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Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"

306 replies

JuliaMumsnet · 21/07/2021 15:01

For Birth Trauma Awareness Week, Jen Hall from the MASIC foundation, which supports women who have suffered serious injuries during childbirth, writes about her experience of childbirth and the MASIC's Foundation latest findings:

"When I gave birth back in 2013 I had no idea what lay ahead of me. I’m not talking about the sleepless nights, breastfeeding battles, or any of the other aspects of new motherhood that are widely talked about. What I had to cope with alongside new motherhood is something that is rarely spoken about - yet is a major trauma for the thousands of women affected each year.

Severe birth injuries, or third- and fourth-degree tears, are injuries that extend from the vagina into the anal sphincter and are a leading cause of bowel incontinence in women - alongside pelvic floor dysfunction, pelvic organ prolapse, nerve damage and impaired sexual function.

My birth injury was caused by being left to push for three hours, causing a traction injury to the pudendal nerve, followed by two failed attempts with the ventouse and a brutal forceps delivery where my baby’s head and body were delivered in one contraction. Long term it has left me with many of the symptoms listed above. I’m a shell of the person I was, my confidence has been deeply affected, and I no longer feel like a woman who has control of her body.

My experience of motherhood was deeply affected by the injuries I sustained. I didn’t walk into hospital at 33 years of age to have my baby and expect to come out unable to run for the rest of my life or to carry out the most basic of bodily functions.

At The MASIC Foundation we carried out a survey at the beginning of the year to try and assess exactly what impact sustaining a severe birth injury can have on your experience of motherhood. We knew women would find this difficult to talk about, so the survey was completely anonymous. The survey ran for a month across our social media channels, and we received responses from 325 women who self-identified as having suffered severe perineal trauma when giving birth.

  • 85% of women who sustained severe maternal perineal trauma said it impacted on their relationship with their child.
  • 49% of women said they doubted their ability to mother because of the injury.
  • 46% said the injury affected their relationship with their partner and wider family.
  • 34% felt their relationship with their child was affected because they associated their child as the cause of their injury.
  • 31% said they wondered whether their child would be better off without them.
  • 24% of women affected regretted having a child because of the injuries they are left with.


The results we have gathered are shocking and heart-breaking, and show in stark reality the impact these injuries are having on mums and babies each year. These injuries can lead to feelings that no woman expects to feel or wants her experience of motherhood to be. The results are hard to comprehend. But if you have suffered a severe birth injury, I’d wager you can relate to some of these feelings.

I felt that I was a failure after my birth, that there was something wrong with my birthing body that had led to this. I spiralled into a deep depression, unable to comprehend that a) having a baby could leave you like this, and nobody tells you and b) women are expected to go home with life-changing injuries and just get on with it because they are mothers now.

And these feelings led to a complete rejection of motherhood in the early days. If my body could be treated so casually as collateral damage, then why did either of us matter anymore? What good would I be to my son if I couldn’t ever lift him, play or run around with him? I fixated on the time before my pregnancy and birth, before everything ‘went wrong’. I’d unwittingly given permission for an assault on my body that had profound implications for my future.

If I tried to speak out about how I was feeling to the health visitor or to my GP I felt like I was being judged on my ability to parent. I was told my injury was ‘all in my head’ on numerous occasions and another health professional suggested that maybe it was because ‘deep down I didn’t want my baby.’ The ignorance and judgement I faced only worked to compound my isolation and distress and I feared I was a bad mother because of the things I was being told every single day.

The feminist inside me was raging.

My feelings are echoed in accounts we have heard as a charity, from other women who experienced severe injury during childbirth:

“My confidence, my me-ness, the essence of who I am, has been destroyed, my relationships with my child and my partner have suffered.”

“With my son, I love him dearly, he is the best thing in my life, but his birth caused the injury and it is difficult to square the two,”

“Every year I dread his birthday and the reminders of my traumatic experience. It is not fair on him or on me – his birthdays are not a happy occasion, but every year I have to pretend it is.”

“I am ashamed to say that at times I wished I had never become a mother and I grieved for the life I had before, I paid such a high price to have a baby.”

I know these feelings are controversial to express. But I feel they are important if we are ever going to get the NHS and policy makers to sit up and take notice of women whose bodies and lives have been deeply affected by childbirth injury and trauma. As long as women are expected to endure poor treatment while giving birth, these injuries will continue. Motherhood should not become an identity that disregards womanhood, and women should not feel afraid to speak out about the physical, emotional and psychological effects of birth injury."

Read the MASIC Foundation's full survey findings here.

Follow MASIC on Instagram: *@masicfoundation*
Facebook: @MASICFOUNDATION
Twitter: @masic_uk
If you're looking for support or to talk to someone about your experience, please call the MASIC 24h freephone Birth Injury Support Helpline 0808 1640 8333.

Jen will be coming back onto the thread on Tuesday (time tbc) to answer your questions.
Guest post: "Women are expected to go home with life-changing injuries after giving birth and just get on with it"
OP posts:
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TammyS86 · 28/07/2021 20:31

"As long as women are expected to endure poor treatment while giving birth, these injuries will continue"

3rd and 4th degree tears are not always caused by poor treatment from health are professionals. What a sweeping generalisation to make

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Buppers · 28/07/2021 21:22

two failed attempts with the ventouse and a brutal forceps delivery where my baby’s head and body were delivered in one contraction

#metoo

I had been pushing for more than three hours by the time the above happened. I remember ketones in my urine, and the midwife saying it was because I was exhausted, and her trying to get me to drink Lucozade through a straw. I have huge gaps in my memory of the event - just bits. My Mum was there, which we didn't intend. I am not sure how I would have got through it without her. I am crying as I write this, and it's now 20 years ago. For several years, I couldn't hear an ambulance siren without feeling tearful (my first was a homebirth which ended up with me being ambulanced to hospital).

I was taken to the HDU afterwards; I know I was completely traumatised by what had happened. And then there was this baby at the side of me, and I couldn't fathom why it was there. It took a couple of years for me to bond with him properly, by which time I had had another baby by ELCS.

I would advise my DDs to have ELCS any day. I wanted to know what labour felt like. I did find out, at the cost of incontinence and psychological trauma.

On a happier note, DC1 is the one I'm closest to now. I still think his birth plays a part in this, though. When they brought the forceps out, they said he might be blue and unresponsive as he had been stuck for so long (he wasn't either of these things in practice, but even hearing that has had a very long-lasting effect on me and my relationship with him.

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Susannahmoody · 28/07/2021 21:48

Sections are not the only answer.

Education, and re - education of how women's health is managed, offered and handled needs a total rehaul. And not just pregnancy and delivery, the whole spectrum of female health.

We're not weak, we're not to be spoken to in a derogatory way, we don't need smelling salts, we need proper medical care that is objective and not based on outdated trends.

All this bullshit about birth plans, plinky plonky music, birthing balls etc purposefully detracts women from the fact that having a baby is a medical process. It's not fluff and bunnies.

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Susannahmoody · 28/07/2021 21:50

If only men gave birth! Then all those senior staff members on all those committees would change the way it's handled!

We need more women who have had birthing experiences in senior roles.

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Raisinandcheese · 28/07/2021 22:50

I am still traumatised 23 years on.
Dd was yanked out by ventouse, after they did an episiotomy
I lost enough blood that the consultant said It was like being in a major RTA. I needed several blood transfusions.
The placenta was calcified,so having given birth being refused an epidural, I ended up with one to remove it.
The episiotomy was stitched up very badly to the extent sex was impossible. No one medically trained believed me- I ended up going privately to have the whole area re done. And, then developed Lichen Schlerosis, which was probably, imho, due to all the trauma and surgeries.
I was sterilised as soon as the nhs would, which was about 2 years after giving birth, as mentally there was absolutely no way I could cope with having another child.
Am so sad for everyone who is still experiencing this kind of treatment.

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Overdon · 28/07/2021 23:23

@Susannahmoody your spot on.

I also hate the propagated line that ‘our bodies are amazing, it’s the most natural thing in the world’ and you know ‘your not ill your pregnant🙄’

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Backstreetsbackalrightdadada · 29/07/2021 00:15

Can’t help much on the thread as never had DC but genuinely this is a key reason why - you’re expected to have the equivalent of major trauma with potentially life changing injuries and ongoing serious issues (to health and esteem), as if it’s an area of medicine with no advancement and just a “ho hum it’s what’s done” attitude. No other group would be told to have the equivalent and shut up about it. Appalling that you’re often sent home so soon with limited check ups and told to learn healthcare from YouTube?! Women and their loved ones clearly suffer so much from this - needs to be front and centre of public health policy

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WildHorsesRunInMe · 29/07/2021 00:56

Thank you to everyone who shared their stories on this thread, you've helped me to reflect on certain aspects of my own labour and birth experience.

I ended up with a 2nd degree perineal tear and bilateral labial tears. The midwife completely botched the stitches up, which of course came out a few days later. I was told it can't be restitched as the skin is too fragile so I was left in excrutiating pain with an open wound for months afterwards. The ongoing discomfort meant I didn't feel able to have sex for a year and a half after the birth.

The whole experience of the birth and in particular the recovery has put me off having anymore children.

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Paranoidandroidmarvin · 29/07/2021 07:39

@Raisinandcheese I have spent the last 18 years shying away from sex because I am even now at the age of 45 terrified to have another one because of the awful medical care I received.
I told my midwife that I could feel something falling about my vagina and I had a lot of pressure. She told me that was normal. No it wasn’t my bladder was falling out. It’s as if midwife or people who work in this area have had no medical training what so ever.
I was told Midwife was the better way to go during all of it. Worst mistake of my life I ever made.
They were awful and my care was awful.

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Aprilinspringtimeshower · 29/07/2021 08:47

There’s a lot of people on here advocating CS. I had 2, first one an emergency . 2nd one elective.
28 years on and I still contend with a lot of issues. Adhesions have caused a slight twist in my spine, the cutting through lower abdominal muscles mean I have poor inner core strength. I was not told about these risks at any point. Let alone given any exercises to improve core and PF ( which does still effect women who have CS).
As a result of this, I can now barely walk without pain, I have sciatic pain, My legs go numb when standing, a chronic bowel condition due to the about of adhesion that have stuck to my bowels, which causes frequent diarrhoea and severe pain.
They can’t open me up to free the adhesions as it’ll just create more forming.
I am not saying CS is worse than a VB, but just pointing out that CS are not a solution without their own risks. It is not just about the immediate healing which, yes can be easier than a VB. having abdominal surgery of this scale is serious and for many people like me, it comes with a whole bunch of other risks.

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KormasABitch · 29/07/2021 09:08

Aaaaggggghhhh, I am so so so sorry for the traumatic experiences you've all had. Flowers Flowers Flowers

There's a section on Wikipedia about episiotomy, saying that it seems a natural tear heals more quickly than a surgical one.

"Slow delivery of the head in between contractions will result in the least perineal damage."

Unfortunately I guess teams are working in a hurry and the sooner they can get you out and the next one in, the better as far as they're concerned.

en.wikipedia.org/wiki/Episiotomy#Controversy

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FrenchMustard · 29/07/2021 09:28

Thank you for this thread and I am so very sorry that so many of you are suffering. Whilst my initial birth experience was not traumatic, I found the recovery to be absolute hell. I had an episiotomy and the stitches came open around 10 days after my daughter was born. My GP was absolutely horrified and wanted me to see an obstetrician, but the community midwives (as pleasant as they were!) played it down by saying it wasn't that bad, he was scaring me and GPs don't know anything about giving birth because they practise general medicine.

I was left with what felt like a giant gaping wound and was left to heal. Nobody cared about me, not a midwife or health visitor or doctor. It was over Christmas and as far as anyone was concerned, I should have been having a wonderful time celebrating Christmas and the birth of my daughter. I was expected to attend midwife and health visitor appointments at the GP surgery because "we only do home visits for our c-section ladies", so I crawled along to them at snails pace because I could barely walk and definitely couldn't drive. I look back at pictures of myself from that time and it makes me sad to think the person in the photos was so desperately unhappy when I should have been anything but.

A work friend of mine is training to become a hypnobirthing instructor and I find her discussion of "your body was designed to birth your baby" deeply triggering.

Womens aftercare in the UK is total inadequate. As my husband once said, if you had an open wound anywhere else on your body there is no way any health professional would leave you like that. So why is it the case for women following childbirth??!!

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JuliaMumsnet · 29/07/2021 11:54

@JenHallMASIC

Hi *@DanielTigersMummy21* Thank you, that's a great suggestion.

Just to make it clear this is a 24 hour helpline, but it is not manned, you leave a message and a trained advisor will call you back.

It is an signposting service rather than a crisis line, but may definitely be helpful for some of the women here.

Tagging *@JuliaMumsnet* to see if we can get the helpline added to OP.

Yes that's a great suggestion, we've added the helpline to the OP.
OP posts:
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nildesparandum · 29/07/2021 19:32

Aprilinspringtimeshower

So sorry about your post caesarean effects.
I have had both of mine by EMCS last one 49 years ago now.I do not have any physical damage but suffer from a lasting dread of general aneasthesia.Both of mine were under GA and the first one nearly killed my DS1 and myself as I stopped breathing at the beginning because of the GA.I can still remember waking up with a suction tube down my throat and that was before they put me under again to get my poor baby out.He had an Apgar of 1 when born this was 52 years ago now.
Ceasarian sections are not always calm and controlled which I have often heard them described now.
Hope you find some relief soon.

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AgathaAllAlong · 29/07/2021 20:21

This is not on par with the awful things that most of the people on this thread have experienced, but one thing that really angered me was the secrecy surrounding even the mildest risks or pains of birth. My birth went comparatively well but I still found it very upsetting and couldn't talk about it for months, then had mild problems like hemorrhoids from the birth, mastitis, pain feeding. And suddenly DM, MIL and even friends were all like "oh yes me too, I know it's tough, you need to crack on, imagine if you had a toddler too haha" and I just couldn't believe that nobody had warned me. They knew! They all knew!! Wouldn't want them to warn me in pregnancy necessarily, but at some point in my adult life as a woman.

I have a child and am only from this thread learning about some risks and complications, it's not at all right.

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bellinisurge · 31/07/2021 13:34

I remember the time a colonoscopy consultant referred to my "injuries " from childbirth. I could have hugged them.
When I was in hospital after giving birth another doctor had to go and consult a&e doctors about stab wounds because they didn't know how to deal with what they had inflicted on me. But they still didn't call it an injury. I just got snarled at for not being successful in bf.
Bastards.

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Labyrinth86 · 31/07/2021 23:24

@nildesparandum

Aprilinspringtimeshower

So sorry about your post caesarean effects.
I have had both of mine by EMCS last one 49 years ago now.I do not have any physical damage but suffer from a lasting dread of general aneasthesia.Both of mine were under GA and the first one nearly killed my DS1 and myself as I stopped breathing at the beginning because of the GA.I can still remember waking up with a suction tube down my throat and that was before they put me under again to get my poor baby out.He had an Apgar of 1 when born this was 52 years ago now.
Ceasarian sections are not always calm and controlled which I have often heard them described now.
Hope you find some relief soon.

I'm sorry to hear of your experience. However, you mentioned both were EMCS. I think it's important we don't conflate those with ELCS the way the medics do. The two things are entirely different. EMCS typically start as vaginal or planned vaginal births.
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nildesparandum · 01/08/2021 20:20

Thankyou Labyrinth86

I know what you mean.If I had had both by ELCS I might have had a very different experience.I was unprepared for GA both times as both were what is known now as crash sections so no time to wait or my babies would not be alive now. I do think that if I was pregnant now I would have had ELCS each time, as I am of small height and build.I was told this after the second birth but in those days they wanted to ''try''you first.
My first baby had gone into transverse lie in labour as his head never engaged and when my waters broke he moved into that position.The second time was very similar, his head got stuck in my pelvis and they had to use forceps inside me to ease it out.Also my uterus was on the point of rupturing as well.

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TammyS86 · 02/08/2021 13:57

[quote KormasABitch]Aaaaggggghhhh, I am so so so sorry for the traumatic experiences you've all had. Flowers Flowers Flowers

There's a section on Wikipedia about episiotomy, saying that it seems a natural tear heals more quickly than a surgical one.

"Slow delivery of the head in between contractions will result in the least perineal damage."

Unfortunately I guess teams are working in a hurry and the sooner they can get you out and the next one in, the better as far as they're concerned.

en.wikipedia.org/wiki/Episiotomy#Controversy[/quote]
Episiotomy is used to prevent catastrophic tearing to the perineum and surrounding structures, by directing the force of the birthing baby away from the anal muscles/sphincter.

The other reason episiotomy is performed is if the baby is in distress and, despite a mother's best efforts and midwives and doctor's watchful waiting, it wouldn't be safe to leave the baby sat in the perineum much longer due to their decelerating heart rate. Also, some babies' heads are just big, a perineum can only stretch so far so therefore see points 1 and 2 again.

I have been qualified for 7 years, never done an episiotomy.

I absolutely refute that episiotomies are used to speed up the process for the staff's benefit. If you have seen any wording around them being used to 'expedite the delivery' it will be because they are concerned for the welfare of the baby again, see the points above.

It really pisses me off that people make these throwaway comments without actually having any training. And you got your info off Wikipedia for gods sake??

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AngeloMysterioso · 02/08/2021 21:00

[quote Girlmama3]@JuliaMumsnet could you maybe move this to child birth or post natal health? It's not the thing most pregnant ladies want to see when they're already worried about the unknowns of labour 😩[/quote]
On the contrary; when I was pregnant with my first baby I actively sought out the childbirth horror stories on MN and elsewhere. I wanted to be aware of, and prepared for, every worst case scenario possible.
It does expectant mothers a huge disservice to allow them to go into labour without being aware of all the eventualities that may befall them- and especially to say that it’s for their own good. Knowledge is power, after all.

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Wonderwall21 · 21/08/2021 13:28

I am 11 weeks post parturm and the care has been dreadful.
I sustained a 4th degree tear, missed after birth, developed rectovaginal fistula and repaired a few days later. Now have a urinary fistula that was also missed and gaping hole in perineum, not to mention bowel urgency and the rest from the 4th degree tear. I'd give anything to have had a c section, I know it's major surgery but I've had 2 major surgeries so far, due another one and that may not be the end of it. I went in a sporty healthy person to come out with delibitating injuries. Nhs is a pile of shit, always has been and always will be

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AngelinaFibres · 22/07/2022 08:40

FortunesFave · 21/07/2021 15:18

I have had two elective sections and would advise my daughters to do the same. I know that there are risks attached with sections but just look at what happens to MOST women having babies naturally.

I'd rather take the risk of organised, calm surgery than the bloodbath that is natural birth.

I've always said that if men had babies, c sections would be the default.

I had an electve cesarean with my first baby He was breech and my pelvis was too small to deliver him safely. During the operation my bladder was put back with a kink in it. It means that I can't empty it fully without leaning right over to the left so the second half can flow out. I had year and years of bladder infections because it was pooling for too long and allowing bacteria to grow. My doctor advised leaning to empty it. Cesareans can leave lasting problems. They are not an easy option for many people.

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SwordOfOmens · 22/07/2022 12:46

My son was born 18 years and 6 months ago, induced because of "post dates". Big mistake! I was in labour, in horrendous pain for 3 whole days and nights. The birth itself was an other worldly experience combined with being drugged up, ravenous with hunger and thirst, unable to pee and beyond exhausted. I felt like I had been turned into a piece of meat in a slaughter house production line. The stitches didn't heal and I got a huge infection and I quit BF after just 11 days due to lack of support and fever.

My second baby 6 years later was a fight to keep out of hospital and I had a beautiful home birth against advice. Again I was "post dates" but hey, my variation of normal full term is 42 weeks! It was a real fight to say no over and over again to induction and I was VERY smug when I had a no issue, calm and peaceful home birth.

Fast forward 13 years and I am 26 weeks pregnant with an IVF baby and I wrote to the hospital to decline all midwife appointments and consultant care, but was happy to have scans. This is because with the chronic midwife shortages and maternity scandals, there is no way in hell I am trusting them with my body and baby. If it was bad before, it is way worse now! I have an Independant Midwife who is 100% on my side and I have all my appointments at home with the same woman. GREAT.

You know what isnt great? The NHS reported me to fucking Social Services who phoned me up to tell me that if I didn't "comply" with the hospital and attend my appointents and do as I am told (They want to induce me for big baby at 37 weeks and because I am an IVF mother) they would consider having the police break into my home once I have given birth and put my baby up for adoption because at 15 weeks pregnant, declining hospital birth and extra scans "puts my unborn baby at risk".

Yes I am speaking to a solicitor and yes may well see my story in the papers in the near furture.

SS did drop the case after one week of HELL for us. But I live in contstant fear anyway.

Women's trauma DOES NOT MATTER to these people. They have abandoned patient centred care for tick boxes.

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gotthearse · 23/07/2022 14:59

I was made to push for 3 hours when it turned out I was only 8cm. Back to back labour with ventouse in theatre, then dd's shoulders got stuck. Eventually they pulled her out.

I lost over a litre of blood with no offer of transfusion. I was pretty battered and sent home despite flu-like symptoms and a lot of pain. Over several days I repeatedly told everone I wasnt right. The fluey feelings were "just your milk coming in", the pain "was to be expected" and when I started to stink from the infection got told "lochia is a bit smelly". Gp wouldnt come out and prescribed the wrong antibiotic. I was starting to get really bad so dh took me to hospital where a junior registrar cut a few stiches, drained a load of puss and sent me home again at 3am, without checking the antibiotics.

My sister thought I looked like I was dying and i went back again. I hemmoraged everywhere and stood shaking in a puddle of my own blood.

This was the point that they thought they'd better admit me. 7 days of iv antibiotics. They refused to give me a bassinet bed extension thingie to feed dd lying down despite my open, draining wound as "only ladies who have had sections are allowed these".

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Dominikaa · 25/07/2022 10:57

@SwordOfOmens so sorry to hear you had such a bad experience with your first labour. Please don't stop the fight, I was mistreated too (nowhere near as bad as you), NHS staff memberS made me think as if I am mental for wanting c section yet I am 5 foot and my DD was 8 pounds. I requested C section mainly for the reason that I knew if I just go in a labour I am simply on mercy of a random midwife and (lack of) epidural, depending if a staff member who is qualified to give you epidural is in or not...If you pursue/ win the case you will help many many women so please don't give up. I am happy to support you with my testimonial if required, pretty sure other women on here would be happy to help too.

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