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Looking back for 'signs' of Autism

35 replies

mrsforgetful · 15/02/2004 21:50

We have our long awaited assessment next week- Me,Husband,ds1,2,and 3. Hoping ds2's 'behaviour' will be recognised as autistic and that we will get some kind of referal out of this-so........

over the next few days i will post anything i need to clarify here so that when i'm in that meeting i am 'speaking the right language'

For me- forgeting the crying and hate of milk that ds1 and 2 did fom day one...there are a few things which are 'unique' to ds2.

from very early on i used to leave him in front of the t.v watching 'pingu'- he would stare motionless at the screen- only crying when the tape finished. (meanwhile i tidied up etc) People critised me for not interacting with him - but i REALLY believed he was HAPPIER watching pingu.
??? My view then was he liked the black/white image of pingu and the noises the penquins made-
NOW...i believe it showed his lack of need to be talked to/cuddled/played with- and love of sameness....though different episodes...the screen was full of penguins....and the same noises.

As he grew and could sit up he would sit for hours with a 'smash potatoe' tin - puting things in taking them out- over and over again.
???Then- saw this as early counting
NOW....as it 'developed' into taking the tin everywhere- i see it as both repetitive play and routine

At some time around 12-18 months- he had a 2 month cluster of fits- these would come 'out of the blue' and were not 'febrile convoltions' he would be walking along - then just drop down- his lips would go blue and he'd go cold- he'd lie motionless- it was frightning- he was seen by a paed- and without 'testing ' he said it was to do with his brain developing faster than his body could accomodate- so it caused some kind of overload of ' signals'- that was my understanding anyway- and sure enough soon after he had a major growth spurt- and has not had a fit since- so feel the paed was right to not look into epilepsy (which is what i worried was wrong)

From birth he was prone to severe constipation- and once weane di was worried as his nappies contained undigested food,and would often resemble exactly what he'd ate the last meal- so i felt food was passing through him too fast- my nan had crohns disease- so i then started to think he had that- he again was seen by another paed- and again no further action taken- his weight and height were fine- TODAY he still gets bowel problems- he is constipated ...and i realise there is the 'link' between diet and Autism...so i look back on ds1 and 2 hating milk with interest (caesin) and even more so when i found that DH was fed orange juice (!!!! .... 45 years ago!!!!!!)DS2 has such a restricted diet that it scares me to remove whole food groups- and as mentioned before he now LOVES his extremely milky cups of tea...and i'm also aware that its likely he 'craves' the things that he is allergic to.

Around 2 he began to play soley with brio trains- then Thomas the Tank hit us with force- he is now 7 and refuses to watch it etc- but up to 5 he was 100% fixed on it. Too much to mention again here....but playwise he would appear to 'interact' with nursey peers- however he knew every truck/train in some amazing way so that if he ended up with what appeared to be an identical truck but it was the 'wrong' one then he would scream- this caused many probs at nursey as to them he was 'quarelling over 2 identical things' - but looking back i can see that somehow he knew the difference.

Then from 4- counted everything,very 'exact' about time and colours, hated people 'braking promises' ....really this was hating routines being changed or activities being ended- had to have hoody jumpers as he had to wear a hood at all time- and the 'food' difficulties became bad enough for me to realise that he was not just a faddy eater as others thought .

i know the list of memories is endless -but one last one is that wen they dug up our town to lay t.v cables- he used to follow the exact routet they took along paths- anyone in his way had to move- he would scare me to death as sometimes they dug right to a corner of a road- and he would follow it right to the kerb then take the turning and follow it round the corner.

OP posts:
Davros · 22/02/2004 10:47

Will be thinking about you MrsF. I'm convinced you'll impress them. Just remember, they often have to deal with parents who really don't have a clue and expect the professionals to give them all the answers (we were probably all like that once, at the beginning ). I was also shocked to hear from how often parents don't bother to attend Statement Reviews, you'd be surpeised!

charliecat · 22/02/2004 11:26

Hope it all goe well Mrs F

Bekki · 22/02/2004 11:34

I'll be thinking of you both tomorrow morning, good luck!

coppertop · 22/02/2004 17:14

We'll all be thinking of you MrsF, and checking on here every 5 minutes afterwards to see if there is any news!

mrsforgetful · 22/02/2004 21:32

better not try looking on here till 1pm....i am going to 'GO the Full 90 minutes' + 'extra time' + penalties if i have too!!!!'
(no.....I hate FOOTBALL but saw a T-shirt with @I can go the whole 90 minutes' and i loved the inuendo....then this assessment came through for 60- 90 mins and i decided there and then that unless they decide they've seen enough after 10 minutes )- then i will make this appt count...!

Thanks to you all for wishing us well....just to 'conjour' up the right image i will describe the event as i see it....

There will be me (with wet hair) and I will be talking too fast,not breathing properly and probably having a panic attack!

There will be my husband avoiding eye contact and threatening that he'll do 'XYZ' if they don't stop....spinning arms,bunny hopping off chairs,lying on the dirty floor,interrupting....and that's just the professional...what he'll say to the kids i just cannot say!!!
Then there'll be my boys - all 3 of them in their shining glory (and for the first time in history i have simply said that we are going out to a clinic tomorrow- and no more. I have not prepared ds2- and it was soooo hard to 'leave him cold' about this- but i decided it was enough to warn him he would be going out- i could have said nothing- but i chickened out of that as i love him.

.......All in one room (size unknown) for 90 minutes....without a TV +remote for my husband or Playstations and digimon for DS's ....and I don't know who will be 'assessing us'...(thinking of starting my own abbrieviation....Ass= Assessment and Asser for assessor....did want to type Ass with Hole on the end but i'm too polite for that!)

I may sound cherrfull- but this is me when i am SH*T scared....i go hyper....Now can you imagine me yabbering on tomorrow!!! They'll give me anything ....just to shut me up!

OP posts:
coppertop · 22/02/2004 22:03

LOL MrsF!

I can just see you clinging on to the door handle, refusing to be prised away from the room, shouting, "NOT UNTIL I'VE HAD MY 90 MINUTES!!!!"

charliecat · 22/02/2004 22:08

Yes coppertop, my thoughts exactly!

Eulalia · 22/02/2004 22:16

Good luck tomorrow Mrs F. Those 90 mins will go flying past. Let us know how you get on

Davros · 22/02/2004 23:04

MrsF, have you had a chance to read through your posts on here or print off any parts that might help? I find just going through things, even if you don't use the notes etc, helps me to think more clearly. I know it won't have been easy with half term and the appointment being on the first Monday back, but you have written some excellent and very clear things here that make absolute sense (and you've helped other people too, no mean feat when you've got so much on your plate). Go Meg, Go Meg, Go Meg!

coppertop · 23/02/2004 09:57

Good luck for this morning, MrsF.

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