J is 9 and a half now. Ive had nine and a half long years of reading every book I can get my hands on about ASD.
Ive followed SID programmes of OT and have seen some improvements with J's sensory difficulties but just as you conquer one problem another raises its head.
Ive done the diet changes and seen small improvements but nothing spectacular.
His bedroom looks like a sensory room with lights that dim, lights that shine white light, chimes to calm, chimes to make him alert, bubble towers, fibre optic lights, music for this and music for that....Ive tried everything in my power to make J's ASD go away....and do you know what...it doesnt and never bloody will.
We can spend all the money we have chasing a path to a better life, we can shed endless tears that our child will never live an independant life, we blame the MMR, God, ourselves, our sons birth parents, the food we eat, the environment....burning endless ammounts of energy just to ensure J's life is better.
Ask J what he wants....does he want to be dragged from one assessment after another? Does he want to be prodded and poked again? Does he want to sit in the same room as his parents whilst they talk to the Paed about all the things he cant do?
Does he want to take the vile potions and pills I force daily into his mouth because they might just help him that little bit more stay focussed?
Of course he doesnt...all he wants is to be who he is and who is, is just fine by me.
Nine and half years fighting the system to ensure a better education and to secure a dx of a condition I nor anyone else can change.
I want J to have the best....thats what every mum wants.....but is what I want the same as what J wants? I think not.
Treasure your children for who they are, not what you want them to be.