@S1234P
The group for TTTS is well worth asking any question on, and joining because you have ID twins, its to prevent others from taking missteps in ID pregnancies not just a post experiencing TTTs forum.
people can be flippant and say everyone knows about TtTS, my experience wasn’t that, many midwife’s didn’t, a scanner minimised it, a consultant didn’t spot it. I knew but was dismissed when I had warning signs like a belly that became rock hard from fluid, so yes people might know, but it’s a 1 in 4 chance. So you can know but be under informed about what you should expect monitoring wise in terms of the NIcE guidelines, so thanks for the dismissive comment I didn’t intend distress, I intend to inform, information is key not something to be silenced or Dismissed as ‘this is a happy forum where we don’t want people to mention the stats or their experience.
that is your opinion, I hope it all goes so well, but for the large percentage of people who have an issue in ID pregnancy, I’d rather put first hand experience and a warning out there than unicorn dust.
I found a lot of my ‘is this?’ Questions were met with ‘probably because you’re carrying twins.’ Dismissive answers not based on a quick check that could have been done.
so be aware when your asking ‘is this??’ You’re worried and wanting an answer that is based on fact - like the consultant who specialises in ID twins measuring your belly then scanning you. I was actually saying ‘I’m concerned about’ so be your own advocate, mothers always know best. My sister is a GP and says rightly don’t sleep on a worry when pregnant, go in get checked.
if someone is dismissive it could be their issue that day with something else, not that you have raised a fear, you just raised it a person who might not know the answer so chooses not to triple check just to keep things moving. The majority of NHS people to do with ID twin pregnancies are amazing but you know, you just know, when you’ve got one of those checking your babies. Don’t ignore when small things like - the person who scans you and doesn’t correct how your name is spelt wrong when you point it out - that person doesn’t care enough. Run from those. I wish I had.
The greatest risk of developing TTTS is in monochorionicity, and it is more common in MCDA twins than MCMA twin gestations
Different types of twinsFor medical purposes, there are 3 types of twins. These apply to triplets too, although a triplet pregnancy will be more complex than a twin one.
The 3 types are:
- dichorionic diamniotic (DCDA) twins – each has their own separate placenta and separate sac
- monochorionic diamniotic (MCDA) twins – share a single placenta but have their own separate sacs
- monochorionic monoamniotic (MCMA) twins – share both a placenta and a sac – this is a much rarer type of pregnancy
All non-identical twins are DCDA.
Most identical twins are MCDA, but some will be DCDA. Very rarely identical twins can be MCMA