Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

How Do You Support Parents New To Autism?

33 replies

JakB · 21/07/2005 17:47

At the toddler group today, there was a very 'raw' mum whose son is going through a diagnosis of autism. It's so difficult, particularly as my DD is so severely affected (I was gushing about his fab playskills- ie: pushing the train around the track and not just stimming on it!). She's finding the whole thing very hard. She's read Let Me Hear Your Voice and I couldn't hide my despair at that book which I personally don't like (and then I felt bad for making her feel bad). Then she said, 'And what happens about job applications?' And I thought she was about to tell me about a job she was applying for. "I mean, will he have to say he is autistic on the application?" I have to say I was kind of speechless. What do you say? She doesn't want the diagnosis and I was trying to, gently, say that it opens doors in terms of intervention. Help!!!!!!!!!!

OP posts:
Davros · 23/07/2005 11:59

Hmmmm, well we used a simple sequence board in the toilet that was velcroed to the wall and wiping was one of the steps. We also used wipes rather than paper. The sequence ended with a reinforer of course. I think he still had to be supervised rather than hoh prompt, although prob hoh when he was younger/smaller (and less yucky). If you don't supervise then he'll quite likely not do the best job of it iyswim! A key thing is keeping the pants/trousers on rather than letting them fall off, so maybe pulling up pants is just as important a step in the sequence.

Jimjams · 23/07/2005 12:15

at home ds1 now strips naked to go on the toilet- but only at home. If he gets stuck with his top he screams. This all started with the weeing on the floor behaviour (now stopped). Hmmm I have quite a bit of toilet work to do don't I!!!

ON a life insurance front- dh is looking into disabled wills or something- but apparently they're complicated and risky.

Davros · 23/07/2005 12:42

The NAS has someone who gives advice on Wills and Trusts and they have a very good booklet. Also MenCap I think. Haven't done anything about it

Jimjams · 23/07/2005 15:12

dh is a trusts and tax solicitor (handy for this- he's been doing something similar for a client- not autism though)

Davros · 23/07/2005 18:39

Oooh, well send him our way then, maybe talk about it round the PECs conference if not before?

RnB · 26/07/2005 17:32

Message withdrawn

dinosaur · 26/07/2005 17:34

This reply has been withdrawn

This has been withdrawn by MNHQ at the poster's request.

shey · 26/07/2005 18:03

all I could think about was whether ds would ever fall in love........romantic or what!!!

New posts on this thread. Refresh page