his physical restrictions he is unable to stand for more than 5 minutes as he then becomes unstable on his feet and needs to sit down due to pain in his back and legs". Obviously tailoring the answers to the activity and your DC's specific needs.

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