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Reception auties 2018/19 - thread 2

998 replies

openupmyeagereyes · 14/12/2018 08:05

Thanks to LightTripper for the thread title. This is the continuation of the thread for parents and carers of dc with autism in their reception year at school. Please join us if you can or, if you have dc due to start reception in 2019, feel free to drop by and ask us questions.

Thread 1

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Jeb86 · 18/05/2019 18:01

@danni sounds like the right attitude to take. You’re the expert on your child and it’s good to remember that.

Our ds is doing okay...he had some difficult days at nursery when they tried to implement the now and next board. He did the “now” beautifully but the problem came when the reward had to end. Then he’s started a funny thing with his shoes. But as he’s in nursery and uniform isn’t compulsory I’m just sending him in trainers from now on. His referral to the education support team somehow got missed so they’re only just going in to see nursery in June. Frustrating as they could have helped him in the earlier days when the nursery didn’t have a handle on him. But other than that he just is who he is, I’m so used to just “managing” him all the time I forget that other kids can be so chilled - our second ds is complete opposite, chatting away at 21 months and pretty easy really. BUT nowhere near as kind as ds1.

Also, we’re expecting dc3 in October Shock but really pleased with timings as means I’ll get ds1 first year of school off, which I predict will be challenging enough without also working.

Jeb86 · 19/05/2019 09:53

So the sun is shining and my ds1 is wanting to be inside repetitively “playing” the same thing (he does a roly poly whilst his grandad commentates like the Olympics) but generally he’s so difficult to engage with any kind of play for longer than 5 minutes before he starts asking for the tv or my phone.

So - what gets your kids outside and productive? I don’t mind him being repetitive if he stuck to it for longer than 5 minutes!

danni0509 · 19/05/2019 12:03

Jeb ds is outside much of the time. He just tends to repetitive play outside. (Running up and down the path touching the house wall then up the path touch the fence and back again etc.)

Yesterday we did chalking on the path, got his bubble machine out, he went on the trampoline, played with his football, we coloured some slabs in with chalk on the floor and got his aeroplanes out and he landed them on the paving slabs. Etc we were out there 3.5 hours in total.

X

dimples76 · 19/05/2019 18:26

My DS loves playing with water and also with balls. We have a slide in the garden which he doesn't actually slide down much any more but he loves pouring water down it or throwing a ball up it and watch it roll down (and repeat x100).

Yesterday we went to my niece's party and I had said that we would just watch but when we got there DS really wanted to take part and he did it - an hour long horse riding lesson. I think that we may have found a new rather expensive hobby. He had a grin from ear to ear the whole time.

Today was our 2nd attempt at cricket it was much better than the first but DS's lack of social skills was very much in evidence. One of his classmates asked DS to be his partner and he just said, 'no'. Over the course of the lesson his classmate tried again a couple of times and was holding back the tears. DS has known the other boy for a couple of years and has always seemed v fond of him. How do you handle these situations?

LightTripper · 19/05/2019 22:50

Hi all! I've been AWOL a few days (away for work and then a crazy busy day with the kids on Thursday, plus DD's birthday party on Saturday - went surprisingly well - she did have a couple of wobbles but two children had a full on melt down and neither one was her, so well done her: I do think she is starting to recognise a bit when she needs a break and take herself off or just zone out where she is).

Sorry about the negative report Danni. We had one like that when DD was quite young (everything was a "deficit" and all at ages much younger than she is - but including reading off charts from her pre-school completely wrong and understating what the school had actually said she was doing). It really made me cry and once I'd recovered I did mark it up with bits I disagreed with, and when she was in for her final Dx I did give that to the paediatrician, just to make sure that the factual errors didn't feed into the process. Luckily DD's actual diagnosis report was much more balanced: the kind of thing I wouldn't mind her reading one day (which doubtless she will want to when she's older at some point). I sometimes think these reports are written in a slightly OTT way to make sure DC get the support they need - which is understandable but I wonder if the experts actually think about the impact these things have on our kids if/when they eventually read them (and on us in the mean time, though I suspect we are just meant to get rhino hides)?

In terms of outside stuff, DD loves making collections. She quite often manages to rope other kids into helping her so I see it as broadly social and good (plus she just enjoys it, which is the main thing) - though I'm sure experts would say it's rigid/repetitive. So for a long time it was finding sticks to be wands and make spells, then in a hot bit of summer the sticks became hoses and we were spraying everything. Then collections of sticks to be made into camp fires. Then we moved on to making birds nests. Then for a while it was stick shops (this was actually pretty social and she would go with us coming up with different types of uses and names for different sticks ... believe me I am very creative around sticks now Grin). She now seems to have moved on from sticks and it's all about collecting bee-food (i.e. bits of petals, the middle of daisies with the petals torn off - all collected in something, ideally a hat otherwise bits of dirty rubbish tend to get co-opted). She also had a "cauldron" in the garden that she made "potions" in for a long time (sticks, mud, leaves, petals, etc.) I remember this was a big childhood favourite of mine too, so I quite liked that one. She is also very interested in mini-beasts and likes making "homes" for them (ice cream tub with mud, sticks, leaves, etc.) and then finding some poor woodlouse or ant to live in it.

That sounds tricky with the cricket dimples. DD often ignores her friends and I do step in sometimes to just say "I think DD is just very focused on what she's doing at the moment" - but there's not a lot more you can say is there? I do talk to DD about needing to have give and take in play - do other people's ideas as well as her own, and give them a try (maybe putting her own ideas in to make it more fun) - but in the end if they just are in their own world then they wouldn't even notice in order to be able to think about that so I think they are a bit young for that kind of advice to be useful. Hopefully in due course they will get into it (and honestly lots of the kids are quite horrible to each other and then the next day it seems to have all blown over, so hopefully the other child's upset will be quite short lived). Do you know the parents? I always think it's easier if you do: but when the parents are strangers you never know whether saying something will make things better or worse.

openupmyeagereyes · 20/05/2019 01:47

Gah. Ds awake just after 1 and shortly after fussing about coming downstairs on the iPad so here I am! Our neighbour has been away on holiday and came back last night so this timing is absolutely rubbish as no way to keep him upstairs without lots of noise. I really don’t know what to do when he’s like this as he just will not listen.

If I can’t get him back to sleep I don’t think I can send him to school tomorrow until after he’s napped.

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openupmyeagereyes · 20/05/2019 01:56

Light so glad your dd’s party went well, what a star.

Ds has two coming up. One bh Monday and one a couple of weeks later. They are both in community centres and that sort has not gone down well previously but I feel we have to try otherwise people will just stop asking him if we always refuse. We’ll see how the first one goes and take him home if we have to.

Jeb our ds will often refuse to go in the garden even though he loves being outside. Basically we will often just badger him until he does or if he still resists just give up. He likes bubbles too, I get those large bubble wands from the supermarket. He likes to climb one of the smaller trees in the garden, sit in and play in the dirt, run around etc. Most of the toys and equipment we have in the garden don’t get used much to be honest.

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openupmyeagereyes · 20/05/2019 02:34

dimples great that your ds enjoyed the riding but yes, expensive hobby to take up Grin

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dimples76 · 20/05/2019 07:33

Light so glad that DD's party went well. We have DS's next month and I'm feeling apprehensive. DS doesn't tend to get upset, he's more likely just to do his own thing and ignore the guests - so I'll just have to remember to treat it as though it was someone else's party.

I was worried I said too much to the other child. I said that DS really likes him but that he was feeling wobbly and just wanted to stay close to me. I do know his parents but all the other parents were sitting some distance away on the bank watching the lesson rather than running around the field like me! I agree, a lot of children this age are horrible to each other - hopefully the other boy got over it quickly...

Open I hope that DS went back to sleep quickly

openupmyeagereyes · 20/05/2019 09:59

He was awake for about 2.5 hours. He watched the iPad for nearly an hour then went back up to bed with me. I read him a few stories and the he went to sleep about 40 mins later thank goodness. He was then up at 5:40! Hmm

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HopesDaddy · 20/05/2019 10:15

Morning everyone. I hope everyone is feeling the joy of a fresh new week.

Well DS turned 4 this week so we had all the joy of birthday celebrations to contend with. On Saturday we had 25 or so adults and kids kicking about in the garden. It mostly was ok, although DS did take me off to a quiet room when people started arriving, I think to get his head around how busy it was.

Once he emerged we played on trampolines, on slides and we have borrowed a hot tub which he went in with a number of other kids.. I did get bitten once during Pass the Parcel but the fact he sat long enough to see it to the end was a success....

On Saturday we went to a trampoline park which is DS's cup of tea (although I got nibbled again as I was making wait in queue) and then went to a pub for Sunday lunch. It did precisely no food he would eat and he struggled to sit for long. We had some nibbles from home and a phone to watch so we managed to get through a meal. There was a small play area outside he spent most of his time which was ideal.

Having sung his praises re toileting we've had a couple of accidents recently. I think stemming from holding in his number 2's. His NT DS has had issues with constipation (sorry for TMI) but we have some softener that we might try (probably not on a preschool day)...

On on.

openupmyeagereyes · 21/05/2019 06:23

HopesDaddy it sounds like your ds did super well at his party and the other weekend activities.

A better night here, thankfully. Today I need to make notes on ds’s EHCP I think to see where we are. We should have the review meeting in June.

Yesterday one of the parents told me that her daughter had said ds was joining in much more which is good to hear. I do really like his new teacher which goes to show that change is not all bad (though if his favourite TA left it would definitely be a disaster!). I’m hoping we’ll hear soon who the year 1 teacher will be. She went on maternity leave last September and it’s not yet confirmed but I presume she’ll be back, even if only part time. She’s also the SENco (deputy head is acting at the moment).

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LightTripper · 21/05/2019 10:08

Oh Open - I hope you had a better night last night, that sounds hard!

Sounds like your DS did really well HopesDaddy: I think actually when they are old enough to realise they are not feeling good and take themselves off for a bit of peace and quiet if they need it it's a real breakthrough. This is why Dx was so important for us - otherwise I think we might still have been pushing DD to join in more. Now we know she only has a certain amount of "spoons" and it's more important that she learns how to spend them for herself, rather than us pushing her into doing things that take a lot of energy.

I think with the party it really helped that DD was there for the set up. I had already realised parties go better if we arrive early (seems counter-intuitive as you're there potentially for longer: but gives DD a chance to scope out the room before it gets noisy and busy, and then we can always leave early if she gets tired later).

Talk of year 1 reminds me I need to set up a meeting with DD's school to talk about transition. I know the year 1 teacher has already been going into Reception to teach some special bits (she went and did some science with them last week), so I hope that means she is staying and will be their teacher next year, but I should check in and see if the school think we need to do any more specific transition stuff, and whether there is anything we should be doing over summer to make September easier...

dimples76 · 21/05/2019 17:55

DS has been given lots of special jobs of taking heavy items into the Year One classroom - quite clever the way they have combined sensory break with familiarisation with the new room. Can't believe on half a term left in Reception - eek! Am I right in thinking that some of your children are repeating Reception?
I went to collect DS early today for a theraplay session and the children were all playing in the sunshine - it looked idyllic but then I realised that all the other years were indoors working.

dimples76 · 21/05/2019 17:57

Hopesdaddy and Jeb have your children started their school visits?

Jeb86 · 21/05/2019 20:34

@dimples - I love the creativity of your ds’s school, great idea for a sensory break and will help him get used to his new classroom.

Our school (as in nursery through to year 6!) is all open plan - so reception is right next door and you can see through to it from nursery. I was dubious at first but actually I really love the atmosphere. So I honestly don’t think ds has a clue that “school” will be different from nursery. We have the next SEN review meeting in July so I hope they’ll mention some ideas on familiarisation then. It might be that they wait until September and do a bit of a faded transition then. They share the same outdoors space so I’m sure it’ll be free flowing. I hope he thrives on the structure of it though, he finds the whole free play thing hard - like my previous post, very little imagination and ability to entertain himself!

openupmyeagereyes · 22/05/2019 05:40

Light I hope you can get some clarity on the year 1 teacher.

dimples I can’t believe there’s only a half term left either. This time last year we were worrying about settling in visits and now they’re on the brink of year 1. My ds won’t be repeating reception. I did question it at the last meeting we had with the school but the teacher said no. I guess there are pros and cons for both and he will have an individualised curriculum anyway.

Jeb the set up sounds perfect for transition to reception for your ds. Very similar to my ds’s school, though he did not go to nursery there. I think it makes it much easier for the (NT) children there.

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dimples76 · 22/05/2019 07:03

That set up does sound great Jeb - my son's school doesn't have a nursery so everything was completely new.

Light interesting that you it helped your DD to be at party set up - I was thinking about asking my sister to take DS to the park whilst I set up but I can see that DS would like to be more in control.

livpotter · 22/05/2019 08:41

Jeb frustrating about the educational support team. I've found (definitely in our area) that LAs try and dismiss anything before primary school as not their responsibility. Even when your ds goes to school you can request a reasonable adjustment about uniform. Ds doesn't wear uniform at all.
Congratulations on Ds 3!
We often have trouble getting ds out of the house. The main way we get him into the garden is to give him an ice lolly. He'll still refuse if it's too bright or if the neighbours are outside or it's too noisy etc. Apparently licking an ice lolly is good for speech development (or that's what I'm going to continue to tell myself Grin)
Ds's nursery is linked to ds's school and they eat lunch together at the school everyday which is lovely. Hopefully by the time dd goes to school next September she'll be really comfortable at the school.

Dimples it's great that your ds enjoyed riding so much. Our local riding centre does free classes for people with special needs. Maybe worth looking to see if anywhere near you does?
My ds is redoing reception next year.

Great your dd did so well at the party light!

Hope you're getting a bit more sleep open!

I'm not sure what is going on with ds at the moment but he is being very controlling and repetitive. I call it 'broken record'. What is quite entertaining is that he has started to repeat what he wants to the tune of 'frere Jaques'. He has grown a lot in the last couple of weeks so maybe partially a developmental thing. He's being fairly challenging at school too. The SENCO has referred him to the NHS OT, so hopefully they will see him before the end of term.
I've also been doing a bit of research into help over the summer. Two of the weeks we'll be on holiday/with family but the other 4 will just be me and ds and I'm not sure I'm up to doing all of it by myself!

HopesDaddy · 22/05/2019 09:20

Hi Dimples. DS has three school visits lined up but they don't start until July. Once with us, once where preschool will take him and stay with him and once where he gets delivered and stays by himself with the staff there...

He usually copes pretty poorly in a new environment so i'm interested to see how that goes! But I guess they are used to so many children with additional need they must have well developed strategies.

Hopefully this will mean he'll at least be acquainted with the place by September. He seems to have a good memory for somewhere he has been to before and remembers they layout and where things are.

openupmyeagereyes · 22/05/2019 09:29

HopesDaddy it would be good if they could do a social story for him with photos of the classroom, toilets and teacher so that you can look at it with him over the summer.

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HopesDaddy · 22/05/2019 10:04

Open he has taken to pictures as a way of communicating pretty well. He'll use PECS to ask for things. In fact he took to it too well so we took the 'chocolate' picture away :) But it's great to see him bringing in the pictures of toys he wants to play with or tv programme he wants on. Relieves the frustration..

So i think you're right about a social story. It probably is a great way or preparing him for September. Might mention this to preschool and our contact at portage..

openupmyeagereyes · 22/05/2019 10:22

I think a photo of him in the classroom with the teacher and/or TA that will be with him would be ideal. Ds also likes looking at his school website because there are photos of the buildings.

Iplayer has, I think, a starting school section of programming in the lead up to the new school year, with Topsy and Tim start school and the like. My ds was obsessed with the Topsy and Tim one, it made him so excited for school. He also slept in his uniform for over a week after starting as he didn’t want to take it off!

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dimples76 · 22/05/2019 19:26

Oh Open that's so cute!

DS's school made a photobook for him and that really helped. We liked 'time for school'

Liv your comment re ice lollies really cheered me - they are part of DS's diet ob a daily basis

Jeb86 · 22/05/2019 20:43

@liv ice lollies all the way here too. Today we got the train into town and bought a box of soleros from sainsburies for £1.50 and just sat in the sun munching them and then chased pigeons. I love summer!