"I find this subject hard I dont understand how these families get away scot free... why do these kids deserve more than any other and why can these parents not work termtime as others have to."
That is incredibly short-sighted, loving. These children don't 'struggle with life as much as your DS does.' IF a parent gets carer's allowance (a whole £58 per week) then their child has been awarded at least mid-rate care component of DLA. This means that the child must:
"...satisfy one of the following conditions:
need frequent attention throughout the day in connection with your bodily functions.
need continual supervision throughout the day to avoid substantial danger to you or others.
need prolonged or repeated attention at night in connection with your bodily functions.
need another person to be awake at night for a prolonged period or at frequent intervals to watch over you in order to avoid substantial danger to you or others.
For the disability test for the highest rate DLA care component you must satisfy either of the following:
have one of the day needs and one of the night needs shown in the middle rate conditions.
you are terminally ill.
Children must satisfy one of the above tests but, in addition, their care, supervision or watching-over needs must also be greater than those of a child of the same age who is in normal physical and mental health."
The 'test' for children is more stringent than for adults.
DD1 is 6.4. I can't leave her unattended. At all. Or rather, I can, but if I do then there will be consequences. Even 5 minutes to go and brush my teeth this morning resulted in a whole bottle of washing up liquid being emptied into the sink because she 'wanted to make bubbles'.
What job do you think I could get? I have to be at home until 8.40 am because DD1's school transport picks her up from the house. I have to be home by 3.10pm because DD1's school transport drops her off shortly after. I have to be available to take her to the paediatrician, orthotics, visits from the learning disabilities nurse, social worker, etc. She has been ill on and off since January. No rhyme or reason, but ok for a week or two, then ill, then another virus, etc.
Despite DD1 being a danger to herself and her sisters when she can't cope with the busyness of home life, and us getting a care package from SS, DH has had to take a part-time job. Because, during term time, we get 4 hours SS support, 6 hours KIDS and 3 hours Homestart each week. Except that KIDS are only able to offer 3 hours now, because their funding is cut.
The trouble is, that KIDS all but disappears in the holidays, so we suddenly have a very frustrated little girl, who can't understand why her routine has been changed, and we have her home for an extra 35 hours per week, yet our care package drops to 7 hours per week (the 4 hours SS support and the 3 hours Homestart).
So, DH had to take a job that pays under £11k pa., but allows him to compres his hours in the holiday to help look after DD1.