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Guest post: “We should not be normalising postnatal pain”

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MumsnetGuestPosts · 25/06/2018 11:18

I’m the Lead Obstetrician for postnatal care at Chelsea and Westminster Hospital NHS Foundation Trust, London. Such roles are relatively new in the National Health Service (NHS) and I have been working specifically in this field for nearly four years. These roles offer obstetricians an opportunity to actively engage with the wider team in delivering care beyond pregnancy and labour to our mums.

Our initial project included developing a mum and baby app to provide our new parents with information to support them in the immediate postnatal period, and more recently the creation of digital storytelling modules where new mothers have kindly shared their postnatal experiences to support reflection and learning amongst health professionals and other mothers. Both projects are supported by our hospital charity CW+ and have enabled us to explore newer ways of empowering mothers and staff.

We have also undertaken other pieces of work aimed at enhancing the experience on the postnatal ward. It was only at the Royal Society of Medicine Conference on medical innovation in 2016 that I came across the concept of design thinking in healthcare - truly my lightbulb moment in terms of realising how our operational efforts could translate into a really positive difference for our mothers. This methodology encourages a human-centered approach, which goes beyond clinical outcomes, and requires professionals to truly understand the emotional experience (feelings, pains, anxiety, concerns) of those who use and deliver our service. This discovery stage (i), is then followed by stages of defining the need (ii), brainstorming and developing (iii) empathetic models of care and finally delivering (iv) care. Further reading revealed that this methodology had also successfully informed the Better Births report, the NHS 5-Year Forward View for maternity care.

In October 2016, we adopted this design thinking approach to postnatal care in our hospital and have started to gain new insights into the real-life experiences of the new mothers and the team providing care. Part of this work involved running a Whose Shoes? workshop, bringing together a range of staff and mothers/ partners and babies (see above image) to start a journey of healthcare improvement. We are now working on a number of the identified themes through the NHS Early Adopters Maternity Transformation Programme in Northwest London.

A Fellowship in Quality Improvement - Collaboration for Leadership in Applied Health Research and Care (CLAHRC) - in 2017, offered me the opportunity to focus on improving experiences associated with pain in the postnatal period. This is a theme that repeatedly came up in my postnatal clinics, an observation in keeping with the Mumsnet survey's findings of postnatal care. My own low pain threshold and clear recollection of my first childbirth (before I chose a career in maternity!) motivated me further. This was when the overriding clinical need was to get me out of the bed and mobilised ahead of the day 1 obstetric ward round, irrespective of my pain management. Beyond my personal account, several studies report that poor management of acute or persistent pain after childbirth can be associated with symptoms of postnatal depression at three, six and 12 months, and can negatively impact breastfeeding and mother-baby bonding. Therefore getting correct pain management after childbirth is so important.

To understand why the pain management strategies were not translating into good experiences, we undertook surveys of mothers and staff on the postnatal ward. We found that mothers sought regular reassurance about the safety of painkillers whilst breastfeeding, but that this reassurance didn’t always materialise in a busy ward setting. On the other hand, staff were genuinely surprised that this should even be a concern to a mother when a health professional was prescribing and dispensing medications. In addition, having gone through most of the pregnancy avoiding medications, the sudden transition to being offered a range of them really worried some mothers.

With time, I noted further preconceptions, biases and opinions unique to the postnatal period. This led me to explore how pain is assessed postnatally compared to other areas of healthcare. The expectation of pain or discomfort after childbirth means that mothers did not always seek support or pain relief medications, even at times when it may have been needed. It was not routine midwifery practice to use an objective tool like a visual analogue score (0-10 pain intensity scale at rest and on moving), where women assess their pain’s intensity to guide staff as to their needs. Using quality improvement methodology, our team has started to incorporate this into our routine clinical care, with positive feedback from staff who have started using it. The local teaching programme now emphasises the need to treat and manage pain after childbirth with the same significance as one would outside of maternity settings like in gynaecology or surgery.

Two years ago, I naively believed an operational approach would have long fixed this problem but as I’ve delved deeper, the intricacies of managing pain after childbirth are now becoming clearer. Working with a design approach and with the support of our maternity voices partnership team, we have started the journey towards optimising pain management in our service.

Through this blog (my first ever) I want to achieve two aims:

  1. To empower new mothers and mothers-to-be to work with their local Maternity Voices group to have their knowledge and insights help design how healthcare is delivered; and

  2. To raise awareness that poorly managed pain after childbirth is an avoidable outcome with possibly significant negative consequences for the mother and her baby. Mothers should feel confident to assess the intensity of their pain after childbirth and work jointly with their health professional to address this. Defining this pain as part of the ‘normal’ experience after childbirth cannot be right and this must change.

    I would welcome suggestions on how mothers feel that hospital postnatal services should be designed to optimise pain management. You can contact me via Twitter or email at [email protected].

    Image: Parents and Chelwest Maternity Voices co-chairs (back row - extreme left and right) who took part in the Whose Shoes event on postnatal care in July 2017.

    You can find out more about the Mumsnet Better Postnatal Care campaign here.
OP posts:
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anyideasonthis · 26/06/2018 23:13

'Congratulated by the nurse for "managing without the stronger painkillers"'
Urgh. This makes my blood boil and it was my experience too. Praise the maidens who comply with society's ideals of how good little women should not make a fuss, and vilify (or at least show mild disappointment to) the rest for being weak.

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peartreeishappy · 27/06/2018 00:24

When I had my emcs in the late 90s I was fixed up with a patient controlled analgesia pump loaded with morphine.

When I had ds2 in 2004 I was given voltarol suppositories and codeine.

Now, they’re only giving paracetamol?

Why the dramatic reduction over time? Pain doesn’t change. What do they have against pain relief? Are they afraid people will get addicted? Like I said, it’s happening in other care settings as well, so there has been a big shift in attitudes over the past 15-20 years. What’s driving it?

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Bowlofbabelfish · 27/06/2018 07:12

Excellent point above that pain in women is often seen as hysteria/anxiety.

The idea of just giving a patient who has had major surgery paracetamol while expecting them to be up and about and lifting a baby is horrendous. Men who have just had abdominal surgery get to rest, recover and have appropriate pain relief.

Women are not incubators. We need decent pain relief and we need care. Pain relief often isn’t given on time - far too often the nurses were too busy to bother and once it’s all worn off it’s less effective than if you can keep the level topped up. Several doses were missed entirely. A few codeine or some morphine taken under supervision isn’t the same as giving people a bucket of OxyContin to take home.

Really the whole system needs overhauling. All of it. I had severe HG through both pregnancies. Apparently vomiting fifty times a day is normal and one shouldn’t make a fuss. Women are belittled, dismissed and ignored throughout pregnancy. Our birth choices are not respected (see umpteen recent threads on forced vbacs, how hard women with serious injuries have to fight to get a cS, birth injuries, HCPs not seeking consent etc.)

Nothing, NOTHING has opened my eyes as much to the need for feminism as being pregnant and giving birth. DH has spent two pregnancies muttering ‘men would never put up with this shit’ and also having his eyes opened.

When I think about it all I get extremely angry.

So it’s wonderful you are looking at pain relief, but I beg you - relate this in to wider issues as well. It has to be joined up thinking and joined up policy making. It’s not an issue that stands in isolation, it’s one that runs through maternity care in general.

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hamandpease · 27/06/2018 07:26

This reply has been deleted

Message withdrawn at poster's request.

GoldenWonderwall · 27/06/2018 07:39

It wasn’t me that refused pain relief as I was worried about taking it, it was the midwives that refused to give it to me! My first cs I was given paracetamol and dioflenac, the second paracetamol and oramorph twice because I wasn’t ‘allowed’ anything else because I was breastfeeding and I wasn’t ‘allowed’ more oramorph if I wanted to go home. The drs seemed exasperated by the midwives saying I couldn’t have anything else but didn’t come up with a solution. We need more breastfeeding friendly pain relief if paracetamol is the beginning and end. If it is not, then hospitals have a responsibility to ensure patients are pain free. Don’t pass it down the chain to new mothers who are anxious about taking tablets.

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MitMopse · 27/06/2018 08:22

Canabanana my experience with my second child, born by c section, was just like yours. Thanks for posting and thanks to op. It took me around 5 months to feel better and it was so hard- ironic as I had an ELCS after a 3rd degree tear and year of pain after my first birth. Made we wonder if patients having other kinds of major surgery are just offered paracetamol and left to get on with it. I doubt it.

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TwittleBee · 27/06/2018 10:07

Totally agree, pain needs to be taken seriously and also investigated! My pain was ignored and it took going private, as kept being dismissed by NHS, to realise I had a serious infection left over from birth! It could have ruined my future fertility!

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CookPassBabtridge · 27/06/2018 10:57

Being given paracetamol after major abdominal surgery is disgusting. Luckily I had diflocenac I'd brought back from the Middle East after my previous section so used that instead. You can buy it from pharmacies there.

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Loopytiles · 27/06/2018 10:58

“The idea of just giving a patient who has had major surgery paracetamol while expecting them to be up and about and lifting a baby is horrendous. Men who have just had abdominal surgery get to rest, recover and have appropriate pain relief.”

Yes yes to this.

There is also a safety issue! For both mothers and newborns.

With DC1 my C section ended late at night, was 1am ish when we got to postnatal ward. DC1 was then left with me, in a crib, screaming, all night. I couldn’t feel my legs properly after the spinal and couldn’t safely pick DC up, pressed the button for help but the healthcare assistants said it was my responsibility to care for and feed my baby. Catheter was full but they were too busy to empty it. So I struggled, took DC into the bed with me and tried hard to feed. We couldn’t latch on. I desperately gave DC my finger to suckle on, which seemed to sooth. A HCA told me “you’ll never breastfeed if you do that”. Thank god, DC finally fell asleep, in my armpit, on the edge of my hospital bed.

I was terrified I’d fall asleep, after a long time of (early) labour then a C section, but managed to stay awake until visiting hours started at 8am and DH came in. as soon as he picked up DC and knew she was safe and help had arrived I cried hysterically.

Worst night of my life SadAngry and still upsets me to think of it ten years later.

The one upside was that at that point the surgery anaesthesia was still working so had no pain! Smile Night 2 was even worse!

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Putbiglighton · 27/06/2018 11:12

I'm horrified by some of these stories. I gave birth in 1992, 1993 and 1999, the last one a c section. I had adequate pain relief afterwards and was allowed to rest and recuperate. I have two daughters and a potential daughter in law, and it's awful to think what they may have two go through, there doesn't seem to be adequate care on post natal wards anymore.
I agree with the previous posts about women's pain being disregarded, and yes, it is a part of a more widespread mysogyny. It seems that if you're not a rich, white, heterosexual man, then you don't really matter, you're not important.

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Putbiglighton · 27/06/2018 11:13

to go through, not two, obviously!

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Snipples · 27/06/2018 11:35

I really identify with so much of this. I had my baby girl almost 4 weeks ago by emcs. The pain afterwards was horrendous. I was given paracetamol and then dragged out of bed and forced to walk. I was clinging on to my husband sobbing in agony while the midwife said I had to stand up straight. Eventually they gave me morphine as I literally couldn't walk, or shuffle across the bed to lift my baby. It was horrendous. There's no way men would be dismissed and minimised in this way. It needs to change. There's also very much a "well you've got a healthy baby that's all that matters" attitude which I found was akin to "shut up moaning about your pain".

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CookPassBabtridge · 27/06/2018 11:59

Yes it was just the being left to fend for myself, not all of us have someone who can help. My DP had to look after toddler. Imagine asking men to recover from serious abdominal surgery while covered in catheters, wound drains, drips and then change, feed and keep a newborn quiet. A newborn with sticky tar like poos! All while trying to establish breastfeeding and the constant noise of other peoples loud visitors who were allowed to come in huge groups. While not getting any sleep and just popping paracetamol for the pain. Not being able to walk. It was hell.

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Batteriesallgone · 27/06/2018 12:17

My straightforward vaginal birth has left me with a birth injury. I’m reasonably sure I have a (minor) prolapse.

I have not yet summoned up the strength to go and try and get help for it. I can’t face the shitty attitudes (that injuries mean you’ve failed in some way) the fact that no one cares (I blindly believed after my first child that I would state I had a problem and would be treated like an actual real person. Hahahaha hollow laugh. Now I’ve had three and am done having kids I imagine I’ll be treated as even more subhuman) and the really, really shitty attitude towards new mums bringing their babies to medical appointments and perhaps even (shock! Disgust!) needing to breastfeeding them MORE THAN ONCE and not just feeding them for ten minutes then popping them in the pram to have a good cry while the adults do important things like talk to me like I’m barely older than the baby.

I can’t face that until I get some sleep and the humiliation of a bit of urine leakage is nothing compared to the humiliation of being a post partum woman seeking help from the NHS.

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Whenwillwe3meetagain · 27/06/2018 12:18

I had my first baby at C&W and used the app but second time around no one mentioned it. I was transferred to West Middlesex (same trust) for my ELCS due to no spaces, no mention was made of the app. Only by reading your post did I remember it. No mention from health visitors etc.
The paracetamol only post section is bonkers please sort this out!
No guidance on wound care post section apart from expose it to the air as much as possible. This is hard especially second time around!!

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elliejjtiny · 27/06/2018 12:34

@CookPassBabtridge totally agree. My DH was looking after our other dc too so I had nobody to come and help me. Pain after csection was awful and moving made it 10x worse. I was made to feel really pathetic when I asked for help or more painkillers. I cried so much when we were on the postnatal ward, it was horrible.

When DH had a vasectomy he was sent home with proper painkillers and told to rest in bed for 48 hours, then take it easy after that.

I still have PND 4 years later. More money for staff and more painkillers are needed for postnatal care.

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crazycatbaby · 27/06/2018 13:51

These stories are awful 😢 I had an EMCS and they didn't give me a voltarol suppository in surgery (they did tell me why but can't remember), I was on my own on a ward with one midwife looking after us all night, give me a kind of bed bath in the morning and transferred me to another ward. I was asked to get up and stand up and I asked for some pain relief, they realised then that I hadn't had my suppository so got me back in bed, and got me one. Was kept topped up with oramorph and other painkillers until I felt I didn't need them. Lots of help lifting baby (as much as they could do in a busy post natal ward). I feel very lucky after reading these posts Thanks

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NeegansWife · 27/06/2018 13:56

I've had 4 children. In no other area of healthcare can I think of a set of patients who are treated as whiney, hysterical, subhuman simpletons who don't know their own minds and who should be expected to suffer awful, just bloody AWFUL levels of pain JUST BECAUSE WE HAVE GIVEN BIRTH. I looked as hard as I could after each birth but I just could not find the medal winners podium where I could accept my gold medal for suffering without adequate pain relief. I've learned to live with the feelings of failure that were forced upon me at the time, my last birth being 10 years ago, but I don't think I'll ever shake the resentment of being under-treated simply for being female.

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Sleeplikeasloth · 27/06/2018 14:36

My hospital care was exemplary following my elcs, and apart from a bit of oramorph, paracetamol and ibuprofen were fine (which surprised me!)

What wasn't alright though was the last painkillers round of the evening being at 10pm, and then not until 6am, given paracetamol doesn't last that long. Hence asking for the oramorph to tide me over. Next time, I think I'll just take an extra dose with me at 2am, but I shouldn't have to worry about that.

Still, it was a small thing. Clearly the NHS does sometimes get it right, as they were otherwise great, but there needs to be more consistency across hospitals.

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PasstheStarmix · 27/06/2018 14:52

More readily available pain relief would be a start aswell as basic aftercare. After an induced high alert 25 hour labour and a second degree tear I was sent to the recovery ward and just left to get on with it. No pain medication was given or offered and I had to ask for it and was then reluctantly given paracetamol over two hours later which did not do anything. I was harassed in my hospital room by people trying to sell photos (being so exhausted this was the last thing on my mind and highly Intrusive). I didn’t sleep in hospital and wasn’t given the environment to work constant traffic. I went home in a zombified state after discharging myself because I knew I’d be better off at home. On discharge I was given no information on how to properly care for my stitches or what is normal and what isn’t in regards to bleeding. As a first time Mother I was left feeling like tick boxes were baby out breast feeding yes thank you very much. I received absolutely no after care for myself and didn’t feel like a person.

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PasstheStarmix · 27/06/2018 14:53

do so with constant*

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PasstheStarmix · 27/06/2018 14:54

I wasn’t given any more pain relief other the 2 paracetamol I had to as for either.

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PasstheStarmix · 27/06/2018 14:55

ask*

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Allegorical · 27/06/2018 14:58

On the post natal ward now. Been given oromorph the first night as well as paracetamol and ibuprofen. Then they started dropping the dose of oromorph despite me telling them I intended to stay another night. They wouldn’t give the second night. Just paracetamol and ibuprofen. I had to ring the bell for every dose. They always said yes they will be round in a bit, on the next drugs round. I have been late with every single dose. I am made to feel like a pest keep asking. This is my third baby, second section so the pain is a lot worse this tome. Still on the ward waiting to be discharged now so don’t see why I couldn’t have had the oromorph last night and what the big deal is anyway. Got dh to bring me some paracetamol and ibuprofen in. Last time they gave it me was 7:30 am this morning when i went to the nurses station and asked for it. Not offered anything since. So self medicating now as sick of the gaps.

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WerkSupp · 27/06/2018 15:24

I never had a CS but had a forceps delivery. By the third birth I knew to bring my own pain relief in with me and self-administer. People on here talk about how dangerous that is but the fact was the staff in the postnatal wards just didn't give a shit and why on earth should people be in pain? I knew to bring in my own food, too. The postnatal units were hell on earth. Loud, hot, dirty and crowded. Not at all fit for purpose. No privacy at all whatsoever to rest, establish breastfeeding.

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