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Everybody knows but him....

30 replies

Annarose2014 · 18/02/2015 22:39

Last week my Dad was diagnosed with a brain tumour. Its been a terrible shock as we had no warning. Horrific.

He's been told that the radiation will hopefully repress his (very) recent symptoms. He's also been told that it can't be fully eradicated, so he'll have radiation and "after that, we'll take it from there".

However he has not been told that it is the most agressive form, that after the radiation it will be purely palliative care, and that he'll be dead by summer. Even typing those words is unreal......

I suspect the oncologist is doing a softly softly approach and does not have these conversations until after treatment is exhausted. So I'm presuming (??) that he'll have the radiation, he'll have temporary repreive, then he'll start to get sinister symptoms and THEN the news will be broken that its palliative. I guess?

Which I have no problem with, as he'll be distraught and it would be appalling for him to be told the full truth within a week of all this starting. He is a bit fragile as a person. He would turn his face to the wall. Talk of suicide, etc.

But in the last week all the extended family have rallied around and have visited him in hospital and have figured out enough on their own so that we basically had to admit the prognosis or flat out lie to their faces, which seemed pointless given how soon he's going to be gone.

So now we're in this grim phase where everyone knows but him.

It feels all wrong but they really had figured out it was very advanced, and he really shouldn't know yet based on his nervous emotional personality. Therefore I'm not sure how else things could have fallen.

Does anyone have any experience of this in their own cases? I'm devastated and I feel this "secret" is just adding to the torture.

OP posts:
Auburnsparkle · 24/02/2015 16:18

It is so difficult. You don't know if it is the illness or the treatment giving him the symptoms do you. It is impossible for you. Would it be possible for you to speak to the doctor - ask their advice on how to handle it. You need some support too.

Annarose2014 · 24/02/2015 16:31

He's on Xanax but of course thinks he doesn't need it. He thinks antidepressants turn you into a zombie despite me telling him repeatedly I was on them in the past and had a very positive experience. He seems to think I just got lucky.

His mind is like a loop, obsessing about things. Trouble is, they're all negative things. He's basically bitching 24/7 when not going on nostalgically about how great he was at home. How the radiation has destroyed him. Oh it's all the radiations fault - couldn't possibly be oh I don't know, your BRAVO TUMOUR!

I waver wildly between wanting to strangle him and wanting to sob all over his lovely old face. Which of course is the one thing I can't do. Poker face at all times so not to set him off again.

OP posts:
CarbeDiem · 25/02/2015 11:38

I'm so sorry the weekend was difficult and yes it does sound like torture :(
I think speaking with the Dr is a good idea - maybe they will speak to him.
We're in a different situation in that my mum is fully aware of what's happening (she's only 54 so no surprise) and it's still so difficult.
My heart goes out to you and your dad XX

Annarose2014 · 25/02/2015 15:10

Thanks so much, I just needed to vent a bit. Another family member is visiting him today so I can take a break as I have a small baby. Your poor Mum.... Flowers

OP posts:
CarbeDiem · 25/02/2015 15:52

Good Anna You do need a break. Try to take care of yourself too although I do need to remember that myself at times, so it's way easier said than done :)
My mum had her appt this morning - It is large, embedded inside of her brain but IS operable. She's having surgery asap - is currently waiting at home on standby, bless her.

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