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Allergies - feeling blue - sorry long

41 replies

bobthebaby · 21/10/2003 06:36

My ds is bright red with eczema again, and its got me down. He is nearly eight months and has had eczema since his hormone rash went away at 6 weeeks.
I knew he had a really strong chance of getting it, so I exclusively breastfed him for 6 months before introducing solids. Then I was very careful about what I gave him. No wheat, no milk, no citrus, no tomatoes, no eggs, no nuts. Then I saw a specialist who told me to give up all the things that he reacted to at the skin prick tests. So no milk, eggs or peanuts for me either. But other things make him flare up too - banana, potato and carrots for him, artificial colourings and tomatoes in my food. Baby rice and avocado make him projectile vomit. All the things that make his outside sore make his insides sore too and he lies there writhing in agony. He doesn't even cuddle me anymore just uses me as a scratching post.
A trip to a house with a cat or feeding him a new food means a whole week with virtually no sleep for all 3 of us. He needs 2 baths a day and more when the weather is hot or dry (I live in a place with very little rain fall)I smear him with disgusting smelling ointments several times a day as he screams the house down and tugs and tears at himself. I don't feel I can leave him with anyone else, because nobody else realises the effect that not putting on a cream or not changing a nappy or having him in too many clothes has on the rest of my week.
Most days I love being his mum, but some days I just wish I didn't have to face it, and maybe on those days I am not so good about his baths and creams and then he gets worse and I feel guilty. Probiotics and Flax seed oil are really helping as is my exclusion diet, but one wrong move with the food and we are just back to square one. It would all be easier if I had more energy (lethargy probably caused by strict diet and 8 months of virtually no sleep).

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bobthebaby · 29/10/2003 20:47

Last night ds slept from 10.30 to 4.30. I was not so lucky, kept waking up dreaming I had mastitis from him sleeping so long. 6 hours is like a dream. I will remember this night fondly.

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misdee · 30/10/2003 08:07

nice one. i am always in shock on nights when i sleep most of the way thro. dd1 stayed at mieows last night, but dd2 has woken up with a high temp. lovely rosey cheeks.

Ghosty · 30/10/2003 09:12

Dear bobthebaby ...
I have only just found this thread and feel awful about last Monday now ... Up until then I had no idea about young bob's allergies and I sat there with my mouth hanging open didn't I? Just saying, "You poor thing ... how do you cope? Is kumara the ONLY thing you can feed him?" You must have wanted to deck me!!!
So, I am sending hugs to you ... and if you want to talk and scream or whatever then just go through contact a talker and I will e-mail you my phone number ...
Thinking of you .... {{{{}}}}
PS .. FWIW ... young bob was an absolute little munchkin and it makes me so mad to hear that people say totally crap things like 'is it catching?' ....

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bobthebaby · 30/10/2003 19:46

Hi Ghosty, I didn't want to deck you at all. It was the first time you had met us and I think that I brought the subject up by explaining why I couldn't be bothered to try and order any food. Actually I was quite impressed because you asked me how "I" cope rather than just concentrating on Bob. I didn't notice your mouth was hanging open. I had a great time, and it was good to be with people who realize that he sometimes screams because he's an 8 month old baby, not always because of his skin.

I looked after one of a friends twins yesterday while she took the other to hospital. This poor kid (6 months) looked very surprised to be taken in and out of clothes so many times depending on the temperature of the room. Just another thing I do that I hadn't realised all mum's don't do. Stopped myself applying cream to his microscopic rash on his cheek though!

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bobthebaby · 04/11/2003 02:35

Just met another mum at a baby session at the local library. Her first comment on meeting Bob was "what lovely blue eyes". Now that's someone I could be friends with. We chatted for half an hour and I didn't mention eczema once - absolute bliss.

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bobthebaby · 11/11/2003 07:54

So cross today. One of the mums at my coffee group asked me how long I intended to breastfeed for (I am the only one still going) and I said I wasn't moving to formula because of ds's allergies. Another mum (who has bottle fed pretty much all along) said "Oh, for goodness sake, formula isn't going to kill him". I just looked at her and said sadly "you know, it just might". Meanwhile it was a hot day and ds had had a change of clothes in front of everyone and they could see the state of him, fancy saying that to me!

I think banana has triggered this latest flare up - not really helped by the fact that Zyrtec syrup is flavoured with banana. I wish you could get medicines with no added flavour so you could disguise it yourself with something your child can eat.

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Podmog · 11/11/2003 08:00

Message withdrawn

bunny2 · 11/11/2003 11:24

Some people have no idea. A good frined offered ds crunchy nut cornflakes the other day. I looked her in the eye and said a bowl would kill him, she looked so shocked but it's the truth isnt it?! I hope your little boy gets over this flare-up quickly. Our ds has had a bout of eczema, he wet himself at pre-school and they dressed him in some spare clothes that must have been washed in biological powder(I usually take a change in for him but forgot that day). He was scratching within minutes and they called me at home to ask me to bring more clothes in. Unfortunately it had already triggered off a flare-up. It's an ongoing battle isnt it?

naayie · 11/11/2003 11:31

bobthebaby - some people have no idea, they think your exaggerating, my son has a severe egg allergy and asthma, some are really good about it, others look as if i'm making it up, even my mother in law still gets the cakes out and offers him one!!!

misdee · 11/11/2003 11:47

my dd is allegic to cats, my sister didnt chuck hers out the other day, and it set off an asthma attack.

bobthebaby · 11/11/2003 19:58

I've sent his paed an email with a picture of his latest flare up. Often when you get to the doctors its started to look better. We got the benefit from the NZ Government, I want to do something that will really benefit our lives with it, but so far its just going into a savings account while I decide what that is. Probably have to spend it on a new washing machine lol.

I have given my MIL a list of the foods I can eat (which will be the foods he can eat as he gets older)She is trying bless her, but always gets just the wrong thing, so she will buy the right make but the wrong flavour. She also has this habit of getting out stuff she had before our labelling laws changed last December, so they just say "flavouring".

When ds starts eating proper food as opposed to purees, I will go through her cupboard with red and green stickers so she knows what she can and can't give him. Anything new that she buys will have to be run past me first, even if she's bought it before, to get the sticker. Or she can take him to McDonalds, where they will tell you all the ingredients of everything. I never thought I would be hanging out to take my child to McDonalds!

Found out Wetwraps are not available on prescription here As his chest and back are the worst affected can I improvise with a small cotton t-shirt with a slightly larger one over it?)

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bunny2 · 11/11/2003 21:34

Bobthebaby, try the vest idea. It may wrok, it may not. All of us battling with our children's eczema know it is all trial and error. You should notice quickly whether or not it is making a difference (or making things worse).

We do McDonalds, cant believe it but ds loves it and it doesnt cause a flare-up. Go for it.

misdee · 11/11/2003 21:38

there is a new sysem of wet wraps available which are a series of garments. i'm going to be begging dd1 consultant on thurs for them. when i find out what they are called, i'll let u know. maybe u can put some of your ds money towards it.

bobthebaby · 11/11/2003 22:38

Okay so basically I put on the emollient, then the wet vest (how warm does the water have to be and how much do I wring it out?). Then I put the dry one over the top. Best to try it during the day first?

Ds only woke once during the night and fed like he was starving. The zyrtec is obviously masking the itch even if he does look terrible. I feel about 10 years younger having had a proper sleep.

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bunny2 · 12/11/2003 21:13

From what I remember, use lots of emollient (like spreading butter). The underneath garment layer should be dipped in hot water and squeezed out. Use water as hot as you can bear to put your hands in, the garment will get cold very quickly. I was advised to try at night only first of all but I suppose it is just personal choice. Good luck.

bobthebaby · 12/11/2003 23:42

Great news. I befriended a pharmacist - one of the old style ones that can do more than seperate up blister packs - who also had 2 kids with eczema. I gave him the recipe for diprobase - thanks robinw - and he compared it to the drugs that the NZ Government fund by the ingredients. He found one the same except for the preservative, and it turns out that is the cream that they have put the hydrocortisone in all along so I know ds will be fine with this different preservative. And the best bit is that it is FREE!

A different pharmacist was really nasty to me the other day, so I am glad I have found a nice one even if I do have to drive out of my way and pay to park.

Nice pharmacist also suggested flax seed oil for ds (which I was already doing) and cod liver oil or evening primrose for me.

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