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Guest post: “We should not be normalising postnatal pain”

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MumsnetGuestPosts · 25/06/2018 11:18

I’m the Lead Obstetrician for postnatal care at Chelsea and Westminster Hospital NHS Foundation Trust, London. Such roles are relatively new in the National Health Service (NHS) and I have been working specifically in this field for nearly four years. These roles offer obstetricians an opportunity to actively engage with the wider team in delivering care beyond pregnancy and labour to our mums.

Our initial project included developing a mum and baby app to provide our new parents with information to support them in the immediate postnatal period, and more recently the creation of digital storytelling modules where new mothers have kindly shared their postnatal experiences to support reflection and learning amongst health professionals and other mothers. Both projects are supported by our hospital charity CW+ and have enabled us to explore newer ways of empowering mothers and staff.

We have also undertaken other pieces of work aimed at enhancing the experience on the postnatal ward. It was only at the Royal Society of Medicine Conference on medical innovation in 2016 that I came across the concept of design thinking in healthcare - truly my lightbulb moment in terms of realising how our operational efforts could translate into a really positive difference for our mothers. This methodology encourages a human-centered approach, which goes beyond clinical outcomes, and requires professionals to truly understand the emotional experience (feelings, pains, anxiety, concerns) of those who use and deliver our service. This discovery stage (i), is then followed by stages of defining the need (ii), brainstorming and developing (iii) empathetic models of care and finally delivering (iv) care. Further reading revealed that this methodology had also successfully informed the Better Births report, the NHS 5-Year Forward View for maternity care.

In October 2016, we adopted this design thinking approach to postnatal care in our hospital and have started to gain new insights into the real-life experiences of the new mothers and the team providing care. Part of this work involved running a Whose Shoes? workshop, bringing together a range of staff and mothers/ partners and babies (see above image) to start a journey of healthcare improvement. We are now working on a number of the identified themes through the NHS Early Adopters Maternity Transformation Programme in Northwest London.

A Fellowship in Quality Improvement - Collaboration for Leadership in Applied Health Research and Care (CLAHRC) - in 2017, offered me the opportunity to focus on improving experiences associated with pain in the postnatal period. This is a theme that repeatedly came up in my postnatal clinics, an observation in keeping with the Mumsnet survey's findings of postnatal care. My own low pain threshold and clear recollection of my first childbirth (before I chose a career in maternity!) motivated me further. This was when the overriding clinical need was to get me out of the bed and mobilised ahead of the day 1 obstetric ward round, irrespective of my pain management. Beyond my personal account, several studies report that poor management of acute or persistent pain after childbirth can be associated with symptoms of postnatal depression at three, six and 12 months, and can negatively impact breastfeeding and mother-baby bonding. Therefore getting correct pain management after childbirth is so important.

To understand why the pain management strategies were not translating into good experiences, we undertook surveys of mothers and staff on the postnatal ward. We found that mothers sought regular reassurance about the safety of painkillers whilst breastfeeding, but that this reassurance didn’t always materialise in a busy ward setting. On the other hand, staff were genuinely surprised that this should even be a concern to a mother when a health professional was prescribing and dispensing medications. In addition, having gone through most of the pregnancy avoiding medications, the sudden transition to being offered a range of them really worried some mothers.

With time, I noted further preconceptions, biases and opinions unique to the postnatal period. This led me to explore how pain is assessed postnatally compared to other areas of healthcare. The expectation of pain or discomfort after childbirth means that mothers did not always seek support or pain relief medications, even at times when it may have been needed. It was not routine midwifery practice to use an objective tool like a visual analogue score (0-10 pain intensity scale at rest and on moving), where women assess their pain’s intensity to guide staff as to their needs. Using quality improvement methodology, our team has started to incorporate this into our routine clinical care, with positive feedback from staff who have started using it. The local teaching programme now emphasises the need to treat and manage pain after childbirth with the same significance as one would outside of maternity settings like in gynaecology or surgery.

Two years ago, I naively believed an operational approach would have long fixed this problem but as I’ve delved deeper, the intricacies of managing pain after childbirth are now becoming clearer. Working with a design approach and with the support of our maternity voices partnership team, we have started the journey towards optimising pain management in our service.

Through this blog (my first ever) I want to achieve two aims:

  1. To empower new mothers and mothers-to-be to work with their local Maternity Voices group to have their knowledge and insights help design how healthcare is delivered; and

  2. To raise awareness that poorly managed pain after childbirth is an avoidable outcome with possibly significant negative consequences for the mother and her baby. Mothers should feel confident to assess the intensity of their pain after childbirth and work jointly with their health professional to address this. Defining this pain as part of the ‘normal’ experience after childbirth cannot be right and this must change.

    I would welcome suggestions on how mothers feel that hospital postnatal services should be designed to optimise pain management. You can contact me via Twitter or email at [email protected].

    Image: Parents and Chelwest Maternity Voices co-chairs (back row - extreme left and right) who took part in the Whose Shoes event on postnatal care in July 2017.

    You can find out more about the Mumsnet Better Postnatal Care campaign here.
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yellowtoad · 28/06/2018 00:54

I totally agree. I had quite severe pain after a 3b tear. I was desperate to get home to my older child and therefore asked to be discharged as soon as possible.

My drug chart got sent to pharmacy to prepare my discharge meds, which meant that I went 6h without doses of paracetamol & ibuprofen purely due to lack of a drug chart. I was in agony walking out to the car.

It's so bloody silly. I'm a grown up, i know how many painkillers ive had that day, and im in agony - just give me some painkillers! I now advise all my mates to take paracetamol and ibuprofen in their hospital bag to cover for this eventuality.

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RowanMumsnet · 28/06/2018 11:56

Hello

Thanks for all your responses. Sunita (the author) wants us to let you know that she is reading the thread and will be picking up on the themes discussed here to inform her ongoing work. She's also received some emails and approaches on Twitter (@SunitaS2016) - do feel free to contact her by email ([email protected]) if there's something you'd like to say off-thread.

Thanks again - and remember, if you'd like to be kept up to date with our campaign for better postnatal care (some good pieces of news coming up, we think!) you can email us on [email protected] and ask to be added to the dedicated mailing list (with a no-spam guarantee)

Thanks
MNHQ

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TurquoiseDress · 28/06/2018 19:53

Thank you for so much for this guest post!

This issue is just not addressed as often as it should be or taken seriously at all.

I am in the third trimester with baby no.2 and some of the posts have made me shudder.

All the memories coming back from baby no.1 and the dreadful post-natal ward in a London teaching hospital!

I had a CS for maternal request with first baby, and I do feel that had some impact on my care afterwards (I don't know, maybe it just me being sensitive, hormonal and in horrendous amounts of pain).

The midwives were quite dismissive, saying that "you've had a CS, you are going to be in pain" while offering up a few paracetamol.
Also, one midwife made a comment to me that "a CS is not the easy option" which I took to being a judgement of my choice of having a CS.

I should hopefully be having another CS, waiting to get the date booked in.

This time, I am going in more prepared- definitely will take some paracetamol in my handbag, plus some medication (Dihydrocodeine) left over from my missed miscarriage when I had medical management.

So long as I am with it enough to make a note of what I take and the times, I will take what I need, if it comes to that.

What stuck with me was the way there was such a dismissive attitude towards all the women in pain.

Being told that my drug chart had "gone missing" was the excuse given a couple of times, and because of this I could only be offered paracetamol.

Just not good enough. And I'm willing to bet that every other post-surgical ward in the hospital had patients who had been prescribed all manner of effective pain relief.

Why are women made to just get on with it? or belittled, chastised and made to feel generally like a huge inconvenience to staff on the post-natal ward?

Unfortunately, the whole experience coloured my overall impression of midwives and a few years on, I still have a very poor opinion of them as whole- sadly influenced by a minority who I had the misfortune to encounter in the first day or so after birth.

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Summerscorcherisjustsummer · 28/06/2018 20:20

Lack of basic commen sense with institutionalisation, and de sensitisation
.... Leads to some nurses acting like robotic automons.

It beggars belief that a woman in serve pain is treated with caution after birth when it's obvious there could be something seriously wrong.

It's astonishing the lengths sick and ill people have to go too to fight their corners in hospital agaisnt rigid entrenched staff. Often after major surgery or birth.

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mostdays · 28/06/2018 20:44

I don't know if this actually counts but after ds3's birth I had coccydynia. Well, I still do but these days I am free of pain quite a lot of the time and it only really is an issue if I do something stupid like sit down for a long time... but ds3 will be 4 in November. For the first year no one would do anything at all about it. Eventually a GP referred me to the MSK clinic and suggested I'd have anaesthetic injections. The MSK clinic said no, I hadn't been in pain long enough for that and after my initial appointment with them sent me a leaflet inviting me to activity groups for sedentary people. Even when people agreed to actually see me I got the strong message that even quite long term pain after having had a baby was to be expected and put up with.

A male colleague has coccydynia at present and is prescribed codeine, has regular appointments for management of his condition and is generally being treated as someone who needs and deserves care so that their pain is alleviated. It's an interesting difference.

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ScottishDiblet · 28/06/2018 21:43

This all brings back the horrors that I went through before, during and for a long time after labour but one of the worst things for me was the begging I had to do for pain relief. It was humiliating and just so so painful. And all that nonsense about making you labour at home for as long as possible - I get it, Labour can take a long time and labour wards are over stretched - but honestly the times I have heard about friends being turned away in labour and suffering at home for hours or days. It’s inhumane. I was very poorly during my DD’s birth and then left catheterised overnight and left on a busy ward to look after my baby. I emptied the catheter myself holding my baby and then tried to feed her while she screamed and screamed for milk. I buzzed for the midwife only for them to come and bark at me that I was feeding her wrong but didn’t take the time to show me how to do it. That night on the ward was the worst of my life. I suffer serious depression and anxiety and kept trying to ask for help but no-one would listen “it’s just the hormones”. I had a stitched up tear that didn’t get looked at by the GP at my 6 week check. Months later it turned out I had retained placenta and needed vaginal reconstruction as a result of very badly done stitches. I got an infection from the second operation and was fobbed off for weeks by the consultant who did the op who didn’t believe I was suffering with more than unusual post-op pain. The whole thing was just awful and I can’t see myself ever getting over it enough to feel strong enough for a second baby. I am damaged and traumatised for life.

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SilentAndQuietLight · 29/06/2018 09:22

There is such a dysfunctional attitude towards obstetric pain. This looks like a great opportunity to share a video from a midwife academic which I watched a year or so ago.



"In year 2, you talk about the concept of pain. Now, you see, the dentists and doctors and the nursesif you said to them, What's pain to your profession? 'Ooh, pathological, not good, needs managing.' But for midwives, actually painif you choose to even use the vocabulary of pain, might say let's not deal with 'pain', let's just talk sensation--actually is a really important thing. [...] Pain as such is not pathological in quite a lot of our worlds, and so we sort of reflect on how to normalise pregnancy, how to support women through things like [air quotes] "pain "in a way that doesn't require, perhaps, first stop epidural but gives women a sense of being able to kind of control."

And that's when I decided not to apply to midwifery. Thank you for coming to my TED talk.
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WerkSupp · 29/06/2018 11:54

Oh, yes, the sensation. I had a drug-free birth. I will never forget the pain of it. So I wanted an epidural for the next one and insisted on it. The midwife asked why and I told her I felt like I was being disemboweled with a fork during that birth and she sighed and called it pressure. Bollocks! It was pain. It hurt like nothing else I've ever experienced.

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Muma2018 · 30/06/2018 21:19

I am relieved to read about this project having been treated like a naughty school girl (not that any child should be treated how I was following the delivery of my beautiful baby). I'm not one to constantly buzz so hoped the midwives would have realised I was being serious when asking for pain relief. Often I was told the medication round was on it's way and was left for over an hour. I was then in excruciating pain, following an assisted birth of two failed vontouse and forcep delivery with a 3rd degree tear, and told to try the paracetamol and ibuprofen, which I did on numerous occasions and was still left, feeling forgotten about and then what felt like a battle when requesting stronger pain relief. I have a high pain threshold and was and am so happy to meet my daughter thankfully my pain did not prevent me bonding with her. I do question some of the midwives approach and believe they are desensitised although appreciate the pressure they are under, yet some of the really good ones, meant to be in the job are equally under the same pressure. More acknowledgement to the amazing experience each woman goes through needs to be present to avoid more women feeling how I felt by some of the midwives.

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Beautifulbridie · 01/07/2018 21:59

I had a c section having my DD and now she is one I get a lot of joint pain all over. Is this normal? Wondered how long it takes your body to get back to normal

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