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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

for all those of you who get glares for using disabled spaces.....

53 replies

misdee · 21/01/2006 23:43

mieow has found this

i may get one.

OP posts:

Original poster

misdee · 23/01/2006 13:14

oops, me not mieow

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kate100 · 23/01/2006 13:18

I have a friend who needs one that says 'my disability is blindingly obvious from the waist down'. He's young, goog looking bloke who drives a sports car and you can feel the glares as he pulls into a disabled space and then he gets out ..... and he's got one leg all round.

Original poster

misdee · 23/01/2006 13:19

lol kate. i bet some people do feel v v .

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Blu · 23/01/2006 13:20

I hate the illegal trade in Blue Badges. Where I live, you can confidently expect Blue badge holder to be a) disabled or b) a drug dealer.

These stickers seem a good idea, but that they are necessary, as they clearly are.

Original poster

misdee · 23/01/2006 13:29

a frind of mine, her dd has RETTS, she pulled into a parking bay and got a mouthful of abuse before she got out the car. she got yelled at 'YOUR NOT DISABLED'

'NO' said my friend 'i am not, butmy daughter is!'

OP posts:

tobysmumkent · 23/01/2006 13:32

Message withdrawn

tobysmumkent · 23/01/2006 13:34

Message withdrawn

tobysmumkent · 23/01/2006 13:34

Message withdrawn

Original poster

misdee · 23/01/2006 13:35

stress levels rocket some days beyond help. i have abdonaded many days out as dd2 wont co-operate. she is a very 'me me me' child.

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onlyjoking9329 · 23/01/2006 14:47

my three kids have a badge each, they all have autism, they can all walk, if they want to, but they have no awareness of danger, they have no spacial awareness so when they open the car door they open it full blast regardless of walls/cars next to us, my girls are terrified of dogs and will run to get away, i would be happy to park at the far end of tescos car park if i could have a wide space/end space, but for some reason someone always comes and parks right next to me, why?

anniebear · 23/01/2006 15:32

I also imagine most of us would happily give up our blue badge if they could also take away our childs disabilities

mumfor1sttime · 24/01/2006 13:06

As I said, I am not out to offend, just curious. I didnt realise that disabled badges were given for autism. Reading this thread I can see why you might need one for your daily life.

Sparklymieow- my Mum has tried several times to claim DLA and has been turned down. She has since appealed for the 2nd time and is waiting to hear.

Original poster

misdee · 24/01/2006 13:23

glad to have enlightened you. dd2 doesnt actually have abadge, am just going through her renewal forms atm, and as she is just 3.5years old idont think she'll be entitled.

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geekgrrl · 24/01/2006 13:43

dd also has a disabled badge. At first sight we probably look completely normal, a boisterous two year old and her mum. The thing is though, the 2 year old is not really 2 but actually nearly 5, with Down's syndrome and zero road sense, and partially deaf so she doesn't really understand spoken language such as 'Watch out there's a car!' and can possibly not even hear me. She has little legs and is a very slow walker who falls over a lot (like a toddler). Unfortunately she manages to be much heavier than a toddler, so carrying her is no picnic.
However, the fact of the matter is that she is nearly 5 and should be able to have the same experiences as other children her age. This includes going to the shops and not having to stay at home because she is too heavy to carry from the far end of the car park to the entrance. She should be able to go into town with me occasionally without having to be strapped into a pushchair so that I can get her safely to the pedestrianised area.
Yes, we could cope with a normal parking space, but you know what - life with a disabled child is hard enough as it is. It's nice to have the burden lifted a bit occasionally.
Lastly, she has a lot of hospital appointments due to her medical problems. The blue badge means we don't have to shell out huge parking fees and take the pushchair when she goes to her appointments.

anniebear · 24/01/2006 17:33

misdee, I am sure Ellie got hers when she turned 2 ???

anniebear · 24/01/2006 17:33

might have been 3!! not sure now! I am sure it was 2 though

littleredcorvette · 24/01/2006 19:31

misdee - my ds got his blue badge when he was 3.
If your dd2 gets DLA higher rate mobility, then she should qualify.

onlyjoking9329 · 24/01/2006 20:33

having just done renewals for blue badges for my three i can tell you there is a list that says automatic entitlement, on the list is....high rate mobility, high OR middle rate care, two of my kids get high mobility and high care and one of my twin girls gets low mobility and high rate care, they have ALL been given blue badges just waiting to see if they will renew them, i do know people who have got badges for two year olds, thou it is more usual at three.

Original poster

misdee · 24/01/2006 20:35

dunno if she'll qualify foir hig hrate mobility, we will see.

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onlyjoking9329 · 24/01/2006 20:39

missdee you can get one just by getting middle or high rate care, it says something on the form about how far can they walk without support/supervision, i just put unable to walk without supervision/restraint as she is unsafe and no awareness of dangers, phone up and get the forms go on.

Original poster

misdee · 24/01/2006 20:40

dont think you can here. its very hard to get one with hig rate mobility.

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onlyjoking9329 · 24/01/2006 20:43

get the forms and have a look, i know a lot of parents see the list see high rate mobility and dont continue to read further down where it says middle/high rate care, suppose it might be different in different areas, but you have nothing to lose

Original poster

misdee · 24/01/2006 20:46

hertsdirect site says we'd need to be assessed. if she doesnt automatically qualify under the mobility section then i'll contact them. need to get CDC out of the way before i can think about any other assessments.

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HRHQueenOfQuelNoel · 24/01/2006 20:54

"But I also get a little angry when I cant 'see' a disability. "

sorry I'm confused - you say your uncle had Parkinson's yet you get angry when you can't "see" a disability. my mum was diagnosed with Parkinson's Disease 10yrs and had to give up work at the same time, probably had the symptoms much longer - was just put down to other stuff.

Now she's pretty bad - and you can see that she's disabled - but 4/5yrs ago you wouldn't have really know had you looked at her. She didn't have her 'stoop' and was still pretty mobile on her feet. The shakes were generally under control with medication so at a glance she looked perfectly "normal".

However at home she'd be falling alseep at strange times (medication), couldn't do her buttons up, was no longer able to do her beloved cooking/baking and "simple" tasks such as getting in and out of the bath, or changing the light bulb were impossible. She couldn't write anything properly anymore because of the loss of fine motor control - so despite looking "normal" she was most definitely disabled.

We have someone at work with it too - on a 'good' day when his mobility isn't too bad you'd just think he'd got a bit of an 'old age shuffle'.

onlyjoking9329 · 24/01/2006 20:55

yeah you have a lot on with the assessment stuff and other stuff.

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