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To what extent should I accommodate autism?

48 replies

Eulalia · 28/03/2005 20:50

Not sure if that is the right word to use. What I mean is how much should I make allowances for autism affecting ds's behaviour and to what extent should I try and teach him 'normal' behaviour?

After a home visit from the Earlybird team it was suggested that we try some form of discipline on ds for his constant hitting of his sister. We felt that he has to learn that he can't just get away with hitting whenever he feels like it. I am in two minds about this. Firstly I don't know how easily (or if at all) he can control himself. I think he tends to hit and realise straight away that it was wrong. Other times he is CERTAIN that she should be hit because she has done something WRONG and I can't seem to convince him otherwise. I know that he finds her annoying as toddlers are annoying to him. I tried the time out (putting him out of the room) but he kicks the door and screams and I don't know if it is working or maybe I've not done it long enough. She also suggested a reward chart which I've to get round to making up.

The other main question was about expecting other people to make allowances. Was at a soft play area today, one that we often go to but this time ds decided he wanted to stack up some of the soft shapes into an entrance. It was kind of blocking access for other kids but there were other ways to get in. Some boys were helping him and ds was basically ordering them about. Then they decided to take them all out again and ds was furious. As he got more annoyed one of the boys was deliberately doing the opposite thus winding ds up even more. I tried to pull ds away but he was kicking and screaming and I could hardly reach him and it wasn't easy with a 5 month bump. ds kept hitting this boy who was about 7 and he was starting to hit him back. In retrospect I maybe should have asked to speak to his parents and asked them to ignore ds. Do you think this would be best as I don't want ds to stop interacting with others as he seems really keen on talking to people and wanting to 'play'. However if his 'interaction' basically consists of issuing orders to others then its maybe better that they don't 'obey' him thus reinforcing his behaviour.

Sorry for the long post. I am finding ds hard work just now. He seems to be interacting with the world more now which is good ... talking more etc but it's as if his expectations have taken a huge leap and he wants things to be HIS way even more.

Someone tell me this is just a phase please...

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Eulalia · 02/04/2005 10:54

Thanks Mrs F & Christie. Earlybird are looking into getting eggtimers which can be used for a variety of things. The school has stopped ds from hitting, eg a boy sat in what ds felt was his chair. It was the position of hte chair rather the chair itself. They decided to let ds sit there but he had to ask the boy for the chair. They only got as far as "get out of that chair!" but I suppose it is better than hitting.

The thing is that ds can perfectly well ask dd to do things but often chooses to hit her and it's this that we need to work on. It is amazing to see how well she adapts to him although obviously she just doesn't want to know at times.

This thread has been useful as it's made me think what a balancing act it constantly is. Obviously you have to accommodate a disability like this but not to the extent where it rules your life and I feel I have to keep stretching ds and helping him to learn to live with the rest of us.

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MrsBeThankful · 02/04/2005 21:57

elalia...today i 'stretched/tested' leigh....i gave him his clothes to put on and instead of saying-TAKE YOUR JAMMAS OFF...PUT THEM IN THE BATHROOM....PUT ON YOUR CLOTHES.......

I actually deliberarately just gave him the clothes and simply said...." can you put your jammas in the bathroom?"

He just stood there- looked at me then said "but i've still got them on"

This is only a 'tiny' test...but i do it to see whether i really NEED to direct him so specifically.

Then today i 'forced' him outside...he likes playing catch over the fence with the 5 yr old girl next door...unfortunately he is unable to moderate the speed/force and height he throws the ball so it wen't straight over to their neighbours..... so.....;

I listened painfully to him (using his robot voice' state: THE-BALL-HAS-GONE-INTO-XYZ's-GARDEN.
The reply from the 9yr old NT girl 2 doors away was
"Soooooooo?"
Then as i tried to intervene he screeched it again.

I then managed to state
"You need to ask her for the ball"

then jus before he did...in the robot voice....she passed it back (cos she'd not realised i was in my greenhouse listening to the whole thing)

Between you and me i think she is a 'b*tch' as she enjoys tourmenting leigh...she always has and always will.

glad (as i always do) that i was within earshot...as when she looked at me i enjoyed giving her 'The Look' that said I knew she was being nasty!!!!

Eulalia · 03/04/2005 17:53

Like your new name Mrs F or should I say Mrs B. I had to laugh at Leigh saying he still had his pyjamas on - so literal! Remind me how old he is?

ds asked me why he had balls yesterday!!!! That was the word he used - not got from me I think he genuinely made it up I just told him to ask his father! Its been kind of forgotten about but my dh thinks I should tell him something about babies. Not sure if I want to bother about that yet. Part of me is afraid he may start talking to other people about it.

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MrsBeThankful · 03/04/2005 20:49

leigh is 8- 9 in oct.

Alex had the 5 yr old girl next door in tears yesterday when he said 'Yess he'd marry her' ....BUT that only if she promised to have her tummy cut open to have babies....now i've never had a c-section....so this one was not down to me!!!!

Eulalia · 05/04/2005 18:39

ds thinks this baby is just going to burst out of my tummy. If only it were that easy...

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coppertop · 05/04/2005 19:03

Ds1 has asked if we can have 10 more babies. Eeek! And to think I once worried that he would hate having ds2 around.

MrsBeThankful · 05/04/2005 20:10

.....and then there's me looking like i am about to 'burst forth many babies'!!!! (i'm not pregnant!!!)

coppertop · 05/04/2005 22:39

I bet my stomach's still bigger than yours, MrsF - and I've only had 2 children, not 3. Sadly I am lacking in slim genes as well as organisational genes.

MrsBeThankful · 05/04/2005 22:59

you should have seen me trying to stand up in the shallow end of the swimming pool at bulins- it was a gentle slope...waves lapping around me....and i could not get up- i kept slipping!!! (beached whale springs to mind!)

Then today i fell down a grassy slope (wet grass!) and lest skid/knee marks in the ground!!! (that was taking the boys to the holiday club!)
Then on bringing them home i fell off the kerb!!! I have a grazed knee....had to put a huge plaster on as my trousers kept rubbing the sore skin!!!!

coppertop · 06/04/2005 13:18

Well in that case I definitely win, MrsF. Me in a swimming costume?? NEVER!!

Eulalia · 06/04/2005 16:19

Thought this was funny. ds wouldn't go to the toilet last thing before bed. I asked him when he'd last had a wee. He said "I went to the toilet yesterday" Actually he uses the word 'yesterday' often and it can mean anything from one hour ago to one year ago.

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coppertop · 06/04/2005 17:27

LOL! That sounds just like ds1. Everything in the past apparently happened either yesterday or last week. I get a few odd looks from people who innocently ask him "Are you going home for some lunch now?" - only to have ds1 answer "No. I had mine lunch last week." It doesn't help that he is so thin too.

TheRealMrsF · 06/04/2005 18:11

alex refers to the future as the day after the day after the day after the day the day after the day after the day after the day...etc!!!

Chocol8 · 06/04/2005 21:03

If something has just happened, my ds says to me...."mummy, do you remember when...blah blah..." like it happened years ago, not just a minute.

coppertop · 06/04/2005 22:17

Ds1 keeps telling me "When I was little I did [whatever he did]."

When I was little???? He's 4 FGS!

pixel · 06/04/2005 22:20

My godson was much more spooky. When he was small he was talk about things he did "when I was big before". Freaked his mum out a bit!

beccaboo · 06/04/2005 22:23

That IS quite spooky, it would freak me out.

coppertop · 06/04/2005 22:25

Ds1 kept talking about how he used to live in a castle. Me and dh were just starting to thing it was all a bit strange when I realised he was talking about Newcastle - where ds1 was born!!! We'd told him ages ago that he was from there but just assumed it hadn't gone in.

beccaboo · 06/04/2005 22:28

ah, bless. This isn't relevant to the past/present thing, but ds announced today 'I am probably a boy'

coppertop · 06/04/2005 22:32

Awww! Bless him. These kinds of decisions obviously shouldn't be rushed.

bambi06 · 06/04/2005 22:52

i also went through this dilemma with my son ..now 5 1/2 and we had lots of appts with behaviour therapy as to what to do.. it was always a battle about getting him to not to control everyone.where ever we went plus games had to be played on his terms or not at all and he s always winding his sister up and deliberately annoying her then laughing and shouting in her face..hes very , very loud constantly.. he is also a backseat driver and talks constantly in the car .motor way journeys are a nightmare! but basically we didint know how much to allow for him being asd so sometimes i would be more lenient but as hes got older and wiser ive noticed him wising up and trying it on more so ive decided that he s got to live in this world like everyone else so hes got to learn to fit i as well as poss which can be very tiring for us all but in the long run i see it that this will help him in the long run to fit in with society ....but just when im ready to come down on him like a ton of bricks hes becoming so sweet natured and caring as to how he was when he was younger that im thinking he was just having to compete with his raging hormones which happens at 4 yrs [with boys ]that he was so frustrated from that as well tha tpoor thing he was going through hell and back..suddenly a lot of things are clicking with him and hes just getting the hang of reading and loving it and his teacher has expressed how wll hes suddenly doing and how hes understanding so much more and has calmed as well, were having less meltdowns so im keeping my fingers crossed that it was a phase so keep your chinns up and lets hope its the same with your sons.. this is a very long message and i`ve garbled but what i was trying to say is..it could be a lot to do with hormones ..poor things..

TheRealMrsF · 07/04/2005 14:13

WE CAME BACK FROM LIDL WITH A TOOL BOX FOR ALEX(PLUS NUMEROUS OTHER VARIATIONS OF STORAGE BOXES FOR me ;O)....
AND I SAID TO ALEX "DON'T OPEN THAT TILL I COME IN"...AS I WAS UNPACKING THE BOOT.....

WHEN I CAME IN THE KITCHEN HE STARTED OPENING IT...I SAID "WHAT DID I SAY ABOUT OPENING THAT?"

HE SAID...."WELL YOU ARE IN NOW".....

NOW APART FROM THE SHEER LITERALNESS OF THIS...THERE'S ALSO THE POINT OF HOW MUCH 'INFERRED MEANING'... WE USE...AND WHAT WE SAY IS not WHAT WE MEAN....TO ME I MEANT "DON'T GET IT OUT TILL I HELP YOU" ETC....SO WHY DIDN'T I SAY THAT????

fREQUENTLY WHEN ALES TAKES A LITERAL ATTITUDE...I REALISE HOW 'WRONG' MY ORIGINAL PHRASE WAS!!!
HE IS JUST OVER PRECISE!!!

Eulalia · 07/04/2005 20:32

Thanks bambi.

Yes MrsF I can see that my ds is going to be like this although he's not quite at that stage yet. It is quite exhausting though having to watch yourself to make sure you say the right thing. That and all the interpretation of odd phrases because he doesn't have a full vocabulary and yet seems to want to ask questions all the time.

The discipline thing is going well although I behaved badly the other day and ds told me to get out of the room!

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