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Guest post: “We should not be normalising postnatal pain”

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MumsnetGuestPosts · 25/06/2018 11:18

I’m the Lead Obstetrician for postnatal care at Chelsea and Westminster Hospital NHS Foundation Trust, London. Such roles are relatively new in the National Health Service (NHS) and I have been working specifically in this field for nearly four years. These roles offer obstetricians an opportunity to actively engage with the wider team in delivering care beyond pregnancy and labour to our mums.

Our initial project included developing a mum and baby app to provide our new parents with information to support them in the immediate postnatal period, and more recently the creation of digital storytelling modules where new mothers have kindly shared their postnatal experiences to support reflection and learning amongst health professionals and other mothers. Both projects are supported by our hospital charity CW+ and have enabled us to explore newer ways of empowering mothers and staff.

We have also undertaken other pieces of work aimed at enhancing the experience on the postnatal ward. It was only at the Royal Society of Medicine Conference on medical innovation in 2016 that I came across the concept of design thinking in healthcare - truly my lightbulb moment in terms of realising how our operational efforts could translate into a really positive difference for our mothers. This methodology encourages a human-centered approach, which goes beyond clinical outcomes, and requires professionals to truly understand the emotional experience (feelings, pains, anxiety, concerns) of those who use and deliver our service. This discovery stage (i), is then followed by stages of defining the need (ii), brainstorming and developing (iii) empathetic models of care and finally delivering (iv) care. Further reading revealed that this methodology had also successfully informed the Better Births report, the NHS 5-Year Forward View for maternity care.

In October 2016, we adopted this design thinking approach to postnatal care in our hospital and have started to gain new insights into the real-life experiences of the new mothers and the team providing care. Part of this work involved running a Whose Shoes? workshop, bringing together a range of staff and mothers/ partners and babies (see above image) to start a journey of healthcare improvement. We are now working on a number of the identified themes through the NHS Early Adopters Maternity Transformation Programme in Northwest London.

A Fellowship in Quality Improvement - Collaboration for Leadership in Applied Health Research and Care (CLAHRC) - in 2017, offered me the opportunity to focus on improving experiences associated with pain in the postnatal period. This is a theme that repeatedly came up in my postnatal clinics, an observation in keeping with the Mumsnet survey's findings of postnatal care. My own low pain threshold and clear recollection of my first childbirth (before I chose a career in maternity!) motivated me further. This was when the overriding clinical need was to get me out of the bed and mobilised ahead of the day 1 obstetric ward round, irrespective of my pain management. Beyond my personal account, several studies report that poor management of acute or persistent pain after childbirth can be associated with symptoms of postnatal depression at three, six and 12 months, and can negatively impact breastfeeding and mother-baby bonding. Therefore getting correct pain management after childbirth is so important.

To understand why the pain management strategies were not translating into good experiences, we undertook surveys of mothers and staff on the postnatal ward. We found that mothers sought regular reassurance about the safety of painkillers whilst breastfeeding, but that this reassurance didn’t always materialise in a busy ward setting. On the other hand, staff were genuinely surprised that this should even be a concern to a mother when a health professional was prescribing and dispensing medications. In addition, having gone through most of the pregnancy avoiding medications, the sudden transition to being offered a range of them really worried some mothers.

With time, I noted further preconceptions, biases and opinions unique to the postnatal period. This led me to explore how pain is assessed postnatally compared to other areas of healthcare. The expectation of pain or discomfort after childbirth means that mothers did not always seek support or pain relief medications, even at times when it may have been needed. It was not routine midwifery practice to use an objective tool like a visual analogue score (0-10 pain intensity scale at rest and on moving), where women assess their pain’s intensity to guide staff as to their needs. Using quality improvement methodology, our team has started to incorporate this into our routine clinical care, with positive feedback from staff who have started using it. The local teaching programme now emphasises the need to treat and manage pain after childbirth with the same significance as one would outside of maternity settings like in gynaecology or surgery.

Two years ago, I naively believed an operational approach would have long fixed this problem but as I’ve delved deeper, the intricacies of managing pain after childbirth are now becoming clearer. Working with a design approach and with the support of our maternity voices partnership team, we have started the journey towards optimising pain management in our service.

Through this blog (my first ever) I want to achieve two aims:

  1. To empower new mothers and mothers-to-be to work with their local Maternity Voices group to have their knowledge and insights help design how healthcare is delivered; and

  2. To raise awareness that poorly managed pain after childbirth is an avoidable outcome with possibly significant negative consequences for the mother and her baby. Mothers should feel confident to assess the intensity of their pain after childbirth and work jointly with their health professional to address this. Defining this pain as part of the ‘normal’ experience after childbirth cannot be right and this must change.

    I would welcome suggestions on how mothers feel that hospital postnatal services should be designed to optimise pain management. You can contact me via Twitter or email at [email protected].

    Image: Parents and Chelwest Maternity Voices co-chairs (back row - extreme left and right) who took part in the Whose Shoes event on postnatal care in July 2017.

    You can find out more about the Mumsnet Better Postnatal Care campaign here.
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Beautifulbridie · 01/07/2018 21:59

I had a c section having my DD and now she is one I get a lot of joint pain all over. Is this normal? Wondered how long it takes your body to get back to normal

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Muma2018 · 30/06/2018 21:19

I am relieved to read about this project having been treated like a naughty school girl (not that any child should be treated how I was following the delivery of my beautiful baby). I'm not one to constantly buzz so hoped the midwives would have realised I was being serious when asking for pain relief. Often I was told the medication round was on it's way and was left for over an hour. I was then in excruciating pain, following an assisted birth of two failed vontouse and forcep delivery with a 3rd degree tear, and told to try the paracetamol and ibuprofen, which I did on numerous occasions and was still left, feeling forgotten about and then what felt like a battle when requesting stronger pain relief. I have a high pain threshold and was and am so happy to meet my daughter thankfully my pain did not prevent me bonding with her. I do question some of the midwives approach and believe they are desensitised although appreciate the pressure they are under, yet some of the really good ones, meant to be in the job are equally under the same pressure. More acknowledgement to the amazing experience each woman goes through needs to be present to avoid more women feeling how I felt by some of the midwives.

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WerkSupp · 29/06/2018 11:54

Oh, yes, the sensation. I had a drug-free birth. I will never forget the pain of it. So I wanted an epidural for the next one and insisted on it. The midwife asked why and I told her I felt like I was being disemboweled with a fork during that birth and she sighed and called it pressure. Bollocks! It was pain. It hurt like nothing else I've ever experienced.

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SilentAndQuietLight · 29/06/2018 09:22

There is such a dysfunctional attitude towards obstetric pain. This looks like a great opportunity to share a video from a midwife academic which I watched a year or so ago.



"In year 2, you talk about the concept of pain. Now, you see, the dentists and doctors and the nursesif you said to them, What's pain to your profession? 'Ooh, pathological, not good, needs managing.' But for midwives, actually painif you choose to even use the vocabulary of pain, might say let's not deal with 'pain', let's just talk sensation--actually is a really important thing. [...] Pain as such is not pathological in quite a lot of our worlds, and so we sort of reflect on how to normalise pregnancy, how to support women through things like [air quotes] "pain "in a way that doesn't require, perhaps, first stop epidural but gives women a sense of being able to kind of control."

And that's when I decided not to apply to midwifery. Thank you for coming to my TED talk.
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ScottishDiblet · 28/06/2018 21:43

This all brings back the horrors that I went through before, during and for a long time after labour but one of the worst things for me was the begging I had to do for pain relief. It was humiliating and just so so painful. And all that nonsense about making you labour at home for as long as possible - I get it, Labour can take a long time and labour wards are over stretched - but honestly the times I have heard about friends being turned away in labour and suffering at home for hours or days. It’s inhumane. I was very poorly during my DD’s birth and then left catheterised overnight and left on a busy ward to look after my baby. I emptied the catheter myself holding my baby and then tried to feed her while she screamed and screamed for milk. I buzzed for the midwife only for them to come and bark at me that I was feeding her wrong but didn’t take the time to show me how to do it. That night on the ward was the worst of my life. I suffer serious depression and anxiety and kept trying to ask for help but no-one would listen “it’s just the hormones”. I had a stitched up tear that didn’t get looked at by the GP at my 6 week check. Months later it turned out I had retained placenta and needed vaginal reconstruction as a result of very badly done stitches. I got an infection from the second operation and was fobbed off for weeks by the consultant who did the op who didn’t believe I was suffering with more than unusual post-op pain. The whole thing was just awful and I can’t see myself ever getting over it enough to feel strong enough for a second baby. I am damaged and traumatised for life.

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mostdays · 28/06/2018 20:44

I don't know if this actually counts but after ds3's birth I had coccydynia. Well, I still do but these days I am free of pain quite a lot of the time and it only really is an issue if I do something stupid like sit down for a long time... but ds3 will be 4 in November. For the first year no one would do anything at all about it. Eventually a GP referred me to the MSK clinic and suggested I'd have anaesthetic injections. The MSK clinic said no, I hadn't been in pain long enough for that and after my initial appointment with them sent me a leaflet inviting me to activity groups for sedentary people. Even when people agreed to actually see me I got the strong message that even quite long term pain after having had a baby was to be expected and put up with.

A male colleague has coccydynia at present and is prescribed codeine, has regular appointments for management of his condition and is generally being treated as someone who needs and deserves care so that their pain is alleviated. It's an interesting difference.

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Summerscorcherisjustsummer · 28/06/2018 20:20

Lack of basic commen sense with institutionalisation, and de sensitisation
.... Leads to some nurses acting like robotic automons.

It beggars belief that a woman in serve pain is treated with caution after birth when it's obvious there could be something seriously wrong.

It's astonishing the lengths sick and ill people have to go too to fight their corners in hospital agaisnt rigid entrenched staff. Often after major surgery or birth.

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TurquoiseDress · 28/06/2018 19:53

Thank you for so much for this guest post!

This issue is just not addressed as often as it should be or taken seriously at all.

I am in the third trimester with baby no.2 and some of the posts have made me shudder.

All the memories coming back from baby no.1 and the dreadful post-natal ward in a London teaching hospital!

I had a CS for maternal request with first baby, and I do feel that had some impact on my care afterwards (I don't know, maybe it just me being sensitive, hormonal and in horrendous amounts of pain).

The midwives were quite dismissive, saying that "you've had a CS, you are going to be in pain" while offering up a few paracetamol.
Also, one midwife made a comment to me that "a CS is not the easy option" which I took to being a judgement of my choice of having a CS.

I should hopefully be having another CS, waiting to get the date booked in.

This time, I am going in more prepared- definitely will take some paracetamol in my handbag, plus some medication (Dihydrocodeine) left over from my missed miscarriage when I had medical management.

So long as I am with it enough to make a note of what I take and the times, I will take what I need, if it comes to that.

What stuck with me was the way there was such a dismissive attitude towards all the women in pain.

Being told that my drug chart had "gone missing" was the excuse given a couple of times, and because of this I could only be offered paracetamol.

Just not good enough. And I'm willing to bet that every other post-surgical ward in the hospital had patients who had been prescribed all manner of effective pain relief.

Why are women made to just get on with it? or belittled, chastised and made to feel generally like a huge inconvenience to staff on the post-natal ward?

Unfortunately, the whole experience coloured my overall impression of midwives and a few years on, I still have a very poor opinion of them as whole- sadly influenced by a minority who I had the misfortune to encounter in the first day or so after birth.

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RowanMumsnet · 28/06/2018 11:56

Hello

Thanks for all your responses. Sunita (the author) wants us to let you know that she is reading the thread and will be picking up on the themes discussed here to inform her ongoing work. She's also received some emails and approaches on Twitter (@SunitaS2016) - do feel free to contact her by email ([email protected]) if there's something you'd like to say off-thread.

Thanks again - and remember, if you'd like to be kept up to date with our campaign for better postnatal care (some good pieces of news coming up, we think!) you can email us on [email protected] and ask to be added to the dedicated mailing list (with a no-spam guarantee)

Thanks
MNHQ

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yellowtoad · 28/06/2018 00:54

I totally agree. I had quite severe pain after a 3b tear. I was desperate to get home to my older child and therefore asked to be discharged as soon as possible.

My drug chart got sent to pharmacy to prepare my discharge meds, which meant that I went 6h without doses of paracetamol & ibuprofen purely due to lack of a drug chart. I was in agony walking out to the car.

It's so bloody silly. I'm a grown up, i know how many painkillers ive had that day, and im in agony - just give me some painkillers! I now advise all my mates to take paracetamol and ibuprofen in their hospital bag to cover for this eventuality.

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mostdays · 27/06/2018 23:53

The thought of only being given paracetamol after a section is hideous. I had codeine after sterilisation which I'm sure is far more minor surgery and I was very glad of it indeed.

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CookPassBabtridge · 27/06/2018 23:49

Oh and another thing I hated, whilst being immobile/covered in blood/half naked/tubes everywhere/sweating/in pain was endless people coming through the curtain to sign me up to baby stuff, get my details, checks. I had to tell one woman politely to go away as no I don't want to get registered for baby photography, I am in hell!

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lalascribbles · 27/06/2018 23:17

My experience in February this year was far from good, as a nurse myself I was appalled, I had an emergency section at 2am. This was after labour since midday. This was under a GA as it needed to be very quick. Once transferred to the recovery suite my husband and Mother had to leave, a midwife had let us all stay in the theatre for quite a while after as there was no where else she could allow them to see me and baby and after it had looked like husband was going home without a wife or baby I assume she felt sympathy for us.

Once on the recovery bit, I'd say around 03.30 at the latest, I was only spoken to when a nurse came in to do checks on baby as he had to have four hourly BM and oxygen levels. I wasn't particularly in pain at this point but had said I was unhappy with being in the hospital gown with a very large amount of blood on the sheets/me/gown/everywhere. I stayed awake awkwardly holding my baby until my husband arrived at 10am. I was given breakfast, toast and tea, which was put where I'd have to move to get it, excellent when you're not allowed to move and couldn't if i wanted to. I have a foggy memory of this, and would still have been confused from GA but was unattended with baby. Then the pain hit me like a truck, my husband asked several times for pain relief and when I was brought some they didn't tell me me what it was just put it on the side, when asked I was told pain killers. I had to ask again what it was, going forward 4/6 hourly medication rounds weren't done on time and several times I had to press my buzzer and request pain relief this wasn't done quickly and was greeted with rolling eyes. When asked to move from the one bay to another 12 hours post section they didn't help me walk, or offer a chair. Overnight once husband had to leave they offered no help, actually a lady across from me who hadn't had a section and could move much easier helped me to get out the chair, and to pick things up and my husband had tried to make things as easy as possible. I forced myself to walk about and in the morning got dressed put makeup on and got myself discharged so I could be home with help from husband and parents and be looked after myself. I was discharged with two days pathetic pain relief for after major surgery, luckily I have a very good GP who I called said I'd had a section and did a script to be collected with decent pain killers for a month.

Overall those two days and nights were the worst of my life and I get upset thinking about them, the combination of the experience that lead to the EMCS and my treatment after had put me off more children, I could never do it again.

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SM2132 · 27/06/2018 22:41

I took 30/500 cocodomols into hospital with me for the day after the birth for this reason. Glad I did as the paracetamol they offered me wouldn't have touched the sides!

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Dangermouse80 · 27/06/2018 22:22

Mixed experiences; 3 planned sections. First and last - paracetamol / ibuprofen and oromorphine available. Second - was not allowed anything stronger than paracetamol. Also contracted a stomach bug with horrendous cramps / diarrhoea on recovery. Doctors seemed to not believe me and foreign health care could not understand why I did not want to have a wash (I felt faint and sick!). Best experience was my 3rd, they asked when I wanted to get out of bed - opted to have catheter and stay in bed for 24hours this was seen as fine. Next day I was up and about and asked to have a script of oromorph to take home with me. Can honestly say I had zero pain the whole time. If patients could rest for 24 hours and get strong pain relief it would be so much better for everyone. I had no issues establishing breastfeeding and the doctor told me to take medication on time always to keep on top of the pain.

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ToadsforJustice · 27/06/2018 22:02

Remove MW from post natal care. They don't want to do it and there isn't enough staff to cover. Use nurses instead. Provide 24 hour care and pain relief. It's not difficult.

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sausagerollsontheside · 27/06/2018 21:46

I had a c section with a ga so no help of an epidural

I was prescribed paracetamol, prodded and told to stop crying the next day whilst trying to drag myself to scbu.

It is outrageous.

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PeachyPeachTrees · 27/06/2018 21:28

I had a 3 day long, painful and tramatising birth and SPD and a 4th degree tear. I was only given paracetamol which did nothing. It was only when I had an infection and burst stitches due to swelling that I finally got some better painkillers. I had so many physical problems and yet doctors just say, it's normal and it will pass and fob me off. It made the pain and stress last years instead of months. They act like we're being pathetic and should just suck it up.

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PeachyPeachTrees · 27/06/2018 21:21

My Sis in law had a planned CS and no complications. She was sent home with morphine to inject for the first week. This was last year, so maybe it's a postcode lottery?

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dahliaaa · 27/06/2018 20:33

I had a section in 98 and 😡that women still left to struggle in the same way.
I had inadequate pain relief but the biggest issue was that every time I stood up I passed out (as in full on faint.)
I was in a room on my own for some reason but midwife wouldn't let DH stay overnight with me. No-one came to help me despite calling and DS v distressed. I was so frightened that I would drop him if I fainted. The whole night was horrendous.

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4yearsnosleep · 27/06/2018 19:14

I was told by my consultant about 14 months after I had my daughter that I should've expected to be in pain for years after having my daughter. 5 years on and I'm now on slow release morphine everyday and still in pain every day

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Bowlofbabelfish · 27/06/2018 19:00

nonsuch

My comment about buckets of OxyContin wasn’t aimed at you - apologies if it seemed that way. I was actually agreeing with you, the attitude that a few painkillers when in actual pain leads to addiction and so women must Suffer is a really prevalent one, and frankly a bit shit.

It’s all a bit biblical isn’t it? Woman till thy field in pain and all that.

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NonSuchFun · 27/06/2018 18:52

Not to mention asking about resumption of sexual intercourse 2-6 weeks after the birth.... now it's true, I know some people are straight back at it, my lovely childminder drunkenly confessed she and her hubby had done the act in the maternity ward bathroom, a confession that still leaves me profoundly shocked!
But I'm pretty sure most people are in no way ready for many weeks. I hear gales of hollow laughter at the suggestion that 2 weeks is a good time to ask. I really think I must take this up with NICE.
ITS NOT NICE, it's bloody ridiculous!

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NonSuchFun · 27/06/2018 18:46

And WOW !! NICE recommendations read like they've quoted straight out of a 1950's midwifery text book I keep for novelty's sake! I'm really shocked now. Off message re: pain relief but hey, look after your mental health by looking after yourself ladies. A gentle walk and some fresh air should do it. 🤔👍🤣

Guest post: “We should not be normalising postnatal pain”
Guest post: “We should not be normalising postnatal pain”
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NonSuchFun · 27/06/2018 18:38

I'm really shocked reading these posts, and so sorry for all the new Mums suffering such pain. I didn't mean to suggest previously that having tight controls of opiates and stronger pain relief should mean you don't get any! As I said, the strong stuff they used in the 80's was freely available for after pains alone, quite apart from recover from LSCS and other complications when of course adequate pain relief is essential. The particular drug I mentioned that used to be given is no longer licensed in the UK and not suitable for a breastfeeding mother. But that doesn't mean other alternatives shouldn't be available!
I'm really glad someone is addressing this - for a profession that swears by evidence based practice there seems to be a distinct lack of it as regards post natal pain relief.

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