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Ian Jordan/Irlen Syndrome ... help and advice please ...

32 replies

frazzledbutcalm · 13/05/2014 20:30

I'll try to be brief. Dd1 and Ds2 both have visual problems. Dd1 is now 14 and we've only just learned the extent of her problems. Basically everything she sees in a book moves constantly ... she's blagged her way through school so far and achieved VERY well. Ds2 is 9 and his words are 'puffy'. I thought they both had Irlen Syndrome. However, I took them to see Ian Jordan and they've both been diagnosed with sensory processing issues. Ds is getting blue lens glasses, dd is getting glasses with 1 green lens and 1 purple! She's really bad, really complex he said. While I'm very happy with the care/treatment etc, I can't help feeling that he's diagnosed what he deals in .. If I'd gone to the Irlen Centre they'd have diagnosed Irlens. Either way, they would receive coloured lens glasses. I'm feeling a tad confused/unsure though. Is there anywhere else I can get opinions from or should I be getting them referred to anyone through the GP?
TIA, hope this all makes sense.

OP posts:
frazzledbutcalm · 25/05/2014 20:36

I'd definitely recommend seeing Ian tacal ... but I can understand why some are sceptical... If it wasn't for my 2 dc visual problems then I doubt I'd notice any difference in them with the glasses really. But the visual side just can't be denied!
I'll post when my GP has further news.
Smile

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frazzledbutcalm · 01/06/2014 21:00

Hi, I took dd3 to be assessed by Ian yesterday. She doesn't have visual problems but thought I'd get her assessed anyway just because of things we learned with ds2 and dd1. dd3 is currently being assess by cyps but we're very early in the process.
So, Ian has assessed her and myself and dh were quite surprised. She has a rare condition which causes her right eye to bend things as she sees them. Her hearing sense is affected, the same as her db. 1 eye doesn't process information as quick as her other eye, so there's a time delay in someone's lips moving while speaking and her hearing what they say. Her glasses (like her older ds) are 2 different coloured lenses. 1 is yellow, 1 is green. Should get them in a week. Think she'll only wear them at home though, we can't imagine at all that she'll wear them at school. Not with her social problems anyway. We hope they might settle her down a bit at home, we'll build from there.
After talking to Ian and seeing the difference in our dc already with these coloured glasses, I honestly believe an awful lot, even most children would benefit from the testing and wearing of coloured lenses.

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waly · 02/06/2014 08:17

hi frazzled it's tacal it is great that Ian has found these problems and they can be corrected! You must be delighted that Ian has been able to do so much for your dc's.

I am going to make an appointment with him to get myself tested. When I was in his waiting room for my ds' appointment Ian said he could see I was finding it difficult to look at him while I was listening to him. He also did a quick test on me and I could see his lips moved first and there was a delay with the sound.

Ian said he thinks I have had a difficult time coping and he is sure he can help me. I came away feeling a bit unsure about it all. Ian could not find any problems with my ds but thinks he may be a bit young for the tests. I never went back to get myself tested but I think I will now.

It is great that Ian has helped your dc's so much. It is a pity there are not more people like him around.

frazzledbutcalm · 02/06/2014 08:44

He is great. waly/tacal ... dd sees lips moving at different time to hearing and the lenses corrected it immediately! It probably does seem unreal/unbelievable to those who don't see it first hand. Make an appointment soon for yourself! Wink

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devientenigma · 02/06/2014 18:32

We have never been charged for an appointment or glasses for my kids off Ian Jordan. Is this new?

frazzledbutcalm · 02/06/2014 21:10

dev I've not been charged for any appointments. There were different price glasses/frames .. if you choose frames below the NHS voucher price then they're free, if you choose more expensive ones, the NHS voucher price is deducted so you pay the reduced price. I've paid for some lenses but others were free. Apparently if your colour lens is made up with any red in it then that lens is free under the NHS - if it contains no red pigment then the NHS doesn't cover it. Out of my 3dc lenses (so 6 colour lenses altogether) I've had to pay for 3 colour lenses in total. Dd1 has 1 green lens, 1 purple - purple free as it contains red. Ds2 has 2 blue lenses so both had to be paid for as neither contained red pigment. Dd2 has 1 yellow, 1 green (different shade to dd1) - both lenses free as they both contain red pigment.
Hope this all makes sense Grin

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fabangel · 15/03/2018 10:06

Please could you consider signing this petition if Ian Jordan helped your kids?
Blurb within.
Thanks
www.change.org/p/the-general-opticians-council-uk-general-opticians-council-of-the-uk-reinstate-ian-jordan

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