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Original poster

MMR for children with SN - would you?

40 replies

Merlot · 04/02/2005 09:34

Branching off slightly from the current thread about MMR. Ds2 (as many of you SN peeps know) has global delay with no dx (but he has some autistic traits too). Although ds1 had the MMR without any ill effects - I have decided that I dont want ds2 to have it (scared of making the current situation worse iykwim).

DH went loopy last night - said that I was being irresponsible. I mentioned the oracle (Mumsnet!) and said that some of you ladies felt that it had contributed to your kids Autism and he immediately went quiet (he thinks Mumsnet is the best thing since slice bread since Tamum really helped us out!).

DH does think that we should consider the single jabs, as he is worried about Measles (which of course could be on the increase the more we dont vaccinate and all that...) I, personally, dont know what to think now.

How do the rest of you feel about it? This is probably an old chesnut, but would appreciate the particular experience/wisdom of you lovely lot from this board. Thankyou

OP posts:
chonky · 04/02/2005 18:06

That's great news Caroline5

chonky · 04/02/2005 18:06

That's great news Caroline5

Caroline5 · 04/02/2005 18:10

Hi chonky, how are you and little dd?

milge · 04/02/2005 18:11

Great news, seeing the progress from commando crawling, to crawling properly is wonderful. Well done

charlie95 · 04/02/2005 21:03

welcome mandm - i took my ds to special playgroup last 3 yrs and and there was a little boy with williams syndrome. always think of their family as its quite an unsual syndrome isnt it ? dont see them now. anyway, hi to you.

anway merlot, again i think you should go with your own instinct. we read and listened to everything about mmr/ausitm that was going on at the time and certain member of family thought we shouldnt get ds done and others left it to our joint decision. also his neurologist recommended he has everything as normal. as we thought about it we decided ds should have it. to us the risk of becoming severely ill from getting measles without jab was far worse than having a so called autistic reaction from the jab iyswim.(no offence to anyone). if the worst from that were to happen we would rather have ended up with an autistic child with some quality of life, than having no child at all. no offence anyone.

its your decision and everyone around you should respect that.

heartinthecountry · 04/02/2005 21:16

Hey Caroline5 - thought you had left us! Good to see you. Glad to hear your dd is doing well .

heartinthecountry · 04/02/2005 21:17

Oh and welcome to MandM .

onlyjoking9329 · 04/02/2005 21:47

welcome MandM, my daughters go to a special need school and theres a little girl just started who has williams, the pead did query williams for my twin girls but ruled it out as they didnt have the williams mouth, dunno what that is exactly thou.

Original poster
Merlot · 04/02/2005 22:27

Nice to hear that your dd is making good progress Caroline and thanks again for your comments. Will print this whole thread off and discuss with dh when we get a moment to ourselves

Charlie95, thanks for your view too - its lovely to have access to everyone's thoughts.

OP posts:
ChicPea · 04/02/2005 22:36

A quick post about the mmr - there is no guarantee that by giving this that the child will be immune to the three illnesses. That's why a booster is offered at 3-4 years of age to make sure if it didn't work the first time, hopefully it will work the second time.

Socci · 05/02/2005 10:35

This reply has been deleted

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Original poster
Merlot · 05/02/2005 10:49

Thanks Socci and Chickpea

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Original poster
Merlot · 05/02/2005 10:49

oops chicpea

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MandM · 08/02/2005 10:11

Haven't been able to log on since Thursday and was just catching up with some of the postings. I noticed that Charlie95 and OnlyJoking had both asked a few questions about Williams Syndrome and just thought that you might like to know a little bit more about it as it is quite rare and most people don't seem to have heard of it - I certainly hadn't until 3 years ago!!!!

Williams is a genetic disorder that only occurs in about one in every 20,000 births and can occur without any family history of the disorder, although people with Williams Syndrome have a 50%+ chance of passing it on if they have children of their own. There is also no link between siblings, so if we were to have another baby (dh says 'if', I say 'when'!)it would be at no more risk of having Williams than any other baby.

The actual cause of Williams is a missing elastin gene from Chromosome #7 - there should be two and babies born with Williams Syndrome only have one. This is detected via what is known as the FISH test.

As with some other genetic disorders, people with Williams Syndrome inherit certain distinctive facial characteristics - gorgeous ones in my dd's case of course!

The syndrome also brings with it charcateristic behaviours and developmental delays in one/several/all areas - in other words as per everyone else children with Williams are complete individuals each with their own particular talents, special qualities and particular needs.

I've (hopefully) included a link to some further information at the bottom of this posting that you can click on to have a look at what I mean and find out more.

Apologies if this is long winded, just thought it would be useful/interesting to those of you that didn't know much about this disorder.

Also, are there any other Mumsnetters around with a child who has Williams Syndrome. If so, I would be really interested to hear from you.

click here

Original poster
Merlot · 08/02/2005 21:46

MandM - hope I've not been too presumptuous but I've copied this post to a new thread in the hope that even more people will see it

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