Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Will My child have a "normal" life? This question wont leave me alone.

28 replies

MustBeTimeForWine · 08/11/2010 10:06

Firstly, I would like to say that I really don't want to offend anybody when I use the term "normal life". I do understand that many of the mums/dads who come on here are probably having a much tougher time of it than I am, but I would really appreciate some advice.

My dd is nearly 4 and due to start reception class in jan. Transistion has already begun. I think pre school have already labeled her as being on the Autistic spectrum, a milder form, but never the less they certainly have their concerns. It used to be a mixture of behaviour problems and social skills which concerned them. Now, I think it's more her social skills. For example, she can be over the top friendly. She will tend to introduce herself again and again and she can very rarely stay still. Also, she will tend to repeat things over and over, such as scripts from a tv show, but with no link as to why she is doing it.

Health visitor isn't sure what to make of her. Thinks she's improved a lot over the past weeks which she doesn't think she could do if she was on the spectrum. I think I disagree so I'm going to be asking for a referal.

I have done so much crying over the past week. Everytime I look at her, I feel so sad for her and so bad that I can't fix whatever it is that is wrong. Like I said at the beginning, I know that so many of you are going to understand this feeling and then some, but i'm right at the start of all this and I don't know where to get my strength from. I'm doing everything I can for her so it's not like i'm shying away from what needs to be done, but as soon as she goes to bed I just break down. This makes me feel even more pathetic.

I suppose as well as advice, I was hoping to hear some happy stories where children on the spectrum have managed to get there in the end. Just making some friends even, as my dd hasn't yet. Most children will just look at her like she's weird. It doesn't bother her, but it bothers me so much.

Thanks for reading and appologies for the length.

OP posts:
purplepidjin · 10/11/2010 17:45

I don't know if this'll help or not, but I'm quite pleased...

A few years ago, I had a keyboy dx with HFA. He was an absolute genius at certain subjects, extremely bright and academically able, but also struggled with verbal communication and as a result got extrememly frustrated and was highly aggressive. I knew him for a couple of years on and off, and saw a vast improvement, then he went off to pose-16 provision.

A few weeks ago, I saw someone the spitting image of him in a shop. I saw the same person today wearing the uniform of the local MS 6th Form. I don't know if it's definitely the same person (am debating emailing a mate who works at his post-16 place to find out) and wasn't sure if it would be too wierd for him if I spoke! I like to think it is, as the boy I knew was eminently capable of getting a first at uni, having a good career and a really truly nice lad who deserved to do well :)

Mustbetimeforwine · 12/11/2010 14:42

Thanks everyone. Sorry i've taken so long to reply, i've just been incredibly busy. Dd really poorly the last few days. Asthma seems to be taking over everything else at the moment. :(

I thankfully have read some really positive things on this thread. I was really hoping this would be the case. I don't think anyone has sugar coated the reality though, which has to be a good thing. Always better to be honest. To use a line than many mumsneters have used it just helps to know a lot more people than you think are going through the same thing as you. :)

Thank you.

OP posts:
Qadromm · 23/02/2022 22:23

Hi i need advice i have 26 month baby don.t respond her name and don.t talk just making sounds !

New posts on this thread. Refresh page