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Politics

Open letter to Mr Cameron and Mr Clegg

79 replies

MaimAndKilloki · 21/10/2010 20:57

(This is being posted tomorrow, do you think I'll hear a reply? Hmm)

Dear Mr Cameron and Mr Clegg,

I am writing to ask your advice. After being made redundant from two jobs in a row and finding low pay, low security temp work I found myself hit by a third stroke of bad luck.

I woke up one morning to extreme pain and the inability to move my spine. I tried to continue working while receiving treatment and undergoing tests, but due to my need for days off I was let go from temp work. This was in March 2009, I was 24 years old.

At this time I was living with my husband who has long term mental health problems on top of learning difficulties and Chronic Fatigue Syndrome (you may know it as ME), we'd planned all along for me to be earning and supporting him. Of course, when my back went wrong we found we were entirely reliant on Income Support, Incapacity Benefit and Housing Benefit.

In the time since then my health has not improved and I have been informed that, most likely, I will never regain full mobility. So I am now entirely at the mercy of the benefits system.

In an ideal world I would be snapped up for jobs, but due to the fluctuating nature of my disability I am not a reliable worker and need a lot of allowances made for me. In the current climate, out of the many unemployed applying for jobs, I am not a desirable employee.

So in the meantime I find myself with no control over my finances, relying on a country which I love and have previously paid into, to look after me while I am so vulnerable.

Currently my husband and I have to rent privately due to a lack of social housing. But our tenancy is due to end in February when our landlord intends to sell up. We are in a state of panic, looking around at the private rents available they are either priced beyond our means or unwilling to accept Housing Benefit tenants. Those that do, need us to provide a guarantor, which is difficult for us as my father is self employed (and struggling), my mother is unemployed, and my mother in law is retired. So many letting agents will not consider them for guarantors. So will only take us on if we can pay at least 6 months rent up front, which I'm sure you can appreciate isn't an option on our current income.

On top of this we hear that housing benefit will be reduced to match 30% of the rental market value, rather than the current 50%. Seeing as we are struggling now, we feel our chance of finding anywhere once it is reduced further is next to impossible. We are also aware that housing benefit will be reduced further for those on jobseeker's allowance after a set amount of time, although this wont affect us directly, it will mean landlords will be even less keen on taking on housing benefit tenants in case the tenants end up unable to pay the full rent. Which means they are less likely to take a chance on us.

You may think that if we cannot find anywhere to live by February then we can be helped by Social Housing, but we have been told that we will be considered voluntarily homeless (ie. much less likely to receive help) unless we match strict criteria. This criteria is; we must refuse to leave at the end of our tenancy, be taken to court and then removed by bailiffs. Unless we go through all of this we will be seen as having chosen to become homeless. As we will have no right to stay in the property beyond our contract we will lose the court case, and be forced to pay both our own and the landlord's court fees. Which I can't help feeling is an expensive and unnecessary way of putting off the inevitable. It is also hugely detrimental to our mental health.

Even if we do go through all of this, we know right now that many, many people are in our situation, and that with so many losing their jobs the waiting list for housing is astronomical, so there is no guarantee of a home at the end of it all anyway. It saddens us even more to know that so few new buildings will be available in the coming years.

Every day now is a day closer to us losing the roof over our heads, and we are scared. We feel forgotten, powerless and vulnerable.

So I am writing to ask, do you have anywhere for us to live?

OP posts:
expatinscotland · 23/10/2010 23:45

I've been there. We went through the homelessness process this time last year, yeah, great time of year! And, as is known here, my AND/PND is now diagnosed as chronic depression 2 years on from the last birth.

It was hell.

But there was no one to help but me - DH has severe learning disabilities.

Lame.

Like I said, SirBoob just found a landlord to take her and her son on and she is a lone parent on benefits and disabled, MaMo found someone and she was on her own with three kids, and a good friend of mine found someone earlier this month, again, she is on her own with three children and on benefits, so keep the faith it is possible!

MaimAndKilloki · 23/10/2010 23:53

I'm so sorry to hear that expat :(

You are right, I will try and stay positive - hard as it is right now. I don't dare give in to pessimism, that'd open the floodgates of depression and DH needs me.

Funny isn't it, I always thought that if I worked hard at school and in work, then nothing could go wrong. Recession and disability weren't things I considered ever happening.

OP posts:
expatinscotland · 23/10/2010 23:54

it was lame. now we just have crap neighbours to worry about. haahaahaa :o.

get in contact with Shelter, too. they can help!

MaimAndKilloki · 23/10/2010 23:57

I've heard about your neighbours, they sound like mine right now actually (so suppose that's one silver lining)

Do hope you'll get free of them one day.

OP posts:
expatinscotland · 24/10/2010 00:00

I screeched at Tweaker (that's my nickname for him, the tweaked up loser) the other night at 12.45AM and I sounded so crazy it scared other people :o.

I rang his buzzer because his damn bass was booming again, there it was, Thursday morning.

That son of a bitch.

I hope he goes the way of the others and we get someone with same respect for others and a love of quiet :o.

MaimAndKilloki · 24/10/2010 00:03

Shall keep my fingers crossed for you Grin

OP posts:
Xenia · 24/10/2010 09:36

Yes, stay positive and I recommend boots wax ear plugs for those who suffer from noise.

I suppose if we're being positive abotut higns if you're woken at 5am you can always get on the PC and do two hours writing. Just keep plugging away, every single day ensure you send material out and ideas and plans and put in hours of effort at it and hopefully something will pay off.

mrshess · 24/10/2010 10:24

Xenia are you a real person? I ask this as a lot of your posts come across as trying to pee people off when people are down.
Not everyone can be a writer like you state in nearly every post.

expatinscotland · 24/10/2010 11:00

Ear plugs are fab - I have many sets - but they don't help with bass, which vibrates.

MaimAndKilloki · 24/10/2010 11:29

Xenia At 5am I found that it was more constructive to go through our finances to try and work out if we can spare more money for rent thereby increasing our choices (we can't)

Also Xenia, I really really do appreciate your advice on writing, but my priority currently is housing rather than work. I think you can appreciate that I would need to earn quite a lot in order to afford to rent without needing to be on housing benefit. And it is housing benefit that is what is getting us turned down for so many places.

But I will look into what you suggested, so thank you.

OP posts:
Xenia · 24/10/2010 11:32

I'm not really a writer. I've just found it a way to make extra money over the years. But as the poster has moblity problems but can sit at a screen and type I was suggesting ways she might make money from doing the one thing she can do. As she wrote a very good well written first post without mistakes which is a very rare skill particularly for someone of 24 I thought this might be one way she can pull herself and her ill husband out of poverty.

Also if she told us the back issues we might even be able to point her to experts or advice which could cure her pain which would be the best result of all. Nothing is as bad as constant pain.

MaimAndKilloki · 24/10/2010 11:53

I'm actually 26 now, the pain started when I was 24.

I've had blood tests (all clear), x-rays (all clear) and MRI (shows signs of "early wear and tear" unsurprisingly). Been to a physio when it all started, and have just started seeing another physio now.

I've tried seeing a chiropractor, massage, even acupuncture.

The pain is directly between my shoulder blades, and feels like someone is pushing on the top of my head.

My current physio is going to do some posture work with me, but we don't know if it's posture causes back pain, or back pain causes posture. So this will either fix my back, or just help us narrow it down.

My GP and the surgical consultant both agreed that I will have this pain for life however, and that it will be a case of management. Which is quite a blow so young.

But I am looking into what work I can do now.

OP posts:
grannieonabike · 24/10/2010 11:54

Expat, Maim - Shelter were brilliant when we had a Council tax problem. The minute they got involved, it got sorted.

Xenia · 24/10/2010 12:32

It sounds as though you have tried lots of things. Try hypnosis just in case that works.

Did it come on after an accident or just suddenly start?
It sounds like a hard thing to sold ezinearticles.com/?What-Causes-Pain-Between-Shoulder-Blades?&id=2255046

chirocentre.co.uk/pain-between-shoulder-blades-relief/

Have you tried the obligation things like anti inflammatory drugs and lying on a different mattress or the floor.

MaimAndKilloki · 24/10/2010 12:39

It was sudden, woke up one morning just unable to move.

I'm on anti inflammatories and pain killers, I also have muscle relaxants.

Early on my MIL bought us an expensive mattress, which helps most of the time. I've also got daily exercises, and this fantastic back massager that you put on your chair. Grin

OP posts:
Xenia · 24/10/2010 12:47

They are such hard things to disgnose and then cure. I've never had back pain. I'm not sure why but lots of people do. i sit when I do sit with one foot on my thigh (sort of half lotus position only because it's comfortable for me) and I suspect humans used to sit on the floor much more and that how we now sit and stand could cause some back pain but who knows.

MaimAndKilloki · 24/10/2010 12:59

Seems likely doesn't it? I find that sitting position comfy too, it's quite supportive for your back.

I know a lifetime in retail and IT has done my back no favours, neither has the years at school spent carting huge great tomes around. Still, I didn't expect repercussions this early on in my life!

Really hope this bout of physio does help, I really miss working, it's absolutely soul destroying sitting around doing nothing, I've worked since I first could. I'm looking into courses to do at the moment, possibly thinking of teaching myself sign language so can help others. I never realised the stigma attached to disability before, so want to do something helpful.

OP posts:
Kaloki · 17/11/2010 14:34

Just so you know, I got a postcard today saying "we acknowledge your correspondence" and that it will be passed on to relevant departments.

MelinaM · 17/11/2010 15:47

You should absolutely send it, what have you got to lose?!!! They're all the bloody same as far as I'm concerned, once they get a sniff of power it's noses to the trough and an enormous u-turn on their manifesto promises! Cleggy being the perfect example! The revolution is well overdue me thinks, it certainly worked for the French! ...scuttles of to sharpen the guillotineGrin

pastyeater · 17/11/2010 16:17

Send it.

This government is shitting all over the sick and disabled.

Lots of love xxx

KalokiMallow · 14/12/2010 00:09

So I got a response finally, I was so thrilled Hmm

Basically it was 1 sentence saying how sorry they are we can't afford a roof over our head, then 2 pages worth of "but we need to save money".

Which is such a relief and help to me. Maybe DH and I can use an A4 sheet each to keep the rain off our heads Hmm

cinnamontoast · 16/12/2010 10:18

Don't give up! Write again and tell them they're being crap. And have you written to your local MP?

granted · 18/12/2010 08:08

So sorry, Kaloki - sounds truly appalling.

I know what you mean about waking up one morning with the pain - this happened to me last year, where the pain was so severe that I basically couldn't move at all, once lying down could not get up/turn over. Worst pain I've ever had. Mercifully, my pain went as mysteriously as it had arrived, after about 2 weeks - assume I must have pulled something.

Your situation sounds really dreadful.

Second advice on contacting Shelter, though know it's virtually impossible to get through as they're so stretched.

Also second Xenia's advice on finding work you can do from home. It may take time, but there is a huge amount out there - it just takes time to build it up. Obviously you don't have the luxury of time at the moment, but you might be surprised what is out there these days, once you've got your accommodation sorted. The growth of the internet means that there is now a hge amount out there accessible via the internet.

I don't think you mentioned what work you did before your back went? but you may well find it's perfectly possible to do the same job, but more flexibly, working from home. Or set up as a consultant and offer your services from home.

I work entirely from home at the moment, work built up over a decade since having kids, as we live too rurally and my hours were v limited due to childcare considerations.

Bless you - hope it all works out for you.

KalokiMallow · 20/12/2010 13:42

I worked in retail granted Confused Not too much chance to work from home there.

standupandbecounted · 20/12/2010 14:15

What sort of stuff can you do from home on the internet?