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See all MNHQ comments on this thread

Stop the Abolition of DLA

874 replies

Glitterknickaz · 16/01/2011 13:19

The government are proposing to get rid of DLA in favour of PIP. full consultation here

Riven started a fantastic thread in Chat with the very pertinent point that this applies to everyone, that every one of us could be just one step from disability themselves.

There is NOTHING in the media about this. These proposals could mean poverty for the disabled and their families in this country. It could leave some in residential care completely isolated from their families and support networks through the removal of the mobility component.

My family has already been hit three times through the NHS, education and aiming high, via the cuts, if they now remove the money from our pockets we are going to be in a heat or eat situation.

Please MNHQ do something, as many are oblivious to these proposals and what they will mean, including those who themselves already claim DLA.

OP posts:
Hossylass · 03/02/2011 12:25

I have just looked up the figures, and I am gobsmacked.

Seems that I am in a minority (again) as the figures May 2010:
3,157,300 recieve DLA of which 2,239,500 are on indefinate awards!

Of which some have 1,600,000+ have been on this without re-assessment for 10 years.

I am actually starting to wonder what the hell is going on here - I occasionally meet people who are on the highest rates and indefinate awards that are definately less disabled than me, but good manners and a sense of "Well I am not a doctor" and "lets not play disablility Top Trumps" stop me from thinking the worst of them.

Now I am not so bloody sure!

Maybe the government SHOULD satisfy its curiosity whether all these people are still at the same levels by assessing all those on indefinate or life-time awards, and maybe, just maybe, stop hassling me quite so often!

Actually its not the hassle that annoys me but the twisted outcomes that get me down. :(

Sp 30% of us are constantly re-assessed and 70% are left alone?
Please dont try and tell me that ALL that 70% have had no change in their condition over the years.

SO for once the DM has actually played it down.

Or is this just me being peevish? Grin

ThisIsANiceCage · 03/02/2011 12:35

Interesting, interesting. I missed where those figures come from, Hossylass, could you link?

So I wonder what the criteria are for being in the reassessed group vs non-reassessed group?

Hossylass · 03/02/2011 13:11

Dont know what the criteria are, but so far my awards have been 1 year (fair enough - I might have recovered) 3 years (great, recognises I have an on-going problem but there doesn't appear to be a solution in sight), and 2 years (eh?). The two year award was initially at a much reduced rate, but was restored to previous levels at a tribunal.

During that time I have had tests including a lumbar puncture, MRI etc, and treatment including privately, complimentary etc.
And I have been through all the available drugs that are affordable on the NHS.

I think I have explored every avenue for a cure, and cant get one. I have been assessed by Atos and the DWP to have the correct level of benefit.

There is no cure and not really many adaptations that will negate the disability to any noticable extent.

I would still be happy to have 3 year assessments, with a declaration every year that my condition remains the same.

As long as it was a fair and accurate assessment that is!

ThisIsANiceCage · 03/02/2011 14:54

You've hit the nail on the head, Hossylass.

I first went for medical assessments before all this drive to cut the numbers. The form-filling and trip to the centre were no fun at all, but you were confident that it was a neutral system, and that its objective was to accurately identify and support the sick and disabled.

What are the objectives of the new systems? Who benefits?

I don't want to rant about this, but I think the two primary objectives here are:

a) to provide a figleaf system, that allows the public to imagine the sick are being looked after without having to actually stump up (like insurance companies that make you feel secure but weasel out the moment you try to claim);

b) to create "opportunities for private enterprise" within the public sector. Ie, to let private companies get their trotters in the tax-trough. Both New Labour and the ConDems are ideological into this, and private companies will obviously pay or give cushy jobs to politicians lobby for this.

So a company which gets paid for doing assessments would be very happy if there were more assessments; they would also be happy to "fail" claimants if that made them popular with the people who award the contracts; and they would care not a fuck about the claimants, because their duty is to their shareholders. Good job no company actually behaves like that, eh? Hmm

Hossylass · 03/02/2011 15:10

Cage Grin

Post of the day award to you.

ThisIsANiceCage · 03/02/2011 15:25

Actually, I slight the politicians here. In the case of the NHS break-up, it's senior civil servants getting the rewards jobs. But I digress.

I do think there's a genuine debate to be had about who gets assessed, how often, and how.

But that debate cannot take place when the terms of reference are (a) and (b) in my previous post.

Hossylass · 03/02/2011 16:15

Sadly those are exactly the terms of referance. Sad

Greycoat · 03/02/2011 18:28

Dear Poppyknot and all

see Poopyknot's address for writing to Baroness Campbell. I have done so. She is superb and a very strong campaigner. See the following which was sent to me:

Copy of the extract from Baroness Campbell?s statement in the House of Lords on Monday 1 November 2010:

A government proposal (under the heading, ?Welfare Reform?) is to ?remove the mobility component of Disability Living Allowance (DLA) for people in residential care, where such costs are already met from public funds, saving £135m by 2014-15.?

In order to claim DLA, you must be under 65 at the time of the claim. The government estimates this cut will affect 58,000 disabled young people and working age adults.

My Lords, the proposal is seriously flawed for 4 reasons:

  1. It will have negative and costly effects on disabled people's health and well-being, their ability to develop social and community networks, and their capacity to move on from residential living
  2. It conflicts with the government's policies for personalisation, independent living and encouraging disabled people to gain or retain employment
  3. It is based on a misunderstanding of the purpose of modern residential care and the potential of the people living there.
  4. It is incompatible with the UN Convention on the Rights of Disabled People.

My Lords, I am sure we all agree that people living in care homes are full citizens. We should therefore expect and want them to exercise their human and civil rights, and contribute to civil society like everyone else. Residential care homes are not places to hide people away or deny them opportunities the rest of us take for granted - independence and choice, access to public life, education, and for those who can - the possibility of work. My Lords, residential care homes are not intended to be prisons. We all enjoy activities outside our homes. It should be no different for those living in residential care homes.

Since the CSR announcement on this DLA saving, disability organisations have been receiving alarmed calls from people, desperate at the prospect of losing this entitlement to hard-won independence. Last week RADAR heard from Patricia King. Her son and daughter-in-law are both disabled and live in residential care. Without the mobility component, they will no longer be able to visit the doctor, dentist, bank, church, library, shops, let alone relatives and friends. The proposed changes will remove over 45% of her son's total allowances and over 69% of his wife's. Neither the local authority nor the care home, are in a financial position to offer free transport as part of their service to the residents. Patricia King, rightly in my view, calls this a cruel cut. She says, 'Some politicians are accepting a 5% cut but would they accept a 45% or 69% cut to the money that buys them their personal freedoms?'

The DWP argues that ?the measure would bring care home residents into line with hospital in-patients, who lose access to the benefit on the same basis?. But the comparison is false. People of working age living in care homes are not in the same position as patients in hospital. Residential care is their home and the base from which they engage in education, training, work, leisure, travel, family and social contact. For many it is a stepping stone to living independently in the community.

Your Lordships know that care home residents must surrender almost all of their income to support the cost of their care. They are allowed to retain only about £22 a week for personal expenses. So a basic mobility scooter costing about £1,500 is out of reach without the DLA Mobility Component of £49.85 a week. Removing that component takes away over two-thirds of the care home resident's income. It makes Britain's most severely disabled people the group who lose most from the CSR - it literally removes their mobility! Would this House consider, even for a moment, denying me my electric wheelchair or the noble Lord, Lord Ashley, his scooter? I am sure my Noble Lords would be outraged and defend our right to contribute to the work of the House. I do not accept that the national finances are such that we should now deny people living in care homes the same rights.

To be clear, the DLA mobility component helps residents:
o to maintain contact with families and friends,
o to access volunteering,
o to participate in leisure and fitness activities, and
o to be active members of their local community.

Such activities promote physical and mental health and wellbeing. They help to sustain one's sense of identity, and prevent the loss of confidence and low morale often associated with depression. The proposed modest savings in DLA are likely to be outweighed by increased demands on the NHS, and costs linked to preventing severely disabled people joining the labour market or moving on to living independently. It makes neither moral nor financial sense.

My Lords, I am deeply concerned that this cut in spending was not subject to a disability equality and human rights impact assessment; or discussed with those of us who have had years of experience of advising governments on disability matters, or indeed, why the treasury failed to run it by its own expert department -the Office for Disability Issues (ODI). Could the Minister please explain why this budgetary cut was not subject to any form of analysis?

ThisIsANiceCage · 03/02/2011 18:45

Marvellous, Greycoat, thanks for sharing that.

kemeva · 03/02/2011 19:32

Hi Guys!

HILARY BENN MP REPLIED

Thought I update you on our campaign. Hilary Benn our MP replied to my son's letter (I wrote it in his name). We're also going to see him on Saturday in his Surgery and will ask him to raise a question in the Commons.

Here is the copy of his reply:

"Dear Adam

Thank you for your impassioned email. I very much agree with you, and the first thing I want to say is that if you need my help in any way then please do not hesitate to let me know.

On the Government's threat to the mobility component of DLA, you are absolutely right. I raised this recently in Parliament with the Rt Hon George Young MP. This is what I said:

?Moving on to another broken promise - namely, that those with the broadest shoulders would bear the greatest burden - may we have a debate on the plan to take the mobility component of disability living allowance away from people living in care homes? When the Prime Minister was asked about this last week, he said that;
"there should be a similar approach for people who are in hospital and for people who are in residential care homes". That reply shows exactly why the Prime Minister does not get it. The right comparison for people in care homes is not with those who are in hospital, who do not plan to live there, but with those living in their own homes, and they will continue to get help with their mobility. The Government will have to change their mind on that issue, just as they had to on school sport and are in the process of doing on prisoners voting. It is wrong, it is unfair and it hits those whose shoulders cannot be described as the broadest, and, when those people find out that their current support, which enables them to go to the shops, to church, or to see friends and family, is being taken by the Prime Minister, there will be outrage.? [Hansard, 12 January 2011].

I will continue to oppose these plans.

Best wishes

Rt Hon Hilary Benn MP"

Good luck to you all!

Amieesmum · 03/02/2011 19:44

Personal Independence payments for kids with disabilites? Pah what utter tosh!

You'd think David Cameron - After what he's been though - would be a little more supportive

Oh no wait! Hes a conservative! My bad!

(in in btw total support)

poppyknot · 03/02/2011 20:41

Thanks for those greycoat and kemeva (and Baroness Campbell and Hilary Benn!)

ThisIsANiceCage · 03/02/2011 22:49

OK, MN Towers have given us permission to quote from the many personal testimonies here about DLA, etc, when making submissions to the consultation process or writing to media, etc.

I asked:

"Various of us have been making submissions to the consultation process and to the media wherever the opportunity arises. There are lots of personal testimonies given on various threads, posted with the aim of showing what Disability Living Allowance actually means to people.
"I read these as an aide-memoire while writing to the media, but don't actually cite any. So what actually is your preferred protocol with respect to this?
"I understand that posts on Mumsnet are Mumsnet's copyright. Should I give a link and hope journalists follow it? Could I cite actual testimonies and refer journalists to you if they actually want to use quotes? Would you prefer that Mumsnet wasn't mentioned at all?"

And lovely Helen MN says:
"Do please feel free to use quotes from Mumsnet in your submissions. You won't be breaching our copyright - and even if you were, we wouldn't mind in this case!"

I have prepared a quick ref sheet of "what DLA means to me" extracts from this thread, to save trawling though - if anybody wants it for campaigning, please PM me with an email address.

Hossylass · 03/02/2011 23:04

Thanks fo rthe heads up about Baroness Campbell, I have two letters on my table to be posted tomorrow - one to Maria Miller as a response to her Ministerial Forward on reform of DLA, and a copy to Baroness Campbell to make sure that MM {cough, cough} gets hers.
She will get it, its going recorded delivery.
But just in case she forgets about it...

poppyknot · 04/02/2011 10:00

Friday bump.

Intersting Guardian article

here

EDCMcampaign · 04/02/2011 15:37

Hi mumsnetters! You might might be interested in Every Disabled Child Matters (EDCM's) new campaign about DLA...

EDCM is writing to the Government highlighting our concerns over the proposed reforms to Disability Living Allowance (DLA). We're asking supporters to email their MP and the DLA Consultation team raising concerns on how the proposed reforms to DLA may impact on disabled children and their families.

You can take action here - thanks!

judyblueeyes3 · 04/02/2011 17:22

Thisisanicecage -

Had a thought about your campaigning with the media - I'm not well enough to do it myself right now - The Radio 4 programme Face the Facts presented by John Waite would be a really good one to get onto. He is a serious journalist who is not afraid to ask difficult questions - heard one last week about the press misrepresenting facts about muslims in britain - hugely skewed statistics and lies being put out by papers...hmmm sounds familiar!

Anyway here's some info -
Face the Facts, John Waite
Investigative series looking at consumer and social stories from the UK

www.bbc.co.uk/radio4/features/face-the-facts/contact/

Greycoat · 04/02/2011 20:07

Hi all
Kemeva thank you so much for info re Hilary Benn. Does the PM really not know the difference between a hospital patient and someone who lives in a home where they are cared for and can go out when they need to? How can you be a Prime Minister and be so unaware (ignorant) of the needs of the citizens you serve? I am disgusted.

judyblueeyes3 · 04/02/2011 20:13

From The Guardian Society daily 04.02.11

Clare Horton

? Work and pensions minister Maria Miller is taking part in an online Q&A on disability living allowance with my colleagues on the Guardian's Money site next Wednesday afternoon. The thread will go live later today. Meanwhile, the Mail and the Sun have continued their toxic reporting of DLA figures. The Where's the Benefit blog accuses the Mail of "disablist harrassment", while the Broken Of Britain has submitted a complaint to the Press Complaints Commission.

judyblueeyes3 · 04/02/2011 20:27

Here's the link to the page where you can post your questions for Maria Miller on Wednesday -

www.guardian.co.uk/money/blog/2011/feb/04/disability-allowance-questions-minister-maria-miller?CMP=twt_gu

poppyknot · 04/02/2011 20:41

Thanks for this judy, although I can't come up with a lucid question yet.........

Hossylass · 05/02/2011 00:23

Ms Miller, can you tell me how many times you, and representatives of your department have met with Unum Provident or their representatives, subsidiaries and partners in the last year?

Could you also tell me how many times representatives of the DWP have met with Unum, or any of its associated representatives?

Can you tell me how often your expenses have been paid to meet with this company, and how often you have had expenses in kind in the form of meals, drinks and accomodation?

Can you also tell the voting public why you chose to associate with a company that in the USA is "outlawed" and discredited in many states because of its treatment of disabled claiments regarding their health insurance policies, and has also been discredited in New Zealand?

Can you also explain to the voting public the association between Atos and Unum.

And finally, can you explain why much of the research behind the government proposals for the reform of DLA was carried out by Unum sponsored organisations such as the Cardiff Unum Research unit?

I eagerly await your responses.

Wink
kemeva · 05/02/2011 12:42

Hmm. Thanks Hossylass for your questions throwing light on a dark deal! I will do my own reserach on Unum indeed. Have you thought contacting Private Eye, they are very good in investigative journalism?

ThisIsANiceCage · 05/02/2011 12:53

Benefits and Work website has a lot on Unum. They were even interviewed for a TV news segment a few years ago, iirc, but I think the segment was never aired.