Alemci - We are currently going through the statementing process with DD again, but this time the school have suggested it, as based on their testng, she will need a reader, a scribe AND a prompt to do her GCSE's - and the outside company they bring in to DO those tests on every pupil in Y9 has raised an urgent query as to why the hell DD hasn't previously been statemented. Which might have something to do with the fact that despite me applying every 6 months since she was in Y2 - neither her prmary school SenCo OR the Secondary school SenCo would support the applcation untl an outside company expressed confusion as to why she wasn't statemented, and they believed it will be necessary for DD to get the most out of her last two years in school.
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DD also has Autism, and she is also partially deaf, she has mild epilepsy, she has GDD, she has hypermobility syndrome/ EDS type II, and she has two leaky heart valves that need replacing again in less than two years time by open heart surgery as they don't grow with her. All of which results in quite severe barriers to her learning and retaining the information she needs.
By the time DD is starting college, I will HAVE to be back at work somehow, despite my own epilepsy, as my HRP from my child benefit will run out, due to me working PT, and under the NI threshold, for quite a few years. She won't get ESA, as she will not get enough points to qualify, as each condition on their own isn't enough to meet the descriptors - but altogether, it causes her MASSIVE day-to-day issues. And as I will be back at work, albeit on NMW, I will still have to claim TC's for childcare for my younger dc, AND I will have to claim HB to help cover my rent. I therefore won't qualify for the additional help.
Without EMA, I will face a choice of feeding DD, or paying her bus fares to college. I won't be able to cover the extra costs, and despite being just over two years away, it IS keeping me awake at night, wondering just HOW I get DD to college when it is her ONLY chance of getting paid work. When it is affecting my sleep two years beforehand - I'd say it's quite a serious issue.
And YES, I have been put on a Welfare-to-work scheme in the past, after being made redundant in the past - but under the previous Government. It's only got WORSE now.