Hi everyone,
I wanted to share my story in the hopes that it might help someone who has just been diagnosed. I found out I was pregnant at the end of March and everything seemed fine, not particularly nauseous, with classic pregnancy symptoms. Only unusual thing was I got my linea nigra at about 7 weeks. At 10 and a half weeks I had a bit of brown blood when I wiped, but it freaked me enough to book a private scan. Unfortunately, at the scan, there was nothing in my womb except for what the woman doing it described as 'cystic spaces'. I was referred to my hospital where they took my bloods and scanned again and said it was probably a missed miscarriage. The next day however, the sonographer called to say my Hcg blood level was very high, at 108,500, so I'd probably had a molar pregnancy. I had never heard of it, but when I googled it, of course all I saw was the word 'cancer.' I panicked. We went in again on Sunday and an oncologist scanned me again, and said it looked likely I had had a complete molar pregnancy. I was booked in for an ERPC on the Tuesday, two days later. From there I had to wait weeks for the official diagnosis to come, which was truly excruciating. However, once it did, I was immediately referred to Charing Cross hospital, who have taken amazing care of me. I had to have my bloods taken every two weeks, and send that along with my urine to Charing Cross, and call up for my results two or three days later. It was unfortunate that every time I needed my bloods I had to go back to the EGU where I had my original diagnosis, which was obviously very upsetting. My results took longer than 8 weeks to come down, but they were down from 108,500 to 65 by the time I got my diagnosis 5 weeks after my ERPC. They were very slow at a certain point, only coming down by 5 or so each time, but luckily I got my period back in 6 weeks, and it regulated very quickly, which seemed a good sign. I got the news that my results were back to normal (under 25 for urine and under 5 for blood) on the 11th of August, the day before my birthday -- what a birthday present!
Since then, I have been trying to heal, and to come to terms with this. This was my first ever pregnancy, and a much wanted one, so I was of course so sad. I will now be observed with monthly pee tests until February -- had my first test in September which was normal, and about to do my second. I've struggled with accepting all this, accepting the reality of it all. I've had wonderful friends around me, but no one had ever heard of this before, so I do feel very much like the odd one out. Lots of my friends already have children, and are now having or have had their second, which is tough. Currently have two very good friends who are pregnant which makes this extra hard.
But I wanted to try and write something that might bring some comfort to someone who has been recently diagnosed. It's a tough thing to go through, probably the worst thing in my adult life, but you will feel better, and it's more likely than not that your HCG will come down.
Sending love to anyone who is going through this, or getting over the aftermath.