This case has had me in tears. Not sure if this is the right place exactly but it's close to home for me and it feels right.
We lost my Dad to cancer last year. He spent a few weeks in a hospice and was looked after amazingly. As we neared the end my Darling Dad became distressed when conscious, kept asking to go home, very upset, awful to watch. Due to the mixture of drugs and a brain tumor he wasn't awake much, but when he was it was awful. Seeing my Dad cry to go home, to be allowed to die in the first house he and my Mother shared, where he raised his children and surrounded by us all was heartbreaking. The level of care he needed would be very difficult at home.
Eventually it was arranged, once he was home he was calm. In immense pain and massively drugged, but in his moments of lucidity he just repeated "I'm home" and "I love you." I cannot say how much it meant to us to have him there, for us and for him. It was an awful, undignified death, I see his last breath and watch him slip away most days as I have trouble coming to terms with it and remember it every day. The one thing that gets me through is that in the end, he had it his way. He was home. The one thing we could control in the whole sorry mess of it all.
Tony Nicklinson's fight is one I cannot believe he is not winning. To be lucid and aware, 24/7 and to not be given the chance to die at home surrounded by family grieves me greatly. To be trapped in a world of having such little control over yourself, to be unable to help yourself must be hell. To know he could have another 20 years must be torture for him and his family.
I cannot believe in this world of medicine, law and safeguarding we cannot find a way to let people like Tony do as they wish in their final moments. The photo his family have released of him finding out the news says more to me than any medical or legal opinion.
Sorry if that was long but I needed to get this out and this felt the most suitable place.