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Here you'll find advice from parents and teachers on special needs education.

Does anybody struggle to believe their child has Aspergers?

32 replies

TheStatueOfLiffey · 22/01/2009 16:41

A year ago I was told my son had GDDs as well as a severe speech delay. I knew about the speech delay obviously, but I was surprised that he was coming out a whole YEAR behind on other things.

A year has rumbled on and he's seeing an OT now too, who has made much of the fact that he can't jump and gets upset if he gets wet. He's still seeing the speech therapist and is finally beginning to use some words, although they are mostly car, tractor, train type words. Not really the usual, drink, more, up type 'first words'.

A statement is being prepared right now, I should have a copy mid feb, but the OT said to me some time ago 'in my very honest opinion I think we are looking at Asperger syndrome'.

I've answered all the questions as honestly as I can, but sometimes I feel they 'run with an idea' too much. LIke yes, he's interested in door handles and wheels and so on, but he's a little boy. He has had obessions, but he also likes new toys.. Although they also said that his play was impaired. That he has no imaginative play he just examines toys.

Some days I worry and some days I think, wtf? his play is impaired?

He does look me in the eye and he is affectionate although only on his terms. He likes to be with other children but he has no particular friends at his playschool that he goes to twice a week. They could be replaced by an entirely new set of chidren and I think he would hardly notice, but yet, he recognises me, his grandparents, his sister, some of his sister's friends....

What do you think? Am I burying my head in the sand? Or is there a possibility they are jsut wrong?

OP posts:
LazyWoman · 28/01/2009 11:47

Liffey - thanks for your comments - I would love to be lazy if I only had the time

Regarding all the appointments, just keep going & keep all the papers nicely filed! They build up to quite a pile over the years.

Don't be too discouraged if any of your son's test results seem to be really low - they could be quite different next time round.

Also, the best advice I can give you is just learn to concentrate on a few issues at a time and shelve the rest for the moment.

Have you heard of Cerebra? Are you claiming DLA?

www.cerebra.org.uk

They have an extensive free lending library, including software and sensory equipment. Also now have a purpose built & adapted holiday home for disabled children & their families (no charge for the week's stay but your application has to be approved first). In addition, they will provide help with things such as claiming for Disability Living Allowance etc. Well worth joining (free).

Bye for now

TheFirstLiffey · 28/01/2009 16:19

Thanks lazy, I have a big accordian file!

I;m in Ireland and I have a carer allowance of 280 euro a month, didn't think i would get it. I think the women who are in charge of deciding who gets the allowance liked the cut of my gate and knew I was a single mother. I feel lucky to have that allowance.

LazyWoman · 28/01/2009 19:53

Yeah Liffey - these benefits do seem as if they've been randomly allocated sometimes!
Anyway, keep going and don't forget to just have fun as well

Bye for now...

choccynutter · 14/04/2009 22:44

my son has autism which on same spectrum as asperges and reading what i jst did in ur post was like readin about him i think sumtimes we wear blinkers i did for a while but you do relise and get on with what u have to to help ur children good luck xxxx

nickschick · 14/04/2009 22:51

My ds1 (pfb to the extreme) was born after a v traumatic birth

He didnt speak til he was 4!!
he saw a S.T,I repeatedly told my gp i was worried he used to line his toys up just so and hated hated to get wet or dirty.....

At 4 he went to nursery....he spoke
hes tidy by nature
he hated to be dirty cos i hated it hes still at 15 a 'cleanteen' his footy nicknme is squeaky cos his boots are spotless....

Hes very vocal, popular and 'normal'and off to college to study 4 a levels in sept.

What is,is.
Dont worry and dont waste these days worrying over shit you cant stop.

Michaelah · 14/05/2009 22:04

Wow - that is such an interesting thread. I am just at the very early phases of all this (3.5 year old - speech disorder for a while, but therapists seem to be hinting of wider issues "ooh - he likes things that go round, does he?" "very distractible, isn't he?" etc) and I too oscillate between intense concern esp as to whether I need to be looking towards non-mainstream schooling, to thinking that he is just a little quirky and is so happy and jolly that there surely can't be much wrong.

Does anyone know if there is a guide to all the acronyms (ASD, GDD etc)?

crokky · 14/05/2009 22:24

TheStatueOfLiffey - your DS sounds quite like 2 of my brothers. They are in their late 20s now and they both got an Aspergers diagnosis (although not til they were in their late teens, because things were different back then). Anyway at 3.0, they each had just one word. Try not to worry about the diagnosis - if they diagnose Aspergers, it will mean that he will be able to get help. My brothers were not able to get help when they were young and they were picked on at school "bit wierd" etc. Anyway, reason I am telling you this is that knowing they have (it sounds like quite mild) Aspergers - as they grow up, they can learn behaviour that would come naturally to people who don't have Aspergers. Now, one of them is a (very good and very respected) teacher - nobody knows about this diagnosis apart from our immediate family and he has learnt behaviour enabling him to be considered "normal" by his colleagues and people that he meets. If you are doubting the diagnosis, it coudl mean that it is mild or it could mean that he doesn't have aspergers. Either way, you have the situation under control and can help him, so he will be fine! My other brother is in a professional job and just considered a bit eccentric by colleagues - again, nobody is aware of the diagnosis.

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