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Guest post: “Black women are five times more likely to die in the perinatal period”

5 replies

BojanaMumsnet · 16/09/2020 10:20

Whilst the majority of outcomes for pregnant women and their babies are positive, the stark truth is that Black, Asian and minority ethnic (BAME) women have a greater chance of suffering a poorer experience or health outcome when compared to white women.

Findings from the MBRRACE-UK 2015-17 report (published in 2019) shocked the nation. This study found that Black women have more than five times the risk of dying in pregnancy or up to six weeks postpartum compared with white women. Furthermore, women of mixed ethnicity have three times the mortality risk and Asian women have almost twice the risk compared to white women.

Addressing health inequalities is a key priority for the Royal College of Obstetricians and Gynaecologists (RCOG) and, therefore, we hosted an International Women’s Day event on 6 March 2020 – entitled ‘We need to talk about race’ – to expand our understanding.

It quickly became clear that the reasons for these stark health inequalities are complex and are not yet fully understood. Reasons may include socio-economic factors, poor access to antenatal care and other women’s health services and a gender and ethnicity data gap in medical research.

A growing body of research in America also shows that disparities in health outcomes clearly exist despite socio-economic factors and other demographic variables.

Implicit racial bias, though often unconscious and unintentional, can also lead to poorer health outcomes and experiences for Black, Asian, and minority ethnic women which can hinder consultations, negatively influence treatment options and can ultimately result in Black, Asian and minority ethnic women avoiding interactions with health services.

Since then, the COVID-19 pandemic hit the world, and this has shone a light on some of the health disparities that exist in maternity care.

A higher proportion of pregnant women from BAME groups have been admitted to hospital with COVID-19 when compared to white pregnant women and current data suggests that BAME men and women have a greater risk of death from coronavirus than white people in England and Wales.

It’s important to remember that an individual woman and her family lies behind every shocking statistic; a woman who has died or suffered a poor health outcome, sometimes along with her baby, which, in some cases, could have been avoided.

This is completely unacceptable. All women, irrespective of location, age, or ethnicity, should be able to access the same high-quality care and we, as clinicians, have a duty to ensure that care is the best it can be for everyone.

Therefore, in July 2020, the College launched a Race Equality Taskforce to tackle racial disparities in women’s healthcare and racism within the obstetrics and gynaecology workforce.

As a Co-Chair of the Taskforce, I am completely committed to tackling these deplorable outcomes for Black, Asian and minority ethnic women. I believe that the solutions to preventing unnecessary harm require a committed collaborative effort between clinicians, Government and women to ensure that the gap in health outcomes is eradicated.

The FiveXMore ‘five steps’ campaign is a useful tool for Black, Asian and minority ethnic women to use in all healthcare settings, not just in maternity care. As the campaign notes, women should speak up if they feel something is not quite right, they should seek a second opinion if they feel the need to and they should always trust their own feelings and seek help if they think something is wrong.

It will not be easy to eliminate inequalities in women’s healthcare services. But the time to act is now, and the RCOG intends to do just that.

Dr Ranee Thakar will respond to some comments next week.

BojanaMumsnet · 16/09/2020 14:39

Hi @mamanrose,

Point taken, and thank you for raising it. It's a really tricky balance (one we've thought about before when covering things such as the risk of serious birth injuries or stillbirths) - of course we don't want to frighten people without being able to share constructive advice but we hope the Five X More messages shared in the OP provides that and will help to empower expectant mothers who are particularly affected by this issue.

BojanaMumsnet · 21/09/2020 17:19

@tornadoalley

Have studies been done to find out the specific issues encountered by BAME women to identify where these inequalities lie?
Hi @tornadoalley

Here's the response from RCOG:

"Thank you for your message. There have been several studies exploring socio-economic factors and their impact on health outcomes. However, a growing body of research in America has shown that ethnic disparities in health outcomes clearly exist despite socio-economic factors and other demographic variables, thus negatively impacting BAME women from the lowest as well as the highest socio-economic groups. We also know that there is a significant data gap in medical research contributing to health disparity outcomes in the UK. It is clear that more research is required that includes the individual experiences of BAME women in the UK."

BojanaMumsnet · 21/09/2020 17:23

Hi @stickygotstuck,

Here's the response from RCOG to your question:

"Thank you for your message. Yes, barriers to communication can have a negative impact on health outcomes. Language barriers have been explored in several studies which show, for example, that it can lead to women avoiding interactions with healthcare services.

Nevertheless, a growing body of research in America has shown that ethnic disparities in health outcomes exist despite socio-economic factors and other demographic variables. It impacts BAME women from the lowest as well as the highest socio-economic groups. Therefore, this is a complex issue that we definitely need more research to fully understand."

BojanaMumsnet · 21/09/2020 17:25

@SugarSW7

I'm a Black woman that gave birth last year at a SE London birth centre. Throughout my care in pregnancy and for delivery, I had White midwives. They were impeccable. I couldn't have asked to be more supported, listened to or encouraged. They were fantastic. So, from a personal point of view, I don't support any view that midwives are somehow racist or biased.

However, what I will say is this - much of the practice in the UK is based on research conducted here and in the US, which has been done on samples of majority White, if not all White participants.
As an example, allowing all women to go up to 42 weeks gestation has been shown to be fine for White women and extremely detrimental to Black women.
The outcomes for a Black woman who gives birth prematurely at 35-38 weeks are much more positive than for a White woman who gives birth at the same gestation. Whereas a White woman may be able to carry until 42 weeks, the majority of whom will be OK, but the risk of maternal and infant mortality is high for Black women.
I read this research and after having had five miscarriages, I begged my community midwife to book me in for an induction at 41 weeks, rather than 42. She'd never heard of the research, but took it on once I showed it to her. I didn't need the induction in the end.
My point is, that if care now includes women from different backgrounds, one size fits all doesn't work and this may be a factor in the stats here.
The NHS know that Black women are more likely to have pre-eclampsia, they act on it quickly, they also know about the higher risk of gestational diabetes - we're all sent for tests regardless of BMI and history. I think this is fantastic. The more Black women participate in research, the better the outcomes will be.

Hi @SugarSW7

Here's the response from RCOG:

"Thank you for your message. We agree that it is vital that medical research is inclusive of all women. Understanding how women and marginalised individuals present and respond to different medical conditions and treatments will help to diminish disparities in healthcare outcomes and improve diagnostic rates."

BojanaMumsnet · 21/09/2020 17:27

@SerenityNowwwww

Daft Q maybe - but do we know the tunic makeup of midwives and maternity staff in the U.K.?

Maybe it’s because of where I live but when I was having DS all but one of the staff in the maternity clinic and ward were black/Asian.

Does that staff background make a difference? Is is education - mums or staff?

It’s tricky to compare any stats with the US because of the healthcare system there.

Hi @SerenityNowwwww

Here's the response from RCOG:

"Thank you for your message. NHS Digital does not include the make-up of maternity staff in their published NHS workforce statistics. However, the RCOG can roughly find out the ethnicity of the obstetric workforce using our own data.

However, implicit racial bias also plays a part in the poorer health outcomes experienced by people of Black, Asian, and other minority ethnic origin. It can, for instance, negatively influence diagnosis and treatment options made by clinicians, including pain management, and indirectly affects medical interactions. To combat this, we believe that a robust training programme should be included in medical school curricula, to recognise the presence and impact of implicitly held biases on patient outcomes and embed positive behaviours."

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