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What do you do to cheer yourself up when you feel down over SN?

32 replies

expatinscotland · 12/07/2007 20:51

DD1 had her first OT assessment today.

It wasn't the worst it could be, but it wasn't good, either.

I'm not surprised. I knew it wouldn't be a case of, 'Why ever was your daughter referred here? She doesn't need OT.'

But I'm still down about it.

I should be used to it. There was always something different - I'm not going to say 'wrong' - from the get-go, and DH's father's side has such a genetic component for dyspraxia and learning disabilities.

I made the mistake of filing away my copy of her DLA form earlier.

Even dumber, I looked at it.

I had to be so negative about my beautiful, golden little girl.

'Part 666 - Getting dressed and undressed: tell us about how your child is a 2-year-old in a 4-year-old's body and can't coordinate her limbs to even find a hole in her clothing, much less understand the concept of buttons'.

'Part 10 to the 3rd power - Communicating with other people: tell us about the stark differences between your delayed child and her sister, who's 2.5 years younger and can already do things your child cannot. Will she ever?'

I'm not doing so well tonight.

OP posts:
ahundredtimes · 12/07/2007 21:14

DS2 used to have no dominant hand, and no dominant FOOT or ear either. Most flexible person.

Has established largely right now though. It is hard work, but it isn't necessarily grim, grim, grim. She is the same dd you had when you went in to the OT, you're just going to understand how to support her more.

Also, have a large drink. This is important.

expatinscotland · 12/07/2007 21:17

I'm having some very poor quality white wine just now .

OP posts:
2spells · 12/07/2007 21:21

expat your dd sounds like a lovely clever girl.
The forms are horrid. as you have to do them about the worse day. very depressing. but remeber what you write on the forms is not your dd. when I fill them in I have to say stuff that makes dd sound like she can't do anything.(she has cp and is severly disabled) then I look at her and her smile and she gets me over it.

ahundredtimes · 12/07/2007 21:21

I'm on the red.

It's not a miracle cure AT ALL but the neurodevelopmental therapy IS working. His balance is better, his fine and gross motor skills have improved massively.

We've had to do this privately though. I'll email you some stuff if you're interested. Is odd how he's changed, the OT thinks so too.

expatinscotland · 12/07/2007 21:26

I'd really appreciate that info, ahundred! Our claim is in progress - it's only been a couple of weeks since it was submitted - but if we get it we'll definitely be using the monies for whatever we can for her.

I'm kaperkaille AT gmail DOT COM.

OP posts:
ahundredtimes · 12/07/2007 21:28

Okay will send some stuff though. Google it though too, it'll probably tell you everything I'm going to. Is quite weird - all about retained primitive reflexes - but when you do the exercises it MAKES SENSE and tbh has helped ds2 such a lot. I mean he can't do maths or anything still, but hell, the boy can now climb over a gate.

ahundredtimes · 12/07/2007 21:41

Have to go now expat. I'll get some stuff together for you. Have emailed ds2's therapist too, to ask her how we find someone in Scotland!

Not wanting to sound too evangelical about this, just wanting to put it in your boiling pot, iyswim.

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