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Can a SALT diagnose?

62 replies

blossomhill · 27/08/2004 19:14

Guess what I am worrying again!!!! I just wanted to know how much weight would a SALT have with making dx? I am just checking as I had a long chat with the SALT who works at dd's language unit. The SALT explained in detail dd's difficulties and that the dx was a non-specific language disorder. Obviously the SALT sees dd up to 3 times a week so must have a good idea of dd's difficulties. Please can someone reassure me.

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heartinthecountry · 31/08/2004 21:18

I am the first to admit that I know very little about ASD or indeed many other forms of SN (but I'm learning a lot from reading on here) but I think it is important to remember that AFAIK a lot of syndromes, disorders, conditions have a name because at some point some doctor looked at a whole load of people with a bunch of similar problems and decided to group them together and give them a name. That is certainly the case for my dd and Aicardi Syndrome. There are certain things that typify the condition e.g absent or very thin corpus collosum, infantile spasms, lacunae on the retina but beyond that there are a whole host of other things which may or may not affect them, and in varying degrees of severity.

Not sure where I am going with this... just that I think it is important to remember that each child is unique, and they may have enough things in common with a group of children to give them a diagnostic label or they may not but that doesn't change their 'needs'.

I know in some ways this is easy for me to say because I do have a diagnosis for my dd. But the other thing BH is this - the label I have for my daughter gives me no more indication of what to expect than if I didn't. I think that is what you mean when you say it is easier if it is clear cut i.e you know what to expect so can prepare for it. My dd's diagnosis is as clear cut as anything but I still have no idea what the future holds. Because Aicardi's is a spectrum disorder and all the girls vary enormously, and I mean enormously, and range from girls who only live a few months to those who are able to walk, talk and have relatively 'normal' lives.

Still not sure exactly what I am saying but I think I'm trying to say I don't think a diagnosis will give you what you need. I'm reading between the lines a bit here but I think what you are thinking is this: you want your dd to be happy, you are worried about an ASD diagnosis because you are scared that means your dd will never be 'normal' and therefore somehow never happy, you are desperately hoping that she has a more straightforward language disorder because that means she has a greater chance of becoming 'normal' and therefore have a greater chance of leading a happy 'normal' life. However you see things about her which you don't think are 'normal' and therefore you can't get the possibility of autism out of your head.

Please forgive me if I am completely misinterpreting here and please do tell me to bugger off if I am overstepping the mark but I don't think it is autism you are scared of, it is that your dd will not be/is not 'normal'. That is a whole other issue and one you probably need help with coming to terms with, but it really has nothing to do with a diagnosis for your dd.

I think in a very long winded way round I've just kind of repeated some of what jimjams and davros were saying - sorry, I wasn't even sure where the post was going when I started it!

Sorry too if I am sounding harsh - I do understand where you are coming from and I do sympathise .

heartinthecountry · 31/08/2004 21:19

Bollocks - that was a ridiculously long message and I've managed to post it twice - sorry everyone .

blossomhill · 31/08/2004 21:34

"you want your dd to be happy, you are worried about an ASD diagnosis because you are scared that means your dd will never be 'normal' and therefore somehow never happy, you are desperately hoping that she has a more straightforward language disorder because that means she has a greater chance of becoming 'normal' and therefore have a greater chance of leading a happy 'normal' life. However you see things about her which you don't think are 'normal' and therefore you can't get the possibility of autism out of your head"
Thank you heart in the country. I have just read that out to my dh as that is exactly how I feel but have never been able to find the words. Feeling quite emotional tbh.
Like all of us I love my dd so much. Today is her 5th birthday and I am so proud of what she has acheived so far and without getting too gushy I am so proud to have her as my daughter. I just wish I could make some things in her life easier for her to deal with

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Jimjams · 31/08/2004 21:48

Yes HITC is right- I tried to say the same earlier but didn't. A dx is definitely not clear cut. When ds1 was dxed 2 years ago we still assumed an independent (if slightly geekish) life was on the cards. We are now thinking in terms of fully supported residential care as an adult. Of course anything in between could happen as well.

I agree with Davros' earlier comments as well - maybe now is the time to try counselling or something. I've never done that but I have my auti friends, and my homeopath- who is effectively a counsellor for me I guess. The other thing I've found inspirational is reading books where people are completely at ease with autism (either because they have it themselves, or because they have accepted it as part and parcel of their child). Florica Stone's book, Temple Grandin and good old George and Sam have done it for me. Maybe there's something similar re language disorders. 2 spring to mind but of course I can't remember the titels or name of the author (Late talking children ...?) Both give a lot of case histories of children with language disorders who are almost autistic but not quite.

blossomhill · 31/08/2004 21:53

jj - if you do remember that would be great. Think I could do with something like that. I think that is the problem in that information on language disorders is hard to come by. I have googled lots of times and not come up with much except the SPD one I go on sometimes. I need more information. Maybe I'll speak to the unit staff on Thursday and see if they can recommend anything.

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Jimjams · 31/08/2004 22:18

thomas sowell ???? Rings a bell - late talking children and the einstein factor- bright children who talk late. Something like that - have a look on amazon.

Lots of case histories. US based (where dx criteria is slightly different and political issues are slightly different) but lots of interesting case histories. Some do end up with an asd dx, but most don't. In some ways ds1 shares a lot of similarities with the children in those books- probably because his hugest problem is language.

heartinthecountry · 31/08/2004 22:23

bh - you make your dd's life easier to deal with just by being her mum and obviously loving her so much. Just look at how much she has achieved and I bet that is largely, directly or indirectly, down to you. You are right to be proud of her, you should also be proud of yourself .

blossomhill · 31/08/2004 22:24

Thanks HITC, you are very kind

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Saker · 01/09/2004 09:18

BH - Happy birthday to your dd. She is nearly exactly the same age as my ds1 who is 5 on Monday next week .

blossomhill · 01/09/2004 09:34

Thanks Saker. Will your son be the oldest in the class? As my dd is the youngest having only just turned 5. My neighbour's son is 6 today and will be in the same class as dd. SO he will be the oldest!

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Saker · 01/09/2004 10:02

Yes he will be the absolute oldest. Ironically he would have been fine to start last year whereas ds2 who is an August birthday could have really done with the extra year. In fact I am going to try to keep him back a year. It's a bit frustrating that the system is so rigid.

blossomhill · 01/09/2004 14:49

I did ask if dd could be held back in nursery but the unit staff were very for dd going into reception as she is bright and needed it. Infact I would say reception has suited dd far more than nursery as she does like the sructure wheras nursery is more free-choice, which dd finds harder.

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