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Does anyones child suffer from Aspherger syndrome a form of Autism?

34 replies

misscarrick · 16/10/2006 10:54

My 3 year old has to see the Health visitor today for a review. We think he might be suffering a mild form of Autism. All information welcome.

OP posts:
coppertop · 18/10/2006 14:16

Dottydot - Handwriting is one of ds1's greatest difficulties at school. I think it's a combination of his general lack of co-ordination and delayed fine-motor skills.

His teachers (he's now in Yr2) realise(d) that he can do all the classwork but that he finds it very hard to actually write the answers.

His school has been using a variety of techniques to help him and things are getting steadily better. If it will help in any way I can let you what the staff are doing/have done.

PeachyBobbingParty · 18/10/2006 17:25

Snap here, Sam's writing is appalling given that he has a huge IQ. BIBIC said it was due to some As kids having muscular weaknesses in their hands, they have given me exercises but also stated that a sloping desk is often useful- they said to take a ringbinder file, tape it closed and use that to rest on when writing. maybe that would help?They alsoa dvocate those grip pencils and the triangular shaped pens (which you can buy in WHSmiths for £3.99, I use one for college).

sphil · 18/10/2006 18:15

I know it's been said on MN threads before, but this thread just makes me think even more about what a huge overlap there is between AS/HFA/Dyspraxia and the issues facing those of us who have children 'on the edge of the spectrum' (for want of a better description). I was very interested in your post Earthtomummy as I've always felt our children (my DS1 and your DS I mean) had a lot in common. We've decided not to pursue a dx for him atm - for many of the same reasons as you give for not using the AS label for your DS. Like other posters' children, he's managing well in school where they're meeting his needs appropriately. His writing is pretty dreadful but improving all the time (and he's also just discovered the joys of drawing). I'm just not sure atm if a label would benefit him - but I question the decision constantly, particularly if something happens that marks him out from the other kids.

diNOLOOKINGOVERYOURSHOULDERsau · 18/10/2006 21:28

DS1's handwriting also his biggest weakness. It really lets him down. Will try the triangular pens!

Dottydot · 18/10/2006 22:12

that's really interesting - thanks you. I don't mind at all writing about ds1 - and any thoughts very welcome as we've not approached anyone medical/educational about him (yet..!).

He's 4 and I think the thing I think about is that he's probably so borderline (which is why I feel a bit embarrassed posting under SN because we have such an easy time of things compared to other parents), that until ds2 came along we didn't know ds1 was 'different' - although our friends all did. It's been a common theme with ds1 and his peers - our friends and family would say things like, you know it's ds1 that's different don't you, not xxxxx - which is true!

A few examples:
He's always had to have order in his life - lots of hissy fits when he was younger if things weren't done in the right order - even little things like the lid of his cup not being put on the right way around - even though there isn't a right way around!

He follows rules to the letter - which actually makes things much easier for us (and this is where our friends with children his age would tell us he was the different one!). You only have to tell him something once and he'll do it for life. He gets very upset about cars parking on the pavement - anything that's not right.

Big problems communicating - will only really do eye contact with us, and that's a fairly recent development. Went through a huge stage (over a year I'd say) of not talking to anyone else - would go all day at nursery without speaking, even though we knew he could speak perfectly well. We've had to work like crazy to get him to say 'hello' and 'goodbye' to his grandparents, who he sees several times a week. It's been quite upsetting at times because he seems really rude, but I don't think he is. If he knows they're coming to babysit he'll ask to go to bed before they arrive - to get out of having to talk to them! He's still very very shy, but slowly getting used to talking to other people - lots of coaching from us - and we're working on eye contact.

He hates loud noises and always has since being a baby. He can't stand it when other children mess around and are noisy - the teacher thinks he's very helpful as he always reminds her what to do and when - picks her up if she forgets to do something - and bear in mind he's only been in school 6 weeks!

Very fussy about clothes - labels, texture - won't wear something new for ages because it doesn't feel right. We nearly had meltdown on his first day at school because he was so upset at having to wear his uniform - we hadn't washed it beforehand and he hadn't tried it on. He was sobbing at having to wear it.

Phenomenal memory - can recall precise details of events from years ago.

Very intelligent but I'll always worry about him finding his place in the world.

And unbelievably bad writing at the moment! I know he's only 4 and his teacher says it's a boy thing - they tend to be behind, and I'm not worried about him - it's just another bit of who he is and I wondered if it might be linked to the stuff above.

I'd say on the whole he's fine - fits in the world with far fewer problems than lots of children. But he's 'different' in lots of ways and family and friends have agreed. Dp doesn't tend to like to talk about it, so we don't - it's not a big issue and we've never had to deal with huge tantrums etc. - only really when he was slightly younger and routines were broken. Now, if something doesn't go according to plan, he can cope with it.

It's just funny having ds2, who's 2 and just so flaming 'ordinary' - so happy, carefree, - I'll never really worry about ds2 in the same way I worry about ds1, whose default is to be wary and worried about everything.

Phew!! Sorry the post was so long - it's good to get it out sometimes.

Dottydot · 18/10/2006 22:13

Good grief that was a long post - millions of brownie points if anyone got to the end of it!

PeachyBobbingParty · 19/10/2006 11:53

Have a look at this triad of impairments , it's what paeds use to diagnose.

Have to say, by what you have said, your son might fit this.

LOADS of As kids are relatively easy children within their routine; they have the ules they stick to them, and function well. Some don't but of course, it's those whose children that don't that shout loudest for attention as we tend to get mroes tressed, if that makes sense? Doesn't mean that AS is always like that; indeed, I often refer to Sam as atypical AS in essays etc.

In your position I'd get a referral by your GP, but that can take ages. Something that would inform you better now would be a call to the national autistic society (you should be able to navigate from that link above), they're excellenta nd can send out so much information.

I would also say don't panic. Lots of AS kdis go ont o have really great lives: there are a lot of AS traits visible in most of my professors, in many actors, and my cousin has just beena ceepted to Cambridge to study music and chemistry . Jenk is DX AS and married with kids; I certainly have traits if not the full blown and I am married with kids, have had one good career and am studying for another. AS doesn't necessarily limit you, but key is an understanding- both from those around,a nd when he is old enough, from hilself.

BTW my Paed told me most parents of AS come forward when a second sibling displays more NT behaviours, we certainly did. I do wonder how many only children with AS never get picked up.

Dottydot · 19/10/2006 13:52

Thanks for reading through my essay!! I'm not at all panicking - I suppose like I said I'll worry about him a bit more, and wish that he could be as happy and care free as ds2, but I'm kind of glad that me and dp and our families and friends are well informed enough to know that from time to time he needs a bit more support in one direction or another. I think he'll manage fine in the world but needs to learn or at least realise particularly about the important other people attach to social skills - the looking at people and being able to say hello and goodbye feels so important. But I'm a huge extrovert with (though I say so myself) really good social skills! It makes me a bit sad that other people might think he's rude when I can see he just struggles with it at times.

Bless him - he's utterly gorgeous and so special and dear to me. He's not my biological child but I feel so close and tied to him - because he needs me and dp to steer him through life just a bit closer than ds2. (this is how I feel at the moment anyway!!).

Anyway, I think he's got the potential to be a brilliant lawyer - his logic and skills at rational argument are amazing!

Thanks again.

caroline3 · 20/10/2006 16:59

Hi Dottydot, so much of what you write could be about my ds (6)!! I think he will be O.K in the end but his problems did get more apparent as he progressed up thru the school and more was expected of him. That why the diagnosis was important. The teachers understand where he is coming from and make allowances.

Main problems I have had recently: Inappropriate touching of teachers (but stopped now I explained that he could not touch any teachers at school); wants to go to Saturday football but stands around a lot as he does not understand what to do; talks like a baby sometimes to his classmates as he thinks this will help him fit in; has problems switching from tasks at school. I think the later is due to his taking rules literally - e.g he is told to do the exercise on p.10 but has not finished it by the time the teacher calls him to the mat. He won't go because he has not finished what was asked of him. Also has problems taking turns but this is getting better. The teachers are coping O.K with him now but there is always some issue or other unlike my dd who is very average and unremarkable! My ds also has a brilliant memory and is very good at spotting detail - we think he should go and work for MI5!!!

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