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Original poster

case notes on radio 4 last night was about autism - hear it?

22 replies

katierocket · 02/06/2004 10:36

thought you might be interested in this

case notes

you can listen again on website and I think it's repeated today at 4.30pm

OP posts:
dinosaur · 02/06/2004 10:45

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Original poster
katierocket · 02/06/2004 10:53

ah, well you know it's funny because I don't have direct experience of autism but everytime I hear anything or see anything about it I always think of mumsnet. That's what I like about mumsnet, it makes me think about subjects that I might previously have passed by. It was an interesting program and the conclusion seemed to be that some of the therapies where incredibly time demanding and exhausting for all involved. it was interesting hearing a mothers experience of learning the diagnosis for autism and how she felt.

OP posts:
dinosaur · 02/06/2004 10:56

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maomao · 02/06/2004 11:27

katierocket, thanks for posting the link to the R4 programme.

Dinosaur, I think this is the story that you're referring to

dinosaur · 02/06/2004 11:30

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strangerthanfiction · 02/06/2004 11:36

I didn't hear it live but I work in a medical film / audio library and have it sitting on my desk to listen to today.

Jimjams · 02/06/2004 12:46

I did not like the mother from Bromley- not that I didn't like her- just that I didn't think she was a very good example. It almost gave the impression that if you put time in then it will all be OK. And of course it isn't always like that. Her child had done extremely well but there are many who don't.

Davros · 02/06/2004 13:10

Its on again today at 4.30pm. Doubt I'll get to hear it except on Listen Again, half term argh!

Janh · 02/06/2004 13:15

It is on at 4.30 today, I just heard a trailer and came to post about it - had an inkling it would be here already!

katierocket, me too about thinking of mumsnet...was in Northenden (S Mancs) yesterday and there was a signpost to The National Autistic Society which I would not have even noticed Before Mumsnet.

dinosaur · 02/06/2004 13:15

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coppertop · 02/06/2004 13:30

I may need to have ds1 & 2 bound and gagged first but I'll try to listen to it this afternoon.

The Michelangelo article looked promising until it started going on about Rainman and Rainman-type skills. Aaarrrrrggghhh!

dinosaur · 02/06/2004 13:36

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suedonim · 02/06/2004 13:43

The BBC have an article about Michaelangelo and AS - no mention of Rainman!! It says Jane Austen may also have had AS but, disappointingly, doesn't go into why they think that.

Easy · 02/06/2004 13:44

Just a tip, I have a radio/cassette player on an electric time switch in my bedroom, so that when I know there's a programme like this on I can set the timer to tape it.

Listen again on the net is good, but as I don't have wifi yet I have to sit in the study to listen to progs that way.

Jimjams · 02/06/2004 14:43

Also was cross as the psychologist woma basicallly said that the intervention you can do is limited by your funds. When of course you can ask LEA's to cover the cost. OK its a battle but they do have a resposibility to provide a suitable education.

coppertop · 02/06/2004 14:53

Thanks for the link, Suedonim.

Ds1 has the ability to hyperfocus too if it's something that really interests him. It's been noted at pre-school that although he avoids messy play, if they are doing some form of artwork that he really likes he will sit there for over an hour working on his picture. I don't think he's the new Michelangelo () but he is similar in the sense that he too seems to have a very fixed idea from the beginning about how his picture will look when finished. He follows this idea through to the very end.

suedonim · 02/06/2004 15:47

Another link coming up! This is about a chap with Aspergers and his amazing pictures. The article helped me understand a little bit how the brain works in autism.

maddiemo · 02/06/2004 20:46

Jimjams I know what you mean

Davros · 03/06/2004 22:35

I hate the idea that if you put in enough time and spend enough your child will do better. Hopefully we are all trying to help our kids reach their potential, whatever that may be, and its different for different kids, that's the reality. I once heard a quote that I like "all autism isn't created equal" AMEN! Trying to do your best for them and being able to does depend a lot on LEAs etc as Jimjams said. The process of fighting for services also does seem to turn people into more committed parents although I don't see what choice we have. I suppose there must be parents out there with diabled children who are less committed but I haven't met any so far. I still haven't heard this prog but can anyone comment on one of the contributors who is a GP called Jamie Glover? I know him a bit and would like to know if he was any good. I'll try to listen tomorrow......

Jimjams · 04/06/2004 08:59

Was he the one whose son spoke at 18- and said "pub"? He said something about parents being the key and good parents being able to move mountains basically. For a moment I thought he was a professional so was ready to hurl abuse at the radio but I think what he said maybe came out wrong.

It was unfortunate that it followed the report of the woman with the HF child who seemed to be saying that her child was HF as she had done so much when he was little. I think we all do what we can- but as you sayd Davros "not all autism is equal". My child hasn't done as well as expected- is that my fault? I don't think so.

When he satrted talking about his son who spoke at 18 Irealised he meant what he was saying in a slightly different way. I think!

Davros · 04/06/2004 12:29

That was probably him. He is a GP but he also has a child with autism. I still haven't heard it...

Saker · 04/06/2004 13:54

I heard it and was irritated with the woman who went on about how parents usually picked up autism at about 18-24 months when they saw that their child wasn't playing with the others. I don't know many 18-24m old children who actually play with (as opposed to alongside) others. My NT ds1 spoke well and played well from an early age but I still don't think he really played properly with other children until 2.5y +. She's just going to start a whole load of people thinking their child is autistic because they are not sharing at 20 months.

Also irritated by this idea of a co-ordinated team of specialists who would produce a diagnosis for your child - I haven't seen much evidence of co-ordination although we have seen a lot of people. Following ds2's appointment with the paed in Jan we were told we would be followed up in 3m. No appointment materialised so I phoned again in May - doctor isn't doing any clinics in May - he could see us at the end of June. Plus no evidence they had any idea of sending an appt spontaneously. Saw speech therapists 3m ago - supposed to send a report and appt for follow up in 2m - nothing yet materialised. Another one to chase up. Also no-one actually seems to provide any therapy - best we have got is a typed sheet telling me how to talk to my child. Anyway rant over - the individuals I have seen have mostly been very nice as individuals but there doesn't seem to be any evidence that they have actually discussed my son and reached a joint conclusion as to what could be done for him.

The programme was quite interesting but it didn't actually provide any answers to the questions it set out to address.

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