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According to another mum I am very lucky........

38 replies

dustystar · 02/10/2007 13:14

....because my son has a statement and so i can send him to the best school in the area if i want and know he'll get a place

I pointed out to her that he had a statement because he has SN which can make things very difficult for us and for him and that I would prefer ds not to have SN and then not have a hope of getting into the good school She just gave me a skeptical look and walked away. I don't think she was trying to be nasty but sometimes people are just so insensitive that I am left almost speechless

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pagwatch · 08/10/2007 12:44

Peachy - same here.
We get high rate for DLA but not the mobility bit and it would be soooo helpful.
DS is good half the time but can sometimes refuse to walk etc. DH still carries him at times (although makes it worse in the long term)when he is really entrenched. But to be able to park close and encourage him short distances would be sooo .

My best comment was friend who looked at me after several months of stress regression and sadness and said "well at least you have lost so much weight you lucky thing". I know she meant well.

PeachyFleshCrawlingWithBugs · 08/10/2007 12:47

yes I carry ds3 too, not so good as bump starting to get bigger LOL.... actually ds1 carries him as well, piggy back. For about 2 minutes at a go, which is his attention span atm.

pagwatch · 08/10/2007 12:52

Peachy
stop it imediately !
DS2 is 11 this week and I have only just stopped picking him up after Doctor insisted...serious back problems and biceps like a german shot puter.
I carried him when pregnant with DD too - and we both know that is not a good idea.
Seriously !
DS's nursery teacher told me to stop before he was five or the behaviour would become too entrenched. i didn't listen to her ....

Sorry to nag you but I really wish I had listened.
I'm not normally a nag

PeachyFleshCrawlingWithBugs · 08/10/2007 13:06

I know you're right- CM keeps telling me too (am blessed, fost person I called as a Cm when we moved here tunrned out to be an excellent Cm with an ASD child herself! we didn't realise about DS3 at the time, but goodness! what luck!)

chocolateteapot · 08/10/2007 13:38

Yes, you are so lucky Dustystar. It was a complete bed of roses for you whilst your son was being excluded from school and being statemented and trying to deal with your Mum's cancer.

Whatever you do, do not let this woman anywhere near me or I will not be reponsible for what I say !

needmorecoffee · 08/10/2007 13:46

Its astounding that those with ASD kids don't get a blue badge. You see enough adults with 'hidden disabilites' (in fact, some are as hidden as dark matter) sprinting across carparks.
Now while I'm aware there are many hidden disabilites, the blue badge citeria is can't walk/can only walk short distances or walking causes pain.
I do wonder sometimes.
Wish I could lend my badges out to those inneed.

PeachyFleshCrawlingWithBugs · 08/10/2007 14:22

Thanks NMC

Councils have discretion, but apparently the 2 kids with higher rate doesn't copunt with them either >- you'd think there'd be something of an accumulatory factor wouldn't you?

needmorecoffee · 08/10/2007 19:03

I tried when dd was under 2 as I have MS. Pointed out I couldn't carry her cos she doesn't carry like an NT child. At the time I could still walk. But the council, who are all ws, said no.
Luckily for me my MS got a lot worse and I got high rate DLA and dd turned two and was quadraplegic. So we ended up with 2 blue badges.
Then we got rid of the car cos DH had to give up work to care for dd (lack of decent respite) so we couldn't afford it plus dd yells non-stop in cars and I was not using it cos I couldn't bear the noise.
Peachy, if you ever come round I'll show my badge collection

dustystar · 08/10/2007 19:07

Thansk choco Hope you had a good weekend last week.

NMC - that is an absolute classic - good for your ds

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PeachyFleshCrawlingWithBugs · 08/10/2007 19:08

I will come round, promise LOL! Want to make sure DH is of as my driving I am a bit prone to shaky patches atm (normal in pg for me) and can just imagine geting stranded on the blledin Bridge and having them fine me gazillions for stopping LOL!
(the Bridge is a universal hatred in this house, eats all our money.... but hey, thank goodness for the DLA to spend on luxuries eh? )

needmorecoffee · 08/10/2007 19:37

argh, another reason why you need a badge.
I've never driven over the bridge. We go to Cardiff every 6 months to see dd's eye doctor but we go by train (even when we had a car)
Another way we are just bursting with good things and the envy of all. Endless bleedin' hospital appointments and stays and therapists and more appointments. I'm all a swirl with our good luck

PeachyFleshCrawlingWithBugs · 08/10/2007 20:53

Oh I just love the hospital appointments LOL! And don't forget the School review meetings, DLA forms (DS3's is reviewed yearly.... coz like he's going to recover ), ds1 has been discharged from the eye clinic thankfully (his vision was 50% as a baby but is 75% now) and then ds2 has ear clinic appointments too LOL.

And hospital car parking.... now there's a Christmas gift anyone would choose LOL - scan on wednesday, so another chance to sample the aprking pleasures of the royal Gwent!

chipmonkeyPumpkinNorks · 08/10/2007 21:55

nmc, sorry but LOL at "luckily for me, my MS got worse!" Bet that lady at the supermarket would have been !

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