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........itv1 this morning living with autism.........

100 replies

jenk1 · 19/09/2005 10:21

just to remind you that this morning which starts in a few mins are showing a documentary on how a faimly copes with living with autism

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RTKangaMummy · 19/09/2005 12:50

I do know that even taking a NT child to a tube station I would hold their hand

lynny70 · 19/09/2005 12:51

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macwoozy · 19/09/2005 12:52

He ds is HFA, and this boy behaved in the same way as my ds would, the only difference being his lack of speech, and as pointed out his intelligence being that of a child half his age.

I have problems with this as well jenk1, I never know what to say to others when my ds has a meltdown. It just never seems appropriate to explain to complete strangers. I have began very recently to mention his autism when he pushes or hits other children, I'm fed up of others thinking he's just a naughty boy whom can't be controlled.

Ulysees · 19/09/2005 12:55

Yes Lynny, it would be interesting to hear the mother's opinion of editing.

Shame it didn't portray the reality for most families as it was a good opportunity to do so.

jenk1 · 19/09/2005 12:58

i wouldnt be able to let go of my ds,s hand in a train station either although he is HFA he has no sense of danger take last night for example.

We returned home in the car followed by my sister and her family behind us, as we got out they slowed down to say goodbye. DS quick as a flash jumps behind sisters car and trys to grab on to the back of it didnt manage to do that so ran up half the street in the dark after it!
They should show things like that on these documentaries!

OP posts:
lynny70 · 19/09/2005 13:00

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coppertop · 19/09/2005 13:05

Ds1 is at the milder end of the spectrum and the hand-holding thing really depends on where we are. If it's a place and route he knows well then he's okay. If it's somewhere unknown and something freaks him out then he just runs. No stopping for roads etc.

I was interested in this because it mentioned that they had 2 children on the spectrum. It was a let-down tbh and didn't resemble our way of life in any way. I'm glad they had an au-pair and private SALT etc but it was all very different from my personal experience of autism. Ds2 loves trains but I doubt he would've been able to tolerate the station at all. His hands would be clamped over his ears with shouts of "Too noisy!"

Jimjams · 19/09/2005 13:17

lynny I was asked yesterday by some long lost visitors whether ds1 was a genius at anything. In the previous 3 hours he had laughed manically, stripped off twice when he got a speck of water on him, smashed two glass ornaments, screamed because a toy wasn't spinning fast enough, headbutted the bannisters and kept dragging dh outisd so he could see the tv through the living room windows. I was a bit surprised- just said he was a genius at spotting washing lines on estate agents particulars. But it's true- the Rainmain- hidden genius image is very widespread.

RTKangaMummy · 19/09/2005 13:21

Is rainman aspergers?

Or am I totally confused

coppertop · 19/09/2005 13:22

"Rainman" was at the lower end of the spectrum but because he had a talent/skill with numbers a lot of people think that all autistic children must have a special skill, RTKM.

macwoozy · 19/09/2005 13:24

Oh Jimjams, how awful for you

jenk1 · 19/09/2005 13:26

my BIL said to me a while ago, when ds is older im taking him to casinos and he can help me win money

Its like they dont see the human being with feelings they think its this "thing" who has these abilities which can be exploited.

Then on another occasion he said when ds was freaking out cos he couldnt do a level on the gamecube-"if he was mine he,d be in bed with a smack"
It makes me mad, my family apart from one sister of mine arent tolerant of ds since his diagnosis, they think things should just carry on as normal and that he is being a bit naughty.

Jimjams- i know what you mean about your ds spotting things, the other day i was cleaning the dining room table and i put the mats back with the ornament on it.
When ds came into the room he went over to the table and moved the ornament ever so slightly saying its not completely in the middle!

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RTKangaMummy · 19/09/2005 13:26

ooooh thanks

I thought he was aspergers

macwoozy · 19/09/2005 13:27

Am I right in thinking autistic savants only number at about 5%?

jenk1 · 19/09/2005 13:29

"Rainman" used to be my nickname at secondary school cos i was obsessed with timing school lessons and used to get very upset if they went over!!!!

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lynny70 · 19/09/2005 13:39

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dinosaur · 19/09/2005 13:41

My DS1 is very very high-functioning but he also has (1) the amazing memory - like lynny's dd and (2) an uncanny ability to spot if something is a millimetre out of place.

RTKangaMummy · 19/09/2005 13:43

.

Have just seen AUTISM is on tonight BBC1 7.30pm

.

lynny70 · 19/09/2005 13:44

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Ulysees · 19/09/2005 13:45

You starting a new thread RTK?

RTKangaMummy · 19/09/2005 13:45

oke doke

RTKangaMummy · 19/09/2005 13:48

here is the new thread

Jimjams · 19/09/2005 14:48

lynny I know - I PMSL. ds1 is at an SLD school as well!

Perhaps they thought yesterday was a bad day- we thought he did really well!

Davros · 19/09/2005 19:59

Didn't see it, out swimming with DD at that time. Just as well
Funnily enough, DS is "low functioning", non verbal, challenging behaviour etc but I don't have to hold his hand all the time, hardly ever in fact. I prob would in a tube stn though.

Fio2 · 19/09/2005 20:07

their life looked a peice of piss compared to mine

really really thought it wasnt reflective tbh, most probably edited it as not to upset viewers aswell maybe