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Raising concerns at 27 month review - asd in girls

8 replies

Newtorhis · 08/08/2022 09:38

Hi, my little girl has just turned 2 and will be due her 27 month review soon. I have noticed some behaviours in her that I think are slightly unusual and could point to some sensory issues or potentially asd, but also not sure if just typical toddler behaviour.

I thought the 27 month review would be a good time to raise my concerns with HV but after reading what the review entails I'm not sure the things I worry about will be identified because she has a wide vocabulary and can put short sentences together, can name lots of things, plays pretend, can follow instructions and has good motor skills, all of which I understand are the main areas checked at this review. However the things I worry about fall outside of these areas...

  • rocks forward and back and shakes her legs when in her high chair / sitting on chairs. She has done this as long as I can remember
  • although she has her own vocabulary, she also does a lot of repeating - often, if you ask her a question she will repeat it back almost word for word instead of answering. She also saves up phrases we've said in other scenarios and applies them in different scenarios instead of coming up with her own phrases. But perhaps just her way of just expanding her vocabulary?
  • She gets very upset very quickly if you try to help her when she doesn't want help e.g. getting ready she will start crying if you try to guide her putting her shoes on. Or if you touch something she doesn't want you to she also starts crying (real tears and wailing)
  • Pinching / biting - she has a reputation for biting other children and also pinches me and my husband on a daily basis. Her face shakes and she has a very intense look on her face when she pinches. Often the pinching seems completely unprovoked, (e.g we'll just be reading a book together) although I think it could be when you get too close in her personal space.
  • she makes lots of random noises / occasionally screeching and makes up her own words which she finds hilarious
  • Loves jumping! Insists on jumping down every step we encounter and bounces on bed daily. She also holds my hands and jumps on the spot.
  • Voice is sometimes shouty and montone. When she is repeating sentences back she goes quite sing songy
  • Knows her name but often difficult to get her attention and will have to repeat her name 10x before she'll look at me.

-Enjoys running away, especially in carparks / on roads
-Inappropriate play? Takes all the lids off all the pens when I get them out for colouring and often doesn't actually do any colouring... Just taking the lids off
  • currently very shy around strangers and turns into my legs to avoid engaging with them. She has never suffered with separation anxiety though and is very adaptable to staying away from us, and we had no tears when she started nursery


Aside from the aggression and meltdowns she is a really sunny character and loves to laugh and smile. Her nursery workers always tell us she is very clever (she can sing her face nursery rhymes, count to 20, knows some letters) but recently I've started to notice the things above that are maybe a little unusual...but then again could just be toddler quirks and terrible twos. We have also just welcomed her baby brother so perhaps her behaviour is exaggerated because of the big changes she has experienced recently.

So after all that writing, what I would love avice on is whether you would consider the above to be concerns that you would raise at the review, and if so how to approach this, or am I making something out of nothing? I don't want to go looking for signs that something isnt right, but also want to be proactive in getting us on the right path if she does need support. I have done lots of reading about signs of sensory issues / asd recently but I know things can present quite differently in girls so it's quite confusing. If you have any experience or advice I would be so grateful. Thank you x
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openupmyeagereyes · 08/08/2022 09:45

You are right, the ages and stages questionnaires (ASQ), if they still use those, are not that complex but you should definitely flag your concerns with your hv. ASQ also have a social and emotional questionnaire that is much more detailed, you can find all of these online to look at yourself.

I’m not saying she’s autistic of course, but it’s good to raise concerns if you have them.

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Newtorhis · 08/08/2022 10:40

That's really helpful. Thank you @openupmyeagereyes . Really appreciate your reply x

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OrDis · 18/01/2023 18:44

@Newtorhis just wondering how your DD is doing now and how the 27 month check went? My DD is 27mo and I feel I could have written most of your post!

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Newtorhis · 22/01/2023 23:06

Hey @OrDis ! By the time we had the 27 month review a lot of the behaviours I mentioned above had improved or changed to some degree but one thing that has remained present, and worries me, is the rocking / shaking in chairs. I showed the HV videos of the behavior and she said it wasn't anything to worry about.and lots of toddlers have funny little habits like that, to ignore it and she will grow out of it. For me though it doesn't seem normal at all. I am going to speak to her Nursery to get their view and also book an appointment with the doctor. She is presenting some other behaviours at the mo that are new and so I'm watching e.g. flapping hands when excited, standing on tiptoes lots. I go through different phases of thinking there's absolutely nothing to investigate... Then other times I think there's a niggly feeling something is not quite right. Hoping to nursery and doctor can she'd some more light. X

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Worriedmum166 · 23/01/2023 12:55

Hi there newtothis,
Your situation sounds similar to my own, my son is 28months.
He has so many things he can do that are considered traits and a few that make me seriously suspect he is on the spectrum. We have just started the assessment process as a precaution, if he does get a diagnosis at least we can get help. I'm sick with worry though, it's awful. How are you feeling about it all?

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Newtorhis · 23/01/2023 16:06

Feeling anxious is awful so I'm sorry you're feeling like that @Worriedmum166 . I am like you though and although I worry about what a diagnosis would mean for my daughter and our family I would rather get help and get her on the right path if needs be, so starting the assessment process is a brave and brilliant step. Well done! How did you start the process?

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Worriedmum166 · 23/01/2023 16:30

Exactly as much as its hurting me I want what is best for him. It was our HV that got the ball rolling for us. He had a terrible 2 year check up, he wasn't impressed with her and her questions at all, I don't blame her for having concerns that day. However he is better than what she saw. That being said I do have worries so we are going to go ahead with the process. She had him referred to our paediatric autism team and they sent me out a form to fill in which I did and sent back, now it's a waiting game. It's a tough situation to be in, in limbo really isn't it?

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whatissleepagain · 10/03/2024 16:04

Hi @Newtorhis. Your post sounds identical to my little girl who is 28 months old, especially what you say about her speech. How is your little girl getting on with her speech and communication now? Thanks

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