Hi there everyone, I posted a thread a while back about developmental delay and epilim, and everyone was so helpful but I am still feeling anxious about DS1's developmental delay and wondered if anyone has any experience of this or advice re books I could read? I would like to know more about why it happens neurologically and I guess deep down what I would really like is some reassurance re the future too. I have no idea what this means for DS1/us in years to come. What's the percentages of him catching up/not catching up? Although he has come along really well developmentally in the last 6 months since he came off the epilim (he has remained fit free, and his comprehension seems to have shot ahead of his motor skills), he is still not walking or talking at 2.7 months. Does anyone have any experience of developmental delay without any other associated diagnosis?
His history by the way is that he developed absence seizures at (we think) 3 or 4 months old and became very floppy, had a febrile convlusion and was put on epilim at 9 months and stayed on it for a year during which time he made virtualy no progress in his development. He is now very active, crawling and into all his toys but still has poor fine motor skills and as I say is not walking or talking, though he is very communicative in other ways, and has good relational skills.
Sorry I haven't posted much by the way - I feel guilty that I am not able to reassure others - I read a lot of other peoples threads but don't feel qualifed to comment most of the time as everyone seems so much more experienced re special needs than me, and I'm scrabbling in the dark with no diagnosis/prognosis or anything.