Fiancee has brain tumour- surgery tomorrow

[Love0910]

I always read Mumsnet because I think it is really great this connection and support you all give each other.
A while ago I posted about how to deal with not having kids, and said my fiancee has Multiple Sclerosis.
It turns out that she was wrongly diagnosed. And a new doctor found out a Brain Tumor. It has been a lot to deal with.
Tomorrow (06/07) she will have a surgery to remove the tumor. Which was already told that can't be totally removed. And even after surgery she has a life expectancy of maybe 5 years.
I am really going crazy now. They put her to sleep already so the brain can rest.
It is all so uncertain. She can be in coma. Be in a vegetative state. Speechless. Lose movements. Lose memories.
My anxiety is over the top. I can't stop crying. I am so afraid. Have been praying for days. She prayed all day.
I think I am just seeking for some support and prayers for her.

Glad she's doing ok. It's a huge trauma for everyone. My brother had a recurring brain tumour/tumours and he lived with them for twenty years, despite his prognosis is being far worse. He had Von Hippel Lindau, which is rare. He was also originally misdiagnosed, as just a drunk hungover student, until he collapsed in a telephone box on the phone to my mum.

What I guess I'm saying is the reality can be better than the prognosis. It did get him in the end, but he had amazing years on the way, with sporadic good health where he could work, write, travel and pursue interests and passions.

@LadyGrey66
Hi!
Sorry I went missing
After two weeks in hospital she finally got out. Although, she is in a home care right now and not home with me.
She is doing much better with the memory. Still things missing and sometimes has blackouts so can't remember short things.
Thank you for your support!

@theotherfossilsister
Sorry to hear about your brother. But glad he managed for so long.
I have been reading stories about people with AA3 and I found someone who lived 28 years!
I try to encourage her and the stories of survivors gives her a big push to not give.
It is going to be a hard way though. Radiation for 6 weeks, chemo injections for 6 weeks and chemo pills for one year.
It's better when you have family around to give you a reason to live, but unfortunately it is just me and her. Tried contact with her father but he absolutely hates me because of my country and for us being a homosexual couple. It is so sad seeing that a father is capable of abandoning a daughter in such hard situation.

I am so so sorry to hear about your wife. You must be going through such a tough time. my heart goes out to you all and I hope she recovers as best she can.

I just came across your post as I saw it underneath mine. My partner was rushed to hospital with stroke symptoms 6 weeks ago.They found a large tumour lesion on hes brain and are saying they think its multiple sclerosis but is very large like a tumour and has grown in 6 weeks since hes last MRI which is worrying. They are saying 10% chance of a tumour at the moment and 90 multiple sclerosis but consuded as to why its grown after being given steroids. Hes lumbar puncture come back inflammation too, did your wife get this?

Please may I ask is this what happened with your wife ? From your post it sounded similar. Did she have certain symptoms and how long was it for them to pick it up? @Love0910 I totally understand if you dont want to say was just curious as I have been worrying about my partner incase they have it wrong and have just seen this post under mine !

@S1987x

My fiancée had double visions, was falling a lot and had seizures. She was then diagnosed with MS July/2019. She had the lumbar puncture inflammation too. Stayed in hospital 3x because she was with the lesions activated.
Did the whole treatment for MS.
What happened different was that she started having "blackouts". Repeating things one minute later. This shouldn't be MS, but they still ruled it as a side effect.
March she was in hospital with Corona. One day she had increased intracranial pressure. So that's what made them to find out the tumour. It is on her left frontal lobe.

Our mistake was that we didn't seek for a second opinion. So I highly recommend you to do that.

I wish all the best for you and your husband. Don't freak out yet. Things doesn't work properly when you are desperate.

You mentioned that he had an MRI. I don't know what is the difference, but the doctor here said that she was wrong diagnoses because they rely only on the MRI and they should also have had a CT Scan.
MS is not an easy thing to be diagnosed, it needs a lot of informations to close this diagnose. We have been in two countries (England and Germany), and England was where she was diagnosed and the country that least asked for tests. We were even advised to sue the doctor because he didn't read properly the images.