Stop the Abolition of DLA

[Glitterknickaz]

The government are proposing to get rid of DLA in favour of PIP. full consultation here

Riven started a fantastic thread in Chat with the very pertinent point that this applies to everyone, that every one of us could be just one step from disability themselves.

There is NOTHING in the media about this. These proposals could mean poverty for the disabled and their families in this country. It could leave some in residential care completely isolated from their families and support networks through the removal of the mobility component.

My family has already been hit three times through the NHS, education and aiming high, via the cuts, if they now remove the money from our pockets we are going to be in a heat or eat situation.

Please MNHQ do something, as many are oblivious to these proposals and what they will mean, including those who themselves already claim DLA.

Adding my support

The changes are significant and will probably not be able to be implemented due to the extra assessment work and reviews needed it will cost more to implement the changes than to stick with the current system.
No one has thought through who is going to do the assessments. The non existent occupational therapists and social workers perhaps? Social workers are rushed off their feet with child safeguarding let alone trying to assess people who under current guidelines would qualify for an automatic payment. It is a lot of extra work.
Furthermore it reads as if those who are severely impaired for less than a year wont qualify- thus people after serious operations or chemotherapy for example- this is a major concern.

When are we going to see a consultation document on clawing money back from the bankers?

I am Mum to a 6 year old boy with complex and severe special needs plus 2 other children. i had to give up my career to care for him 24 hours a day and my husband can only work part time. If we lose our DLA we will be on the breadline. It's hard enough having to care 24 hours a day whilst grieving for the child you almost lost to meningitis, If I have to worry about food and clothing and heat too i will not survive.

Started a group on FB www.facebook.com/home.php?sk=group_134568016607731 feel free to join

Adding my name as well as a mum to a disabled child I think these proposed cuts are ludicrous

YY to the year bit; that is awful.

I am lucky that my boys are not as disabled as some on here although their needs are significant; those needs are different.

For us it's in part having 2 chidlren with sn that has disrupted it all- 2 sets of doing every review etc.

But also- because ds1 isn;t visibly disbaled but needs 24/7 the current system works well as it sees beyond that to the way he rpesents as a child rather than just his DX which can be rather mild in some.

The assessments will not see that.

It is assumed the same pool of assessorts will be used as with ESA where people with non visible disability has been hit REALLY hard- NAS have some info on their website iirc. Non professionals, certainly not SWs and the like.

I did suggest in my submission they might like to employ me mind as I am studying ASD- bet they won;t

NAS article

Add my support. Foolishly I thought that Mr Cameron would help those carers / disabled.

As the parent of a severely disabled child I'm going to stick my neck out here.

What's so great about DLA? The system's c**p. Nearly everyone I know has only got it on appeal - I even know identical twins where one was initially awarded high rate and one low! DLA doesn't begin to cover the costs of getting someone else to look after my child; allowing them to have a social life - allowing me to have a social life! It doesn't even cover the basic extra costs of having a disabled child.

I feel very afraid, because I don't think the Govt begin to understand the reality and costs of bringing up a disabled child. DLA's only the starting point. Then there's carers allowence, respite, direct payments, charity support etc. It's vitally important that the Govt understand how vital all those are to us too.

The Govt also need to understand that there's a barely contained flood gate of people barely coping who only need a slight push to put them over the edge and their child into care. The fear of those costs alone should be enought to make them sit up and do this properly.

Why are we fighting to keep DLA? Why aren't we fighting to make PIP a system that works?

Please, please, please complete the consultation.

katie because PIP comes with 20% cuts

And becuase I don;t give a damn what name it has but what they propose is awful: 20% cuts, longer qualifying period, deductions for adaptations etc you already have, assessors who know little visiting and deciding on the basis of 30 minute visits (how can youa sssess someone with say schoizophrenia in that time?), only two levels of care......

DLa has it's flaws but PIP as it stands will be worse

PETITION HERE

You need to register to sign it, but it only takes a moment.

Can everyone who supports this thread please sign it?

NB This is the same petition linked to by Mercedes excellent thread So now we've got headlines about disabilities lets talk about DLA.

Just wanted to make sure all here have seen it.

Petition signed.

Fio do you really want to know?

last I read on CA the Government said they didn't know what to do about CA but they didn;t think that £53 was very effective.

people voted for this???/

Outgoings £52 income £53 smiles (to paraphrase LOL)

Income sod all, outgoing £52 misery.

They said it didn;t help people avoid poverty

It helps people avoid worse poverty at least

there was a consensus by parliament (can;t remember exactly whcih group) that CA shouldf be £100 pw but that got dropped in cuts

So apparently as they cant do £100 £0 is better than £53?

And these people are educated?

And you know it works like this:

DLA claimant is refused DLA as is one fith of the disabled population of UK

They don;t get carers

They get signed up for JSA

Six months alter bod in JSA office decides they could do more to get work, signs them onto week of free labour thing

They cannot turn up as they have someone to care for

Their benefits all end immediately, becuase officially they don;t have anyone to care for

argh- and they call that a system?

Signed.

WRT Carers Allowance, how can the Government justify paying full time carers £53 per week for caring for a disabled/SN/ill child, when it costs around £15 an hour to have someone to come and help you at home/respite care?

Do any of the carers here do less than 24 hours in their day? I doubt it and if they do you can bet it's maybe only a few less.

Regardless of whether or not it's your child that you are caring for, you should have the same amount of money as anyone else would get paid.

No?

We care for our children because there is no-one else to do it. We want them at home with us. We want to know that they are well looked after, their meds are given on time, their feeding tube is clear and in place.

We want to know that they are fed, clean and safe and dry. Not sat in a soiled nappy or clothing for hours on end.

Or is it just me that has had bad experiences with hospital staff who are 'supposed' to be taking care of my son so that I can go and sleep for an hour or two?

We want to care for them because as parents, that's what you do.

So CA is massivley important, as is DLA.

If we didn't get these, I would have to try and find a suitable job (I have mobility issues and am classed as disabled also) but who would take care of my son?

My husband works full time. My father works, my mother has MS and they live miles away from us. My PIL are both retired but live over 2 hours drive away too.

I can't not fight.

Sorry, rant over

Signed.

CA proposals are a mess. I have sent IDS my list of what he should be doing but no response- (a lot of the charities are finding him that responsive apparently- one, I think a carer's one, went to see him and he never follwoed up at all)

I am trying to get work; I'm ignoring quite a few things in fact in that effort- such as the psoriasis that ahs scarred me quite significantly and for which I have yet to find a tiome when I can see a GP without large number of kids in tow

I cannot work any harder at trying to get abck on my feet

Bumping this to say have added to the stuff we did yesterday to include your campaign

Care For Carers Blog

If anybody wants me to add/change anything I will be around tonight

Link did't work for me Weasel