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So, I am going to be a stem cell donor...

48 replies

LinesThatICouldntChange · 17/06/2014 21:44

My brother was diagnosed with lymphoblastic lymphoma recently. He is lined up for a stem cell transplant; I had a blood test a few weeks ago to see if I am a match... Well I've had an email through and I'm a full match! I feel excited but a little scared. Is there anyone who's been involved in a stem cell transplant (either as donor or recipient) who I can bounce any questions off?
I've no idea about time scales yet; my brother is currently undergoing his second round of chemo.
Feels a bit unreal... I guess this is potentially curative so it's incredibly humbling to know that just by some flukey permutation of proteins in my blood, I might be part of this.

OP posts:
DashingRedhead · 27/09/2014 10:31

You're absolutely right. Awareness is so important. One of my brothers said to me quite early on 'why didn't I know about this? I want to be able to help'. I'm actually a little bit afraid of how much attention we've invited through the appeal, but on the other hand, if it saves one single life and gets people signed up then it's all worth it.

I think of all you donors as superheroes, with so much admiration.

LinesThatICouldntChange · 03/10/2014 17:32

One week until I start my injections! It's happening!
Woo hoo, bugger off cancer cells, my stem cells are coming to get you

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QOD · 05/10/2014 01:42

Yahoo!!!!!

LinesThatICouldntChange · 10/10/2014 20:45

Back to the hospital today for the first injection to prime my stem cells. Have brought home a large carrier bag of syringes and drugs!! - my kit for the daily injections for the next few days. Have wimped out of injecting myself and the district nurse will come and do them instead! Feeling a bit achey in my back now, but nothing too bad.. Partly due to having had a very full on day in London I expect. Soak in the bath and bed for me.

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Littlefish · 10/10/2014 20:58

I think that what you're doing is both wonderful and scary. How amazing to be able to help your brother in a possibly life altering way.

A soak in the bath sounds like a very good idea.

Good luck with your injections.

LinesThatICouldntChange · 12/10/2014 17:49

All going well... Had a lovely district nurse pop round to do yesterday and today's injections. Apart from feeling a bit more tired than usual, and mild backache, it's all been fine. I've had 2 injections into my belly each morning for the last 3 days and I can honestly say the thought of it was scary but the reality has been a breeze...I hardly felt a thing!
Am now slightly anxious that because I'm feeling pretty much ok, is the drug working? Are my stem cells mobilising? Should I be feeling worse than this? Someone come and hit me over the head and tell me not to be bloody ridiculous!!

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Littlefish · 12/10/2014 19:27

It's completely normal to feel anxious, I'm sure. I have no idea how you are supposed to be feeling, health-wise. Could you give the transplant team a ring tomorrow? I'm sure the drugs are doing exactly what they are supposed to be doing, and am so glad that the injections haven't been as bad as you feared.

LinesThatICouldntChange · 14/10/2014 15:14

I'm donating as I type this! It's been a long day on the machine but I'm now on my last half hour! I can see my healthy stem cells collecting in the bag. :)

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Littlefish · 14/10/2014 18:55

You fantastic woman! I'll be keeping everything crossed that the transplant goes well.

Northernlurker · 14/10/2014 19:05

Go stem cells, go!!

Well done OP Smile

theclockticksslowly · 15/10/2014 02:49

Well done! Such a fabulous thing you're doing! Thinking of you, your brother and whole family!

goodasitgets · 15/10/2014 03:26

Well done Smile
This thread made me register and I got my card through today to say I'm a registered stem cell donor Grin

HattieFranks · 15/10/2014 03:41

Fantastic! I love the mnetting whilst donating, modern technology rules! Well done for doing something so fantastic, your DB must be so proud of you and immensely grateful Smile

LinesThatICouldntChange · 15/10/2014 09:00

Thank you all for your kind words. I'm so so pleased that this thread (and others such as Biscuits') are inspiring people to sign up to donor registers. It's something I honestly hadn't given any thought to until my db got ill, so it's been a steep learning curve for me. Stem cell technology is going to get bigger and bigger, so it's vital that the message gets out there.

So- the process itself. Tbh, although I felt anxious at times, the reality always turned out to be ok! I worried about having the injections in my belly (fine,) I worried about the process itself - ok, there's a momentary scratch when the needles go in but then you don't feel a thing. And when else would you have an excuse to spend 6 hours sitting down with nothing to do but surf the Internet and watch catch up TV Grin As a donor I had a nurse available to me all day, to open my sandwiches, pour me a drink, chat if I got bored, but ready to disappear off when I was occupied.
I was on a very high dose of the drugs which stimulate stem cell growth in the four days before donation, and even on this level I only got mild backache from fri- sun. It did get worse on Monday night, when a headache kicked in, BUT all of this is short lived and once the injections stop, you just get back to normal.

So, all in all it's less that a week out of my life which has the potential to give someone else YEARS of their life.

Reading the threads by biscuitsandbandages, dashingredhead, and posts from blondepip and many others makes me feel very grateful to have had this opportunity.

And just imagine if it was your child who needed a match... We would all move heaven and earth for it to happen.

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QOD · 17/10/2014 19:34

Utterly fab, I'm on the register!

BananaToast · 17/10/2014 19:45

You're doing an amazing thing and I hope it leads to a good outcome for your brother. I'm on the Anthony Nolan register and hope one day I can do the same for someone. Is this the only place I need to be registered or is there anything else to sign up to?

LinesThatICouldntChange · 17/10/2014 22:41

BananaToast- the Delete Blood Cancer donor register has a considerably higher upper age limit so that's a good one to sign up with too.
Keep spreading the word ladies... If I can do this (I hate needles!) then anyone can Smile

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LinesThatICouldntChange · 23/10/2014 19:27

My db's leucocytes (sp?) are increasing. When he gets to 20% of normal he should be able to come home Smile

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AutomaticShoes · 23/10/2014 20:17

Fingers crossed for your brother. Your story has just made me register with Delete Blood Cancer, thank you x

LinesThatICouldntChange · 28/10/2014 23:26

My db has come home today! Two weeks since the transplant and his bloods are good enough to get home Smile

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OrangeyTulips · 28/10/2014 23:32

well done Lines Smile . You are smashing! Hope db doing well.

ophiotaurus · 28/10/2014 23:43

Just read through this that's fantastic news. You did an amazing thing for your brother. So glad it has gone well.

Littlefish · 29/10/2014 09:53

What fantastic news. I hope he goes from strength to strength now he's home.

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