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Support fr parent of ADD teen and ADHD DH

6 replies

tex171 · 07/02/2020 19:42

My DH has ADHD and DS17 has ADD. I’d like to find a support group for myself either in London or online to talk about the challenges of this dynamic. I often feel like the only grown up in the house and find that DH is no help at all with DS. I think he feels guilty as if DS’s ADD is his fault and he gets defensive when I try to talk about the issues, like DS skipping school, not doing homework, etc. I can find support groups for adults with ADHD or parents of young children with ADD but nothing for spouses and/or parents of teens. Does anyone know of such a group?

OP posts:
Homebird8 · 12/03/2020 23:19

I'm not in London but also have ADD DH and DS (17). Happy to chat if it helps. I too often feel like the only grownup and can't rely on anything happening if I don't do it myself. I'm pretty great at prioritising things now (except for myself).

How are you doing?

tex171 · 13/03/2020 09:18

Hi Homebird, I’m hanging in there. How are you? Do your DS and DH use medication? My DS has recently stopped taking his meds and we’re supporting him in this (I want for him to feel in control of the situation, he was only diagnosed two years ago) but it’s right before A-levels which isn’t ideal. After DS diagnosis we started reading up in ADD and ADHD and that’s when we realised that DH had always shown symptoms. He got a private diagnosis and is planning to take meds but it’s a long process. At 50, they are being very careful checking his heart, etc, which is a good thing but time consuming.

I think, for me, I’ve been looking forward to the children getting older and having more autonomy. I’ve been a SAHM for almost 20 years. But I’m realising that with DH I will always be taking care of someone. I feel I’m constantly coming behind him finishing or correcting what he’s started. Stupid things like he constantly puts utensils in the wrong kitchen drawer, and big things like we now have a CCJ against us because he forgot to notify someone when we moved house and missed a payment for two years. I feel I can’t relax because I’m always second guessing him and following up on things, which he considers nagging. How do you cope?

OP posts:
Homebird8 · 14/03/2020 00:40

Hi tex, Are you actually in my head? I could write most of what you say word for word.

DS is in year 13 and so the same exam pressures apply but in his case he is very keen on keeping up with his medication every day including weekends. If we go to see friends for dinner and he forgets to take it with him we have been known to return to fetch it rather than make him suffer the natural consequence of not being able to take part fully in conversation and interaction with his friends. The only reason he forgets is because it has worked it’s way out of his system.

We’re lucky in that his two side effects are quite mild and manageable with careful timing. He loses his appetite for about 2 hours once he take it so he needs food a good times for him so rules about always eating with the family have been relaxed. The other one is that he can’t sleep for about 4 hours after it so we can’t push it too late in the day.

Why does your DS not want to take medication? Does he have difficult side effects or is it more of a not wanting to feel different or rely on meds thing?

As far as DH is concerned we, like you, could see the same things as DS in him and he got a private diagnosis too. He had all the heart checks etc. and now is prescribed the same meds as DS but in different concentrations.

When will your DH trial meds? Soon I hope. DH does say it makes things easier but it wasn’t as striking to me as when DS got his.

I know exactly what you mean about deep down knowing that nothing will change. We have a huge chalkboard where everything that he needs to do is written up and now he’s on meds it sometimes actually happens. It doesn’t stop me always having to be responsible for checking everything that’s necessary is done though.

For example, DS wants to learn to drive and the form here (we no longer live in the UK) asks about any conditions that might make that dangerous. DS is panicked that his ADD might get in the way and so I suggested that he visit the GP who has forms to fill in saying he’s ok to drive if necessary and could put his mind at rest if not. Because DS is so unreliable (and busy with school, and worried) I asked DH to make the appointment. Did it happen? Of course it didn’t. Not until I took DH to the GP to make an appointment he needs for himself and told him to ask for one for DS too.

In the mean time I work full time, run a business, and we have DS2 who is 15 and delightfully NT who needs me too. School already call DS2 a career for his brother. It’s my job to make sure he gets a childhood. He’s a great kid but looking after us all isn’t his job and he falls into it so readily.

Then there is of course the future. It feels like that words should have capital letters. Too scared to even contemplate it most of the time. In answer to your question about coping, I just don’t do anything for me most of the time. I went out with a friend last night. The first time in 4 years. I don’t cope. I just keep on keeping on as MN is so keen on saying.

Do you have other DCs? How do you keep the wheels on? I know why you are looking for support. There isn’t anything I’ve found here. Thank heavens I have an understanding boss.

Homebird8 · 14/03/2020 00:41

Bloody hell, that was an essay. Sorry!

tex171 · 14/03/2020 10:15

It’s amazing how similar our experiences are! It’s great that your DS is happy to take the meds. When my DS took them it was like flipping a switch. He could sit and revise and he’d remember what he’d read. He even read a novel for pleasure, which hadn’t happened for years. He says that the meds give him headaches and make him feel ‘not himself’. I think there is a lot of not wanting to be different too. He has a uni place to study art & design next year and he needs just one C to secure it. He’s a bright kid, I know he could do better, but he’s aiming for that one C. I hope that as he matures he’ll come to terms with the ADD and learn to manage it with or without meds.

On the flipside, DH is so ready for the meds. He had the final cardio check last week so hopefully he can start trialing soon. Of course, he has to make the appointment first. Hmm I do keep telling him it might not be totally life changing. Hopefully it will help but I think he has that film Limitless in his head. Smile

We have a big whiteboard in the kitchen! It’s interesting that we’ve both found ways to manage the challenges. DH has a post-it on the fridge with his list of things. That way I can change the colour of the post it every week. I found that DH became blind to it quite quickly and doesn’t check the whiteboard. Changing the colour regularly helps. I think DH’s ADHD is much worse than DS’.

Forms and appointments are a nightmare! They have no sense of deadlines or how to prioritise responsibilities. I try to set boundaries and not take it all on but it’s hard. I remember DH saying once ‘It would be so much easier if you just did it.’ And that pretty much sums up his approach. I do set boundaries but I’m constantly defending them. Sometimes I think it would be easier if I just did everything too.

We have DD 14. I’ve worried many times that if something happened to me she would get put into the role of carer/manager. I’ve even talked to her about how it’s not her responsibility.

I think my biggest challenge now is that I want things to change. I’ve been a SAHM for a very long time but I want something for me. I’ve started a post grad degree that I hope will lead to a new career. I’ve learned that with the change I will have to sacrifice certain things, like a tidy house, because no one else is able/willing to step up and help. But, if I keep doing it all I become resentful.

I’ve been taking baby steps for the last few years. I asked DH to manage his relationship with his parents. They’re difficult and were always coming to me to try to access him. His response was to cut them off. Not ideal but I’ve just made myself let go of that responsibility. We hardly ever saw them so it’s been fine.

I also told DS that he needed to tidy his own room. It’s a tip most of the time but he does tidy it eventually. I just don’t go in there.

Since DH’s diagnosis he’s more accepting when I remind him to do something. For years he would just flare up into anger, which I understand is common with ADHD. He does see a counselor and I think that helps.

As for keeping the wheels on, I’m not sure I always do. I’m trying very hard to take a step back but it does mean that some things just don’t happen. For example, DS’ uni applications. I made him a chart with the deadlines and reminded him when they were getting close but I left it to him to complete the applications. He managed one which could be completed online. Thankfully he was offered a place. It was painful for me when a deadline would pass and he wouldn’t have applied but I know he’s got to start taking on these responsibilities for himself. He seems delighted with the result so it seems to have worked out.

I do worry about the future. I’ve never wanted to be one of those women who refers to her husband like he’s one of her children, but it does feel like that sometimes. I’ve spent a lifetime taking care of people and I’d like to think there will be a time when I can focus on myself but I know it’ll be a fight to carve out that space. God, I feel exhausted just thinking about it.

OP posts:
tex171 · 24/03/2020 14:08

How are you doing? Are you all isolating at home? We are managing though it’s especially hard for DS and DH.

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