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People with autistic children.....

75 replies

Jimjams · 07/06/2005 13:17

Straw pole (if you can remember)

When did your autistic child start to reach out? Did they play with baby gyms or just look at them for example?

If you can say whether you think they werte autistic from birth or regressed that would be helpful as well. If you think they regressed any identifiable trigger would be helpful. I'll explain why later....

I'll go first.

Ds1 used to look at baby gyms but never reached out. We went to baby swimming classes and he didn't reach out for the swimming toys until 7 months. When people gave him presents he never took them. Still often needs a verbal prompt to take things from people.

I think he was stuffed by thimerosal in baby jabs, and regressed further at 11 months following eczema herpeticum.

OP posts:
MotherEve · 08/06/2005 15:07

DS was always different, even from birth. Didn't play with baby gym - just watched it - I now know he's highly visual, which makes sense. He hated loud noises, sunshine and darkness. Still does. He still doesn't point and won't follow our pointing even now - we use a 'look at 9 o'clock', 7 o'clock etc system now as he will turn and look in approximately the right direction - that is of course if what we want to point out is still there by the time we've worked out which o'clock it is!

bunny2 · 08/06/2005 19:02

is chin-pressing specific to ASD then? Ds does this and it has never bothered me till now.

RnB · 08/06/2005 19:29

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bunny2 · 08/06/2005 19:37

thanks RnB

AliceInWonderland · 09/06/2005 09:31

Hi my ds2 (now 12 with AS and etc's)was born very quick and with the cord around his neck needing oxygen, he seemed just like ds1 until about the 6 months mark, then he completely regressed from being a baby that was almost sitting independently, smiling and babbling, to a floppy uninterested child, he also became a very nice yellowish colour, which was not jaundice, I had to take him to the dr's with pictures of before and after about the skin colour change, they just thought he had a tan (I mean as if you sun bath your baby!). He had blood tests and was dx'd as being aneamic (sp?), had to stop breast feeding and put him on booster milk, as he had become 'failure to thrive' as well, dropped off the centile chart completely. This conincided with the first round of serous ear infections and glue ear that continued until he had his first set of grommets at 2yrs, and during this 2yrs was constantly on antibiotics. All his milestones were delayed, he was extremely quiet, or screamed for hours, (got a dummy once I stopped breast feeding, he needed some comfort once he no longer had me). all his delays were put down to glue ear, as he did improve once he had had his op, but glue ear returned at 4 yrs and had to have adenoids out when he was 6 and another set of grommets, that cured that, but his odd behaviours were still there, repitions, lining up of toys, BBC 1950's intonation of speech, not engaging with other children, touching everything, etc . ete ..

The marked regression was virtually ignored by GP and HV, as this was my 2nd child the difference between ds1 and ds2 was startling obvious to me, he also used to teeth grind, sleep with his eyes half open, and jump when I used to pick him up out of the cot.

dinosaur · 09/06/2005 10:49

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Christie · 09/06/2005 22:40

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louismama · 10/06/2005 01:06

Looking back its hard to say is ds was affected from birth my baby book says things like stares endlessly into my eyes whilst breastfeeding enjoys it when we copy his babble at 9 months etc. but people always used to say what a contented baby he was hardly ever cried and he was never happy being around kids his own age older 5/6 year old girls loved them but babbies on same level no way. I may be a bit out but i think i read noticed toys on bar of bouncy chair at 10 weeks and likes to wack them and definately reached out and pulled at bar on car seat as it used to come unattached and land on face 4months ish but has never pointed or waved bye bye maybe we are the exception not the rule or just that our trigger happened after.

louismama · 10/06/2005 01:14

sorry have just reread original post jj i cant think of any trigger at all when problem with eye contact was first noticed at 10 months father left family business and wasnt around ds all day as had been and he experienced problem first but thats not a trigger is it, think gastric infection and intro. of cows milk and gluten was possible cause of significant regression at 18 months though. Good to see you didnt leave mn for good youve probably been back ages but ive not been around for a while either lm xx

Jayzmummy · 10/06/2005 11:10

I'll post later when I have chance to read the thread properly.

Hubby and I are convinced that MMR combined with a massive dose of anti b's was the trigger for J.

Jimjams · 10/06/2005 11:19

The incubator theory is interesting, I wonder whether you would see less reaching out in children with general learning difficulties rather than autism in that case?

Being boorn by section supposedly affects a lot of sensory processing and can delay rolling etc according to an ds1's OT.

Thanks for all these- keep them coming!

OP posts:
saadia · 10/06/2005 12:28

Sorry if I'm being intrusive or irrelevant, but I find this thread very interesting. My dss are NT but I have relatives on the spectrum. As I understood it ASD was genetically transmitted, so is it true to say that in most cases there was already autism in the family?

Jimjams · 10/06/2005 12:38

none in ours - lots of autoimmunity though (diabetes ms etc) which is another common pattern. ime- high functioning autism/AS appears to have a stronger genetic component, although always exceptions.

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saadia · 10/06/2005 13:07

That's very interesting jimjams

Davros · 10/06/2005 14:53

Lots of ASD in my family though and no triggers or regression after DS was born, all there at the start if you ask me. That's why there is this theory of "2 types". Also, lots of people with ASD in their family will have NT children including some of us! (fingers crossed).

saadia · 10/06/2005 15:46

Yes indeed Davros (about having NT kids).

I wondered because I do know of people on the ASD whose children are NT, and where it is genetically passed on I wondered how close a relative would have to be to pass it on ie, would it skip a generation - go from grandfather to grandson for example or from uncle to nephew.

Jayzmummy · 10/06/2005 20:20

As most of you know J and his older sibling we adopted.

The birth parents have a long list each of mental health problems that SS failed to tell us, not that that matters because by the time the dept decided to pass on the relevant info the boys were well and truely ours in every sense.

R, our oldest is NT although he has some problems with organisational skills.

J however has been dx with autism. There are 13 surving children in the boys biological family. All of the 7 boys apart from R have some form of SN. 3 are ASD, 2 have dx of ADHD and then J with autism. None of the girls in the family have any SN or learning difficulties.

When we adopted J it was when the MMR debate was at its highest. Due to all the hype in the press we made the decission not to have the triple vaccine. J was developing well although I had some small concerns that he was a quiet baby. He was 8 months old when he came to live with us. J preferred male company and would giggle so much when he saw DH. He pointed BUT only to cars or anything that moved. He carried a piece of plumbing tube everywhere he went and preferred this to any toy. J was content to just sit and watch the world go by and TBH when I was driving in the car I didnt know he was in the car seat behind me. His favourite pass time was sitting and watching the washing machine as it gurguled around and around.

When J was 2 and 7 months I took him to the HV to be weighed. She gave me a huge lecture about the MMR and I gave in and agreed to let J have it.

That night J was rushed into hospital because he was convulsing so badly. His body was so swollen and he was delirious. He was given massive doses of augmentin by IV and the hospital told us he had an ear infection. J didnt speak from that night on for almost three years. He was a completely different child. No more giggles, no more smiley eyes, no more cuddles.

So both hubby and I belive that given J's birth families history it is with out doubt that he would have had some sort of difficulty BUT we both believe that the combination of the MMR and massive doses of anti b's caused some sort of overload to J's system and was the trigger to form that which was to become autism.

Does that make sense???

How can a blonde haired smiley, happy, chatty, contented child suddenly with in hours of having a vaccine stop talking, smiling and being so content with out any explanation???

It was in the words of our peadiatrician "only an ear infection after all".

Are we mad to believe that that night we "lost" the baby we had adopted? Ive said it before and I'll say it again.....I miss that baby more than anything and for nothing but sheer selfish reasons I wish I could have him back....but I cant.

Instead I am blessed with a child who has taught me so much about myself. He has taught me that I am a fighter, that my love for him is unconditional....which is something as an adoptive mother I doubted could ever truely happen. He has taught me that this world is even tougher than I ever thought possible but with love and determination you can achieve anything. He has taught me what patience, tollerance and understanding truely mean.

I may sometimes yearn for that blonde haired baby, especially when J is having a bad day...but I could never have loved that baby as much as I love my wee man.

Jimjams · 10/06/2005 20:47

saadia in the case of our family I think we carry a genetic predisposition to autoimmunity- the right trigger at the right time = autism. Same trigger different time could = say diabetes type 1. Could all be bollards, but I think we're probably a bit ropey excreting mercury- and mercury can induce autoimmunity.

Jayzmum- similar story to my friend's dd. makes perfect sense.

OP posts:
Jayzmummy · 10/06/2005 20:49

Totally off topic....Jim Jams...Ive sorted my head out a little bit more now. Would it still be OK for me to chat with "your friend"?

Jimjams · 10/06/2005 20:51

Of course- was just reading about your adoption thinking sounds sooo like J. I think you could swap some horror SS stories as well

OP posts:
coppertop · 10/06/2005 21:05

Ds1 spent several days in the SCBU. It would have been less but the horrible nurse decided that she knew better than the Paed and refused to let him back on to the postnatal ward. The post-natal staff were furious and eventually ds1 had to be smuggled out by the SCBU staff from a different shift.

I didn't know much about autism before ds1 came along but I can now see that there are an awful lot of members of the family who are somewhere on the spectrum.

Jayzmummy

RnB · 10/06/2005 21:07

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saadia · 10/06/2005 23:40

Thanks for your replies everyone - sorry for hijacking the thread Jimjams!

InternationalGirl · 11/06/2005 00:00

DH very likely undiagnosed HFA or AS as well as his Mom. Nephews on DH side ADHD and autism. And the more I've learned I think my sister was undiagnosed AS too.

Eulalia · 11/06/2005 08:47

No birth difficulties here or incubator. ds was 'small for dates' but don't know if this was significant. I think his problems could have been something in the womb combined with genetic factors from dh and probably from my side of the family.

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