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Here are some suggested organisations that offer expert advice on special needs.

whoa! professionals are people too!

80 replies

mogwai · 01/03/2005 23:12

I've recently subscribed to this website and so far I think it's great. But...bear with me, this post will probably be unpopular - I really need to let off some steam about some of the things I've read here!

I'm dismayed to read how often professionals and their opinions are "dissed" on these boards. I have no doubt that some of you might have had negative experiences, I mean, we are only human and we all have bad days, and yes, some professionals are patronising. But the vast majority of us are trying to do a good job with limited resources.

As an SLT I feel that the parents know their child better than I do. The parent's opinion is invaluable to me in my assessment and I am always ready to accept that what a parent is saying is true, even when it might contradict what I have observed myself. In general, I think all my colleagues feel the same way.

But, being an SLT can be very challenging when trying to work with some parents. I find one of my greatest problems is that communication skills are so difficult to explain in a way that makes sense to everyone. People generally think they know about speech and language, but the reality is often much more complicated than they realise (just as a physio's job is more complicated than I realise). It took me four years to train and many more years to gain my experience, and my decisions and opinions are based on that knowledge and experience.

Some parents, consumed with worry and anxiety (understandably) come to professionals with an attitude of "I want you to fix this and I want you to fix it now". I have read many responses to threads on these boards advising other members to demand immediate therapy (usually from the same people who advocate trying to push your child up the waiting list through lying and complaining without thought for the people who have been waiting longer and deserve to be seen first). My knowledge and experience tells me that "immediate therapy" is not usually the answer. Parents usually expect the therapist to work with their child individually, even when this isn't the best way for us to help. Good therapeutic intervention is based on the right sort of help at the right time, and I get very tired of hearing parents demand "immediate individual therapy" when, honestly, they are not qualified to make the decision that this is what their child needs. I cannot understand why parents take their children to see an SLT if they are not prepared to accept the SLT's clinical opinion of what sort of help their child needs. When parents disagree with your diagnosis, they may have reason to do so, but I don't understand how a parent can disagree with the SLT's opinion of the best sort of treatment to offer, particularly when they don't know what the range of treatments are or the rationale behind them might be.

Finally, I hear a lot of complaints about therapists from any profession who leave their post or go on maternity leave. I am about to take six months maternity leave and the trust I work for cannot find a suitably qualified therapist to cover for me. This really isn't my problem, but it does mean that the weeks leading up to the birth of my child will be extra stressful as anxious parents are already expecting me to be working at double capacity to ensure their child gets as much out of me before I go on leave. I feel like a sponge being wrung dry of every drop of energy. Can you believe I received a direct "complaint" from one parent, via her paediatrician, because my going on maternity leave is "inconvenient" for her and "detrimental" to her son's therapy.

I entered this profession because I wanted to help children with special needs. I do this to the best of my ability, lord knows, I don't do it for the pay. Professionals have every right to change jobs (believe it or not I know many professionals who have changed jobs to get away from particular parents who were making their lives hell) and we have every right to take maternity leave, as like the parents we work with, we also want the chance to be parents ourselves.

I would like to think that the people we work with could see us in this light rather than viewing us as individuals placed on this earth with the sole purpose of helping their child, never allowed to change jobs or have our own children. To be honest, these opinions make me wonder why I will be putting my own baby into a day nursery so that I can go and help other people's children come next January. Perhaps I should stay home for good!!

Ok rant over. I feel better now. My honest advice to all those of you working with SLTs or other professionals is that if you are reasonable and nice, you'll get it back in bucketloads. It's not always easy to be reasonable and nice when you feel worried, but please, think for a minute about the people who have been waiting even longer than you and about who that therapist might be when they switch off the lights and go home in the evening. You can foster a much more productive relationship and get the very best care for your child if you are prepared to meet us halfway and with an open mind.

OP posts:
JaysMum · 02/03/2005 11:38

JimJams you could make a fortune selling those mugs on line....I'd buy three of you straight away!!!!

Jimjams · 02/03/2005 12:38

There's a group in the States called "mother's from hell" and I have a feeling they've copyrighted the phrase (can you do that??? Maybe just thier logo- not sure). I'm meant to be setting up a website (not just SN) and had wondered about doing the mugs- unfortunatelty it's quite pricey to get them made so maybe not worth doing, but I might look into it. Any local print shop will make you up one though.

mogwai · 02/03/2005 12:49

hmm this is a very interseting discussion. So glad to be the one who started it up!

Mizmiz, it must be quite interesting to have a foot in both camps. I wonder is it more or less frustrating for you in that position?

Some of the experiences you all describe are terrifying! I agree there are some piss-poor professionals out there from every discipline.

I'll return to this when I have more time.

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Socci · 02/03/2005 13:01

This reply has been deleted

Message withdrawn

mfh · 02/03/2005 14:06

Jimjams, that's where I took my Mumsnet initials from!
The new website is Mothers from Hell 2
I like their new slogan: "MFH2 offers more support than a 44DD underwire and more empowerment than a tanker full of caffeine, chocolate & Viagra!"
I dream of being a mother from hell - I'm too timid

Jimjams · 02/03/2005 14:14

Wonder if they deliver overseas- they have a great shop!

rivers · 02/03/2005 21:01

Hi Mogwai,
I recently posted about getting private speech therapy for my DD and thank you for your reply on my post. The only reason I am even considering this (and I really can't afford it} is because I really feel my DD has never been seen by a decent speech therapist. We have suffered from constantly changing therapists, sessions that last a maximum of 15 minutes and just acomplete lack of progress in providing a decent communication method for my DD. I think what really angers me is why I should accept this level of service when at the end of the day it results in my child suffering. I actually think your post is quite patronising and I would like to meet these parents you describe who don't want you to have your own life! As far as I'm concerned my speech therapist can do whatever she likes in her personal life as long as she provides a good level of service to my DD. Please understand this post is about my own experience of speech therapists and I'm sure there are decent ones out there. Finally, I am not a difficult parent and I have tried very much to 'meet the therapists halfway and with an open mind' but so far this has not helped so I would be grateful for any suggestions on what I should do now?

MandM · 03/03/2005 10:44

Mogwai - I've only just caught this thread and have read it through from start to finish. I mostly only get chance to MN when I'm in the office so I tend to be a bit behind the times! I can't believe how much it has affected me reading all of these posts, it has actually made me cry and not that many things do that anymore due to the elephant-hide type skin I felt it necessary to develop over the last 4 years.
I'm probably going to go over old ground here, so I'll keep it as short as possible but just felt the need to add my views as I have also been quite vocal about my unhappiness at many of the 'professionals' we have seen, but to be fair, I have been equally vocal about the wonderful SLT dd now sees and who I will fight to the death to keep when she goes to school in September.
What is obvious and so upsetting, is the amount of frustration in both camps. I don't need to say anymore than has already been said about the frustration and the causes of it from an SN mum's point of view. But, what I would say is that your frustration as a professional is admirable. The fact that you are worrying about the way your colleagues have been portrayed on this board, that comments re your mat leave have been hurtful to you etc. shows that you obviously care about the job that you do and the level of service that you offer, and it is that 'human touch' rather than the robot like approach that many of have experienced that needs to be fostered and spread throught the world of paedatric medicine/therapy rather than being forced out. Please don't give up, you are the kind of person that we are all craving to have on our side. Enjoy every second of your maternity leave, they really are some of the most precious months of your life and you should not feel at all guilty about wanting the best for yourself and your family - after all, is that not what this whole debate is about and we understand that more than most. In the meantime, please continue to post on the SN boards because the opinions and advice of conscientious professionals are what a lot of us need when we are searching for answers. When you return to work, which I hope you will, your new experiences will make you even more well equipped to offer a service that will be valued and cherished by so many. I personally work as a 'professional' for a government agency (although nothing to do with children, SN or medicine - coping with that at home is enough for me!) and offer a 'service' to people that directly affects their quality of life. I have been through the whole cycle of 'why do I do this-who appreciates it-is their any point-I'd rather stack shelves in Asda than put up with this', but at the end of the day I have realised that a) I've got a mortgage to pay b) somebody has to do this & c) I am good at what I do, I work hard to make a difference and I don't like to give up. I sincerely hope you come to realise the same.

Blu · 03/03/2005 12:23

Mogwai - we have experienced some wonderful 'professionals' who have made practical and emotional differences in the way we support our child (mobility disability), and some bad ones. It is true that on MN I taslk about the bad ones because I am here asking advice or 'what would you do' or 'any ideas' in the face of inadequate support. So, MN is almost certainly biased that way.

Congratulations on your pregnancy - but wait til you have your baby and are moaning about appts, HV's, neglligence in the post-natal wards....( of course I do hope that everything goes as smoothly as it should for you!).

The thing is, when a professional f**s up, it wrecks your whole life, for a while, or for longer. I know that is an unfair pressure on healthcare professionals - I don't usually have that much responsibility in my job - but when an orthotist leaves us with NO shoes for my 3.5 year-old who cannot walk without them, everyone within a 12 mile radius is likely to hear abvout it.

Welcome to MN - your view as a Mum and as a professional will be v much appreciated. (lots of professionals do post on this site).

mogwai · 05/03/2005 21:30

Thanks for the last two messages. Heartwarming to say the least.

The third person back (sorry can't see the page now so can't remember your name) seemed to be saying she didn't believe there were parents who didn't want me to have a life of my own, because she personally doesn't care what her SLT does outside work. Firstly, that's your own experience. I've never met you and as far as I can tell you aren't one of my patients, I've no doubt from what you say that this is your attitude to your SLT, but that doesn't mean I haven't dealt with parents who are very very demanding, just that you are not one of them.
Parents do become selfish about their own children, that's human nature, but some of the parents I've worked with have been beyond the pale. It's typical to find that parents expect you will work with their child ad infinitum until the difficulty is resolved. The reality is that we see children for "blocks" of therapy, partly so that they can consolidate the skills they have acquired and partly so they can have a rest from us, but also because we need to free up the appointment slot to see another child. So many parents fail to recognise this. The irony is that, in order for their child to get the appointment in the first place, another child had to have a break from therapy and free up that slot.

Some parents become absolutely renowned in the local SLT department (one threatened legal action because I would not buy her a laminator to help her make resources for a treatment she was funding privately and which I hadn't recommended. She ignored all my advice but would telephone me at 4.30 on a Friday evening demanding I make her XY and Z resource by Monday morning).

Another complained about a report I had written because she didn't agree with my diagnosis or my concern about her child going into mainstream school. This led to my boss sending an apology on my behalf, which I was really fed up about. The rest of the department was then told to be very careful what to write in reports and never to offer much of an opinion. Incidentally my original diagnosis was later confirmed, the mother came to accept it and she is now fighting for the LEA to recognise her child's problem and provide an appropriate SEN place in school because he's drowning in mainstream. I am convinced he would have been in SEN provision in the first place if other professionals had voiced their concern and I hadn't seemed like I was alone in my worries.

I have since left that department and taken up a post elsewhere. The said department has been trying to recruit to my post for over eighteen months without success and many children with a very specific problem have been left with no SLT. Ironically the lady who made that specific complaint is not one of the people left without SLT.

So yes, difficult parents are very much in existence and they make professionals lives very difficult. I'm not talking about parents who have the usual amount of concern, I'm talking really really difficult. Unfortunately they are also the parents who try to pull out all the stops, queue jumping, hassling, phoning every day, making complaints, writing letters, turning up at clinic demanding to see you immediately, demanding immediate therapy, complaining if you take annual leave, complaining if you are sick, complaining about you having maternity leave. Yadda yadda yadda. The problem with seeing posts on these boards advocating others give their SLT the same amount of hassle is that, as a professional, it just reminds you of all the tactics in the book and you've seen them all before.

The sad thing is, sometimes their children really need your help, but you just dread their appointments, you know nothing you have to offer will be good enough, so in turn, you can't summon up the enthusiasm to do your very best job. Before I was an SLT I was a nurse. We used to get very difficult relatives who set up armed guard around their loved one and watched everything we did with such suspicion. Actually our patients were cared for very well, we were a good team and took pride in delivering really loving care from the point of view of "that could be my relative in that bed". As a result, we felt aggreived when we weren't trusted to do the best we could. Invariably those patients would be put in a side room where their relatives could not watch us like a hawk (so stressful). It meant that the patient got much less nursing attention, because we used to avoid going into their room. So whereas other patients would get a natter or maybe you'd give them a foot massage if they were feeling shitty, the poor patient with the "good" relatives would miss out and instead, they'd get the basic care they required with none of the trimmings. Exactly the same principle applies in my own job. It's human nature to avoid the parts of your job that you don't like, so it's counterproductive to become a nuisance to the professionals you work with.

The parents who get the most out of me are not the ones who bring me christmas presents, they're the ones who meet me halfway, as I said, and who can be pleased for me on a personal level about my pregnancy, whilst enquiring about what sort of cover there might be and where they can turn for help during the months I'm away. To be honest, these are the parents I'm likely to phone up from home during these months, just to check how their children are progressing and see if I can offer some short term advice. There's so much to be said for trying to be reasonable.

I do accept that sometimes you might lose your rag when you are not getting any service at all and feel you need to go private. I can't say I've ever worked anywhere where service provision was that dire but I know there are problems with recruitment in some areas. Unfortunately the problems with retention of staff are at least as bad again, pretty much everywhere, but it's no surprise really. The reality of working within the limits of a publicly funded healthcare system rarely match up to the expectations we have at university, where we are fed the illusion of having few patients and endless time. It's also quite hard to swallow when I read posts saying that their private SLT is much better than their NHS SLT. It's difficult not to react to that. Of course you are getting a better service, because you are paying for it and because the private therapist can limit the number of children she has on her books. She can also pick and choose who to take. I have to take every referral that comes my way. I have no problem with any SLT who wants to give up her NHS job and work privately or any parent who wants to pay privately, but I cannot agree that this therapist is somehow better at their job. I could leave the NHS tomorrow and set up a lucrative private practice as I am one of only a few specialising in my chosen field, but I stick with the NHS because I believe that healthcare should be based on clinical need rather than ability to pay. If we all did the same, children with real need would miss out entirely. What we offer may not be what we would like to offer, but when it works, I think it works well. I do appreciate that mums need to let off steam, and we are trained to expect that, but joining mumsnet has taught me that there are parents out there who view us as some sort of beligerent species, not doing the job to the best of our ability.

I'm going to stand up for my profession, on the whole.

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Jimjams · 05/03/2005 22:06

Blocks of therapy????

Mogwai - my son is 5- non verbal autistic. It was agreed when he had just turned 3 that we would use PECS and we would be taught PECS to allow him to communicate. We were then assigned a SALT. She went off on maternity leave befoiore we saw her. About 6 months later we saw our SALT. Lovely girl, straight out of college, had been assigned one of the most complex children in the city (ie ds1). Not PECS trained. She admitted she didn't know what she was doing (but tried her best). Saw ds1 about 3 or 4 times (and did refer to superiors- but still was not PECS trained). At 4 and a half we were assigned a SALT who specialised in autsim, who was PECS trained. We requested a block of 6 sessions so that ds1 could be assessed (4 and a half- non verbal still not assessed)(. She agreed that our request was entirely reasonable and was the minimum she would be requesting in our position but said she could not provide it.

We got SALT written into parts 2 and 3 of Ds1's statement so that someone (ie the LEA) then became responsible for providing it. His SALT tried to visit him 4 times a term but didn't manage it- she then went on maternity leave and no replacement was provided (there wasn't one- never mind that his statement is a legal document),

At some stage during this we decided that if ds1 was to have any chance we needed to take matters into our own hands, We employted a wonderful SALT for a year who worked closely with his NHS therapist (they met at least monthly). Because she saw him weekly she got to know him and his NHS SALT used her knowledge to help her draw up communication programmes (how could she do anything else- she didn';t know him as being severly autistic he's not easy to assess). All 3 of us worked in partnership. Last June DH and I went on the 2 day PECS workshop allowing us to really get to grips with it at home and we will follow that up in May with an extended workshop on using PECS at an advanced level. Because we had a private therapist on board the LEA paid for her to make some visits to school, whilst the NHS therapist was on maternity leave- they had no choice.

Now I'm not sure where I could possibly have behaved appalingly in this. Ds1's NHS therapist assessed him as being the most needy child on her books (and remember she;s the autism specialist- she specilaises in complex children) and he got next to no speech therapy.

You can try and "stand up for your profession". His NHS therapist doesn't anymore. She will tell parents privately that the system stinks and she begs people to complain- and gives them the address to write to. if you read the messages I think you'll find that most people on here complain about the system- not individual therapists. And when we do complain about therapists they deserve it. You can't have a severely diabled child and make enemies of everyone. I work hard at building relationships with the people who work with ds1. In 99% of cases that happens- we become friends. It didn't in the case of the original therapist who assessed him (not the young girl- she came afterwards) but that's because she was unpleasant and crap.

Now as it happens my ds1 is now in a wonderful special school and I no longer have to fight battles with the NHS to get him SALT. But what on earth would you suggest to people in my situation? Knowledge of PECS etc makes a hge difference toour daily life with him, but not everyone can afford a £100 quid PECS course, and they're not being taught it by the SALTS.

heartinthecountry · 05/03/2005 22:14

Mogwai - I have refrained from saying anything up until now but feel I have to after this last post.

I have no doubt that you come across some families who are very difficult. I don't know you or them so cannot really comment. Save to say, that there is probably going to be a reason why and it is probably at the end of the day to do with wanting the best for their child. Maybe not, some people do just seem to like to pick a fight. But on the whole I would say most would not put themselves through a battle unless they felt there was a bloody good reason.

But in any case I think it is unfair to say 'joining mumsnet has taught me that there are parents out there who view us as some sort of beligerent species' as I don't think you can judge any of the mums on here when you don't know their situation. The very sad reality is that a lot of us do come across professionals who are less than helpful and some that are useless, and some that are downright obstructive. I think we have every right to come here, our place to sound off, and talk about it. That doesn't mean that we are automatically judging or damning all professionals. Just sharing our experiences about those particular ones.

I also have no doubt that those who have said they have a private SALT that is better than their NHS one is/was mean exactly that. As in any profession, some people are better at it than others. It is not a general comment about NHS SALTs - just their own experience. And yes, maybe that is partly down to the fact they are paying privately and most would recognise that. But if it is a better service it is a better service so why shouldn't they say so? And you yourself recognise that there are limitations to the NHS service.

You know, I am going to go out on a limb here. I actually find your attitude quite saddening. I am sure you are very good at your job. I am sure you help a lot of children and families. But I also sense a real bitterness that isn't doing anyone any good.

I think all anyone has tried to do on this thread is try and show you what it is like from our point of view. I have a concern that maybe still you just don't 'get it'.

You know, when any of us comes across a good professional, it doesn't just mean we get a good service, it actually changes our lives. Believe me,when that happens, we do appreciate it.

mogwai · 05/03/2005 22:15

great stuff jimjams! Looks like you found a very workable 3-way partnership.

I don't work with autistic children, it's not my specialist area, so yes, the children I work with are often best suited to receiving therapy in blocks, but it wasn't always the case when I worked with autistic children in the past.

I agree the system stinks, completely. But the profession smells lovely! System and profession two very different things.

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beccaboo · 05/03/2005 22:20

Mogwai, part of the problem is that we're not professionals. We're worried parents, sometimes at the end of our tether, with fxxx all support, counselling or anything else to help us. But that's not your fault.

I try really hard to leave my own feelings at the door when we see the SALT, because I know it's not going to help and because I'm there to get help for ds, not me. I'm going to go private not because I think our SLT is bad at her job - in fact I'd pay her privately if she would take on the extra work - but because I want ds to have more than 12 half hour sessions a year. Again, not your fault.

I appreciate that it must be frustrating for you to be so short of time, resources and moral support. But the thing that makes me feel a little uncomfortable about your post is that it confirms what I already suspected. If you take what's offered, act grateful and keep your mouth shut then you can be mrs popular parent - and as you say, these are the families you will keep in touch with. If you dare to stick your head above the parapet, ask for a little more, question what's going on, then "it's counterproductive to become a nuisance to the professionals you work with."

Where is the line between 'meeting you half way' and making yourself a pain in the a**?

mogwai · 05/03/2005 22:26

I'd say that threatening to sue over non-provision of a laminator was taking things too far!

It's not about never questioning it, I've agreed with parents as long as I can remember, the crucial thing is not to crucify the therapist over what she can't provide. I think you should question it very loudly to the right people, it would be a huge help to everyone. As professionals, we are supposed to accept crap levels of provision, we can't complain, but parents can make a nuisance of themselves to the authorities to good effect.

I'm all for being a nuisance in that respect, I mean, if you are going to put effort in, you don't want to feel it's a waste of time. I guess one of the problems is not getting to find out who the other local parents are, probably feeling the same way as you, unity is strength and all that. It's easier to find the other parents if your child attends an SEN school/CDC, not so easy if you go to a clinic.

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Jimjams · 05/03/2005 22:33

I agree with a HITC post. I'm worried that you don't get it. It wss not a great 3 way partnership- it was just desperate parents trying to do something/anything to help their child, an excellent private SALT with a huge amount of autism experience and an NHS therapist who was willing to work with her.

The NHS SALT and the private SALT went into school together one day. DS1 clocked his private SALT, gave her a huge smile and climbed onto her lap to give her a cuddle. The NHS therapist was stunned- I think it made her see ds1 in a totally different way- she hadn't realised that he was capable of that (judging by the way she reported it to me). The sad thing is that ds1 is very affectionate when he knows someone- that behaviour isn't unsual around familiar adults- she just hadn't ever been given the opportunity to get to know him. She was able to draw up useful progammes becuase she was happy and willing to work with his private SALT- but his private SALT told me that her level of cooperation and working together was very unusual (we were lucky wiith her).

She's now returned after her maternity leave and is being expected to do the same job in 3 days rather than 5. how can she?

I complained to all and sundry when she was not replaced and was told by everyone "there aren't any SALTS" Full stop. It appeared that I was meant to accept that my son wasn't worth anything, wasn';t worth trying with, was worth writing off. He was well and truly dumped (not by the individual SALT, but by the system).

Are we as parents meant to be grateful for the scraps we're given? All I want for my son is for him to reach his full potential. That would never happen if I left it up to the authorities. The only person he has fighting for him is me. I think this is the bit you don't really seem to get.

Jimjams · 05/03/2005 22:36

To good effect????? Absolute rubbish. I was told by my MP tough basically. The local councillors did get in touch with the press (without asking me first) but then said that it was lack of resources (oh well that's OK then lets just dump ds1 on the scrap heap shall we?) and the head of SALT gave my address to the mother of an aspie child (without my permission).

Jimjams · 05/03/2005 22:42

I know plently of mothers who are in the same position. Initially I complained on behalf of them (as I wrote on behalf of a local SEN lobbying group)., One MPOP refused to deal with me 9not his constituent- despite the fact that I was writing on behalf of his constituents).

In the end I dumped that and referred to ds1's statement and got the LEA to pay his private SALT to go on. I tried to lobby on behalf of the local parents and no-one in the authorities was remotely interested.

And of course having dealt with all this political crap I still had to deal with a severely autistic child (and his sibling and being pregnant). Andall because I thought my nonverbal child might warrant some speech therapy.

And today I went on a march to protest agains the closure of a special school for severely diabled children with CP. Apparently they should be going to mainstream school. They're tube fed ffs. Some of them require resiuscitation on a semi reguilar basis. Developmentally some are behind my 8 week old. mainstream school? Sure I'll march and I'll support them, and those people who will be losing respite when that school closes, but those parents are stuffed as no-one gives a damm. Welcome to the world of special needs.

mogwai · 05/03/2005 22:45

of course the politicians don't care, they have "higher profile" vote-winning causes (see Mrs Dixon's shoulder operation in this week's press - I'd say your child was far more important - controversial but he has his whole life ahead of him).

It works when it reaches the chief executive of the NHS trust, in some cases, not all, but some. It also sometimes works when a trust refuses to provide a service to a whole group of children on the basis of there being no therapist with that expertise in the district. A sort of "we don't know how to treat this and we won't dabble" scenario. It's hard going in the short term, and very frustrating for the parents, but education then come under pressure to write it and provide it as part of the statement, then they might fund a post. That was what happened in my case, we had no service until the education department put the money up because they had come under so much pressure and the NHS repeatedly said they had no extra money.

I do understand that you are the only one fighting for your child, I just don't know what I can say in response that changes anything or that doesn't invite critisism of the system I work for, which I'm admitting is justified. And As I'm also off duty, though very interested in the subject, I'm now off for a kip and some gentle patting of my tummy!

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beccaboo · 05/03/2005 22:47

Fair point about the laminator......but that's just it, none of us here are talking about anything as ridiculous/pedantic as that. We're talking about getting the bare minimum that we need.

My NHS SALT told me that if we went private we would no longer be able to see her. So guess what? I'm not going to tell her. I don't have a confrontational relationship with her in any way, she probably has no idea how frustrated we are - I keep it hidden because frankly I am scared of the consequences. I don't want her to dread our visits or avoid my phone calls. And just to repeat - she is good at her job, she has an impossible workload and she has been really nice.

mogwai · 05/03/2005 22:48

Jimjams I'm with you. The closure of special schools is a f*** outrage and it's criminal that you have to fight it. You have many other pressures to contend with, you should not have to fight this cause.

I'm convinced things will turn around but I wonder how they will afford to rebuild all the special schools in 10 years time. Mainstreaming is a disgrace in many cases and you are all being fobbed off. It breaks my heart.

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mogwai · 05/03/2005 22:49

Damn...said I was going to bed but closure of special schools makes my blood boil and the reasons behind it all are too much to bear..

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Jimjams · 05/03/2005 22:52

Well I'm out of the system now as ds1 is in an SLD school and his needs are being met at last. Great for the family as well- much less stress.

I was just trying to demostrate the kinds of stresses that families of children with SN can be under. Would I ask a SALT to pay for a laminator? No of course not. Do I think that I should be paying for widgit and spending my spare time (ha ha) making up symbols to send into school (as I did for 4 terms) well no to be honest I don't think I should. I don't suppose I'll have to do anything remotely equivalent for ds2. I'm not currently close enough to the edge to lose it over that laminators although I can understand how people could.

beccaboo · 05/03/2005 22:55

mogwai, from your point of view what are the reasons behind it?

Christie · 05/03/2005 22:56

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Message withdrawn at poster's request.