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SN children

Here are some suggested organisations that offer expert advice on special needs.

Your valued opinions please please please!!!!!!

32 replies

anniebear · 12/04/2005 13:50

some of you know I have 3.7yr old twin girls. They start full time School in September and Grace (NT) will be going to the local infant School and Ellie (SN) will continue to go to her SN School. She will go with Grace to St Andrews (local school) for one session a week with a carer and this will very very slowly increase as she gets older (we think!)

Anyway (if you haven't already fallen asleep!!) In the summer St Andrews will have a few induction sessions that you go to along with your children so they see the School and do some activities.

My dilema.......do I take Ellie?

To be honest she will hardly go to St Andrews especially in the first few years. So there is no real need for her to go. But I feel bad not taking her, bit like I am hiding her away. Plus she has actually been allocated a full time place so she will be expected to go.

But, I know what will happen if I take her....

Picture it..... All the Mums standing there with their perfectly healthy NT children who all shyly stand STILL!! We walk in, Oh of course,as usual, we are heard before we are seen!!!

Ellie will leg it round and look like a really naughty child and I will have all the other Mums staring before they have even met us.
I thought of pushing her right into the room in her SN buggy so at least most may realise she has SN, but I don't know if I could cope with the stares. I will end up looking like an harrassed Mum who can't cope (I am and I can't!!!)

I have visions of the Mums all shocked and worrying that this child is going to disrupt their child for years to come in School!!!!

Thing is, to look at you wouldn't know there was anything wrong.

I know this all sounds really stupid but I knew some of you would understand were I am coming from.

There is no chance of her joining in anything, she will just run round and shout loudly.

I really hate all this, nothing is simple and easy. I am worrying about it and getting upset about it. I just want to be like everyone else, and look forward to it. The other Mums will all be taking their kids along, no worries and yet again just the simplest thing reduces me to tears.

The worst thing also is I shall be the only one standing there (did I say standing? I meant running!!!) with a SN child. When on Mumsnet you know you are amongst others feeling the same, but stand with a group at a mainstream school and you are the only one.

Shouldnt I be able to cope with this by now? She was ill 3 years ago this week.

Sorry to have gone on and on, it most probably sounds like I am making a mountain out of a mole hill.

Sorry about spelling, my spell check doesnt work at the mo!!!!

OP posts:
Christie · 13/04/2005 00:05

This reply has been deleted

Message withdrawn at poster's request.

eidsvold · 13/04/2005 03:19

No real advice just wanted to say sorry that you are having a tough time of it lately. There are so many worries for you - the least being that your babies are starting school.... big step.

Even us with rhino skin ( for me - size and toughness ) things like this would be very hard. If it is any consolation - dd1 will not be starting school as such until 2008 and I get stressed and worried about it NOW! so you are not alone by any means.

If it is a help - on our down syndrome web group a mum posted a letter that she asked to be given to each parent of a child in her son's class. He started mainstream school this year. She simply and openly outlined her son's special needs and how much they were looking forward to being at school etc. If you like I could email that to you. Perhaps at a later date you might be able to amend it to your situation and use it. She figured it gave the parents time to process the information and then decide how best to discuss it with their children. It also gave her and her dh a chance to think carefully and plan what they wanted to say rather than feeling pressured to say something on the go iyswim.

anniebear · 13/04/2005 07:40

Some really good thoughts and idea's.

A letter would be a good idea when she starts going.

I also remember worrying about School 'ages' ago and people said "what are yo worrying for, it's a few years away"

I can tell you, those few years have gone so quickly!

Also the girls were born on the 31st August. I remember giving birth and asking the midwife would they be out by 12 as that was the deadline for Starting School in Sep 05!!! lol

I would give anything to have had them 5 hours later so Partic Ellie had another year.

Oh well, couldn't have done much about that!!

I am just a moaning minnie at the moment.

Thanks for all your replies

When you 1st come out of hospital or the Dr's with your SN child you should be given the Mumsnet web site!!!

OP posts:
anniebear · 13/04/2005 07:43

I had thought to take her (in SN buggy!) and take my Mum. Go in seperate cars and see how long Ellie lasts. If it is two minutes, my Mum will just take her home.

But will that 2 mins be enough to have me in pieces?!!! lol

OP posts:
Davros · 13/04/2005 08:13

Definitely take your mum and have an escape plan! A letter is a good idea. It does help people process the info and gives you the chance to say what you want as Eidsvold says.

eidsvold · 13/04/2005 10:17

that sounds like a plan - the idea of taking your mum so that if it gets too much for Ellie - she can take her home and you can stay for Grace.

I will track down that letter - think I saved it on the pc and hopefully it will give you a starting point.

Davzmum · 13/04/2005 10:45

Taking your mum with you is an excellent idea Annie!
Your not a moaning minnie, we all get our days and I had an evening, told D he couldnt have a bag of crisps which he had already taken anyway and he went into major meltdown......we all get like this.
Keep your chin up xx

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